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by Cured
Thu Jan 21, 2021 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had Seizure- in Hospital 4 days
Replies: 10
Views: 2374

Re: Had Seizure- in Hospital 4 days

Months have passed. I’m doing well. Very happy for my blood counts to be normal: to enable innate immune system to fight off many sicknesses, especially viruses. I isolate and if out wear an N-95 mask to filter what I breathe. We who have cancer must be extra cautious. When I return from the cancer ...
by Cured
Sat Dec 26, 2020 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 70
Views: 7806

Re: Covid 19 vaccine

#1. It’s obvious that each person will form his/her own opinion and choice on using the vaccine. This group has always been good for sharing information and a variety of experiences. ORIGIN OF THE SARS COV-2: Nothing certain is publicly available. I read that two Level 4 Laboratories in the US were ...
by Cured
Wed Dec 23, 2020 8:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 70
Views: 7806

Re: Covid 19 vaccine

Guys, all good thoughts. No-way will I take an experimental vaccine. The RNA creation by itself is scary enough. Clearly they haven’t tested these on people with cancer. Much less patients undergoing treatment....nor all the different kinds of chemicals infused into us. I’m already biased since I be...
by Cured
Tue Oct 06, 2020 7:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 29
Views: 8970

Re: In need of metastasis education

Jsbsf, I suggest you search for a highly skillful colorectal surgeon and ask for a second opinion. My surgeon is an old friend. He has saved peoples lives; and improved lives of many. I seen him tear-up when telling of people who saw him after a permanent colostomy; at which time he could not undo. ...
by Cured
Wed Sep 23, 2020 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 21
Views: 3146

Re: To my CC family

Jill, May the memory of your husband last forever.

Death is ugly and painful to those left behind.
We pray that God will comfort you and your family.

You were brave to reach-out to us/ the Club.
by Cured
Wed Sep 23, 2020 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 6
Views: 1137

Re: New here

Welcome newbie dark-horse, sorry you are here, but you came to a good place. Get with the experts ASAP. Then get a second opinion as necessary. Most importantly: find a skilled Colorectal Surgeon. I have never heard of a neuroendrocrine carcinoma; so I suggest both searching online (Mayo & NIH) ...
by Cured
Wed Sep 23, 2020 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 29
Views: 8970

Re: In need of metastasis education

Jsbsf: Lee is correct. Get with the colorectal surgeon and remove the tumor!!! I had the same logic and asked if, after the radiation with 5FU chemo, if I could skip the surgery. They told me absolutely not. Good thing, as my tumor was “like an iceberg” barely noticeable on the colonoscopy but huge ...
by Cured
Sat Sep 19, 2020 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin itch and rash
Replies: 12
Views: 2351

Re: Avastin itch and rash

Macpud- You’ve received lots of advice here. Sorry you are going through all of this. I’m back on Avastin— but don’t mind it, as I am so happy to be done with chemo. Folfiri lowers my blood counts. We all need to allow our Innate Immune System to be as strong as possible. Especially with the Coronav...
by Cured
Fri Sep 18, 2020 8:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had Seizure- in Hospital 4 days
Replies: 10
Views: 2374

Re: Had Seizure- in Hospital 4 days

My son has recovered from the coronavirus. He had a fever for a week, then was clear. He stayed home per the CDC guidelines. The OXcarbazepine(trileptal) drained sodium from my body. They had me reduce my water intake. I got them to reduce this drug to half of the amount. I found another Epilepsy do...
by Cured
Mon Aug 10, 2020 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had Seizure- in Hospital 4 days
Replies: 10
Views: 2374

Re: Had Seizure- in Hospital 4 days

I never overlapped the Fenbendazole with Chemo. I interspersed it. But I’m off of it for the foreseeable future. Frustrating to me is that most of the seizures are sub-clinical.. Meaning that they were found by the EEG, but weren’t observable. But I can’t really go out due to the pandemic and having...
by Cured
Mon Aug 03, 2020 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had Seizure- in Hospital 4 days
Replies: 10
Views: 2374

Had Seizure- in Hospital 4 days

16 months ago I had a seizure; attributed to treatment of metastatic tumor in my brain. Last weekend my wife saw I wasn’t right and took me to the ER. They admitted me and performed an EEG. I had never had an EEG. they detected “clinical seizures’ which didn’t evidence themselves on the outside; but...
by Cured
Wed Jul 08, 2020 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (treatments & CEA)
Replies: 19
Views: 2784

Re: Update (treatments & CEA)

Rachel and all, 5FU is THE CHEMO for colon cancer treatments. It has proven itself for over 30 years (an Onc RN claimed 50). I believe it’s better to take a break when your body tells you that it is over-stressed. Irinotecan can cause explosive diarrhea- but otherwise I haven’t felt horrible effects...
by Cured
Sat Jun 27, 2020 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 64
Views: 18427

Re: I'm getting worried

Boxhill, You’ve been through the wringer. Good to see you came through it. UsmcColon, I wish the government would sell-off VA Healthcare System. We citizens of the US care deeply about Veterans; we tell such to our Congressmen, who keep increasing funding. The VA can accomplish its mission without t...
by Cured
Fri Jun 26, 2020 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 64
Views: 18427

Re: I'm getting worried

UsmcColon, To focus on good prospect: surgical removal of diverticulitis can be a PERMANENT CURE. It has been for my wife. She finds it interesting that our colorectal-surgeon friend did resections of both do us. Too often the GI doctors never tell you of surgical options. And they seem happy to hav...
by Cured
Fri Jun 26, 2020 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 220317

Re: TIL Immunotherapy at NCI

Sdino- Good to hear that your wife responded to the treatments. Hope she continues to do better. My Onc hated me asking about the trials(he can’t offer them) and doesn’t want to talk about TIL. I copied Cynthia’s successful use of Keytruda and likewise: as if I have no business putting my nose into ...

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