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by Cured
Mon Aug 10, 2020 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had Seizure- in Hospital 4 days
Replies: 7
Views: 553

Re: Had Seizure- in Hospital 4 days

I never overlapped the Fenbendazole with Chemo. I interspersed it. But I’m off of it for the foreseeable future. Frustrating to me is that most of the seizures are sub-clinical.. Meaning that they were found by the EEG, but weren’t observable. But I can’t really go out due to the pandemic and having...
by Cured
Mon Aug 03, 2020 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had Seizure- in Hospital 4 days
Replies: 7
Views: 553

Had Seizure- in Hospital 4 days

16 months ago I had a seizure; attributed to treatment of metastatic tumor in my brain. Last weekend my wife saw I wasn’t right and took me to the ER. They admitted me and performed an EEG. I had never had an EEG. they detected “clinical seizures’ which didn’t evidence themselves on the outside; but...
by Cured
Wed Jul 08, 2020 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (treatments & CEA)
Replies: 19
Views: 2107

Re: Update (treatments & CEA)

Rachel and all, 5FU is THE CHEMO for colon cancer treatments. It has proven itself for over 30 years (an Onc RN claimed 50). I believe it’s better to take a break when your body tells you that it is over-stressed. Irinotecan can cause explosive diarrhea- but otherwise I haven’t felt horrible effects...
by Cured
Sat Jun 27, 2020 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 55
Views: 9830

Re: I'm getting worried

Boxhill, You’ve been through the wringer. Good to see you came through it. UsmcColon, I wish the government would sell-off VA Healthcare System. We citizens of the US care deeply about Veterans; we tell such to our Congressmen, who keep increasing funding. The VA can accomplish its mission without t...
by Cured
Fri Jun 26, 2020 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 55
Views: 9830

Re: I'm getting worried

UsmcColon, To focus on good prospect: surgical removal of diverticulitis can be a PERMANENT CURE. It has been for my wife. She finds it interesting that our colorectal-surgeon friend did resections of both do us. Too often the GI doctors never tell you of surgical options. And they seem happy to hav...
by Cured
Fri Jun 26, 2020 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218299

Re: TIL Immunotherapy at NCI

Sdino- Good to hear that your wife responded to the treatments. Hope she continues to do better. My Onc hated me asking about the trials(he can’t offer them) and doesn’t want to talk about TIL. I copied Cynthia’s successful use of Keytruda and likewise: as if I have no business putting my nose into ...
by Cured
Tue Jun 09, 2020 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is the side effect of folfiri and zaltrap
Replies: 13
Views: 1487

Re: What is the side effect of folfiri and zaltrap

Alex, Best wishes to your Mom. Adding in a prayer. I have never even heard of Zaltrap until you’re post; so please keep us posted on how she does. I am currently doing Folfiri but with Avastin added. However I refused treatment this week as it weakened my immune system too much. Plus mouth sores wer...
by Cured
Fri Jun 05, 2020 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218299

Re: TIL Immunotherapy at NCI

Thanks for sharing this.
I asked my Onc if I can join this trial.
Not that I wanted to be old and metastatic
by Cured
Tue Jun 02, 2020 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 22
Views: 4179

Re: In need of metastasis education

Dear JSBSF, How is your husband doing now? BLOOD THICKENING: When my wife had blood clots, including a PE, a Hematologist MD said that low oxygen level could cause platelets to get sticky. After that my wife did the Sleep Study and has used C_PAP each night, besides taking Warfarin. Daily I take a 3...
by Cured
Tue Jun 02, 2020 8:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID-19 test required by Cancer Center
Replies: 7
Views: 1525

Re: COVID-19 test required by Cancer Center

Mike, It would appear that lots of people have had the SARS-2 & were able to recover. For $80 a local hospital’s Work Comp clinic offered to do the antibody test. For our business I want to check our staff for COVID-19. They want $200/person. The “free” tests funded by the government are availab...
by Cured
Thu May 28, 2020 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID-19 test required by Cancer Center
Replies: 7
Views: 1525

Re: COVID-19 test required by Cancer Center

This week they infused me without scheduling another Covid test. Thy have another swab test scheduled for late June - before I get CT Scan and see the Onc. Today is day 3 and my pump was disconnected this morning. So the most uncomfortable days are are done for this cycle. My blood counts were down ...
by Cured
Thu May 14, 2020 9:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID-19 test required by Cancer Center
Replies: 7
Views: 1525

Re: COVID-19 test required by Cancer Center

The nurse swabbing my nostril was obviously very experienced. It barely irritated me. She asked if it made my eyes kind-of tear-up. Yes; but that was it. It took more time to que-up than to be tested. The result was NEGATIVE for the virus, and was on My Chart late the next day. THANK God I am health...
by Cured
Sun May 10, 2020 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID-19 test required by Cancer Center
Replies: 7
Views: 1525

COVID-19 test required by Cancer Center

My Oncologist’s nurse called to see if I could go to a special tented test site to get swabbed before my Monday treatment. So Saturday at 7 AM I got swabbed while seated in my car. I felt I was healthy and have been isolated at home, and felt sure I didn’t currently have it. Today I got the results ...
by Cured
Sat May 09, 2020 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin question
Replies: 6
Views: 976

Re: Aspirin question

Dear Margie, It’s been believed for a long time that aspirin is prophylactic for colon cancer. Full regular 325mg aspirin; inexpensive. Get coated ones to help protect the stomach. (I haven’t read the study you attached.) Along with this I take psyllium fiber everyday & my colon has been clear e...
by Cured
Sat May 02, 2020 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nearly 12 years, Tele-visit with Onc, CEA up
Replies: 12
Views: 2775

Re: Nearly 12 years, Tele-visit with Onc, CEA up

Chemo started Monday. The worst was Monday night- feeling nauseous/yechy. Got the pump unhooked on Wednesday about noon. Now it’s Saturday and I feel pretty normal. The sun has been shining so I’ve been sitting on the deck soaking it up some. When I originally did chemo I maintained my usual routine...

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