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by Tallgirl_5_11
Wed Oct 18, 2006 11:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFIRI
Replies: 5
Views: 3358

I went on Folfuri in Feb of 2006. I ended up loosing my hair from the Irinotican. It fell out slowly for about 4 months, then i finally decided to shave it off. It never completely fell out, but enough where you could see bald spots. I also had bad diarrea with the irinotican. I was happy to get off...
by Tallgirl_5_11
Thu Apr 27, 2006 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxiplatin and muscle pain
Replies: 8
Views: 2359

Hi Billy,
I had muscle pain in my calves and my arms. It was so bad after my second treatment I could not walk. My oncologist decreased my dosage by 20% and I had no more muscle pain.
Good luck,
Lynn
by Tallgirl_5_11
Fri Apr 07, 2006 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux---Anyone else have a rash?
Replies: 16
Views: 5296

Hi All, Thanks for all of your suggestions. I have found something that I think works pretty good at taking the redness away from the rash and the bumps on my forhead have decreased. The rash is still there, but not as pronounced It's called REGENECARE and it's by perscription only. It's a gel that ...
by Tallgirl_5_11
Fri Apr 07, 2006 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: bloating and fluid build-up in stomach
Replies: 10
Views: 4522

Hi Thelma, Wow what a story. I can't believe an oncologist would act that way. We are fighting for our lives, not trying to buy a new car. We have to look at every option out there. My oncologist does not have the best bed side manor either and I am afraid to suggust other options somtimes. I talked...
by Tallgirl_5_11
Tue Apr 04, 2006 10:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IPHC
Replies: 1
Views: 1433

Hi Katherine, I have heard of this and they do the procedure at the University of Pittsburgh. The drs name is Dr. Bartlett. Here is a website that i found http://www.pittsurgonc.com/procedures/peritonealchemo.htm. I am actually going to make an appointment to talk to him sometime in May. I do not kn...
by Tallgirl_5_11
Tue Apr 04, 2006 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV change in chemotherapy regiment
Replies: 3
Views: 1858

Hi Rochelle, I went through 11 treatments of FOLFOX. Near the end I could not get my platelets up past 50 and my liver enzymes went crazy and my spleen was enlarged. I saw a hemotologist and he thought i might have HEPC or some type of liver disease. He ran a bunch of tests and could not find anythi...
by Tallgirl_5_11
Tue Apr 04, 2006 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: help! need camptosar info
Replies: 5
Views: 2720

Hi, I am stage 4 and went through 11 rounds of oxoliplatin, 5FU with the 46 hr pump and avastin. The oxoliplatin was tough with the neuropathy. I could not drink anything cold, and tingly sensation in my fingers and feet. My cancer came back in my liver and I am now on Camptosar brand name for Irren...
by Tallgirl_5_11
Mon Mar 27, 2006 4:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DEPRESSED TO THE MAX!
Replies: 5
Views: 2463

Hi Joy, I am a 37 year woman with stage 4 colon cancer. I had 11 treatments of Oxoliplatin and they were not fun. After my 2nd treatment of the stuff, i could hardly walk, my legs and arms cramped up and i was limping. My oncologist decided to lower my dose by 20%. Maybe yours can do that as well in...
by Tallgirl_5_11
Mon Mar 20, 2006 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux---Anyone else have a rash?
Replies: 16
Views: 5296

Hi Tracey, Yes if you have some more information about this cream, please let me know. I will try anything. I feel bad that your brother stayed at home during his treatments. I look awful, but i am going out anyway, even without makeup. Which is a real stretch for me. My dad gave me advise and said ...
by Tallgirl_5_11
Mon Mar 20, 2006 10:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Best Friend Just Diagnosed with Stage IV colon cancer.
Replies: 5
Views: 2822

Hi Donna, I am new to this website and I think it is wonderful. I am a 37 year old mother of 2 with stage IV colon cancer. I went through 1 round of chemo and surgery last year. I was off chemo for about 5 months and it started to grow again in my liver and I am on chemo again as of February. My fri...
by Tallgirl_5_11
Mon Mar 20, 2006 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux---Anyone else have a rash?
Replies: 16
Views: 5296

Erbitux---Anyone else have a rash?

Hi, I have taked Erbitux for 4 treatments so far and have a rash on my face, chest and back and dry skin all over. It was recommended to use Head and shoulders on my face, hair and body, but i really don't think it is working that well. I was wondering if anyone else had some suggestions.
Thanks!

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