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by Ivona
Fri Jun 15, 2012 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA, suspicous scan, crazy nervous - thoughts please?
Replies: 10
Views: 2991

Re: Rising CEA, suspicous scan, crazy nervous - thoughts ple

Well...in all of my years of meeting cancer patients and survivors...here and at my local support group, I have never heard of anyone who had a recurrence in the same spot as the original tumour! To my knowledge, the common spots for a recurrece are initially liver, lungs and/or peritoneum....follow...
by Ivona
Fri Jun 15, 2012 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Started Regorafenib !
Replies: 29
Views: 2891

Re: Started Regorafenib !

this drug sounds promising....let's all hope so!

good luck with your trial...

http://www.medicalnewstoday.com/articles/240536.php
by Ivona
Mon Mar 19, 2012 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long term effects - anyone???
Replies: 6
Views: 2194

Long term effects - anyone???

Hi,
I am looking for any papers or other info on the long term effects of Folfox and/or 5FU. I seem to recall reading an article about possible heart problems...but of course I don't remember where or when I read that! (chemobrain! :roll: )

I'd appreciate any info on this....thanks!!!
by Ivona
Sun Feb 19, 2012 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can primary progress while liver/lungs tumors are shrinking?
Replies: 5
Views: 887

Re: Can primary progress while liver/lungs tumors are shrink

Good point about adhesions and scar tissue. I have that....and it causes my BM's to be all over the map..... :roll: Sometimes they're normal, othertimes they are thin, noodle-like...and sometimes I'm downright constipated with little rabbit poops. Welcome to the ''new normal". Mention this to t...
by Ivona
Sun Feb 19, 2012 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anti cancer diet?
Replies: 28
Views: 3834

Re: Anti cancer diet?

I didn't mean to imply that drinking alcohol is ok during treatment. I pretty much abstained while on treatment because wine tasted metallic and nasty anyways....plus I didn't wish to add an extra stress to my aleady hardworking liver! :? Once treatment finished, I threw myself into eating super hea...
by Ivona
Sun Feb 19, 2012 1:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: March - CRC Awareness Month
Replies: 9
Views: 972

Re: March - CRC Awareness Month

4 years ago I didn't even know what colorectal cancer was.... :shock:

now I think I know more about the disease than my damn doctor!!! :?
by Ivona
Sun Feb 19, 2012 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pink Ribbon Inc.
Replies: 21
Views: 2086

Re: Pink Ribbon Inc.

Well I saw it yesterday. I encourage all of you to see this 1.5 hr documentary, it's quite telling. Some points made from this movie: 1) millions of $$ are raised for research. out of this money, very little goes towards finding out the CAUSES of this disease, and prevention (how can you find a cure...
by Ivona
Fri Feb 17, 2012 12:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver question
Replies: 15
Views: 1747

Re: Liver question

Also don't discount costochondritis...especially if you had a chest cold. I've never even heard of this and it was someone on this board who brought my attention to this condition. It turned out I actually got it once last year after a particularly gruelling cold and laryngitis virus I had. http://e...
by Ivona
Fri Feb 17, 2012 12:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Standard CHECK up protocol for CRC post adjuvant chemo
Replies: 12
Views: 1354

Re: Standard CHECK up protocol for CRC post adjuvant chemo

It was my understanding that chemo should begin within 2 months of curative surgery to remove the cancer for it to be considered effective. If I'm reading correctly, you're getting only one chemo drug and are 7 months post dx. Am I missing something? That's what I am wondering too! I had CT scans a...
by Ivona
Fri Feb 17, 2012 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anti cancer diet?
Replies: 28
Views: 3834

Re: Anti cancer diet?

Well IMHO, not all of us had lousy diets when we got cancer. :shock: If diet alone was a cure-all we wouldn't even be having this conversation. Human beings have evolved to be omnivores and I think that the more variety of foods you eat the better your chances of getting the important nutrients your...
by Ivona
Fri Feb 17, 2012 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pink Ribbon Inc.
Replies: 21
Views: 2086

Pink Ribbon Inc.

Am planning on seeing this documentary this weekend....

http://www.nfb.ca/film/pink_ribbons_inc_clip/
by Ivona
Mon Feb 06, 2012 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda recommendations please
Replies: 23
Views: 2149

Re: Xeloda recommendations please

Nausea should NOT be a huge problem....but I was prescribed stemitil on an as needed basis just in case. I think I took it less than half a dozen times during my 5 months or so while on Xeloda. I was lucky in that I never developed the raw peeling hands or feet. However, my hands and feet did hurt.....

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