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by Cured
Tue Dec 10, 2019 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1175

Re: Memorial Sloan Kettering Hotel Option Question

We stayed at the Holiday Inn- which was a short walk to MSK. I don’t remember the cost, as we needed the 2nd opinion and confirmation on what type of cancer I had this time. Always check hotel program promotions; and use points if possible. Season may matter- as some people want to be in NYC for Chr...
by Cured
Mon Dec 09, 2019 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear CT results!
Replies: 19
Views: 2097

Re: Clear CT results!

OK Amy!
Continue to get well & stay NED.
by Cured
Mon Dec 09, 2019 11:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results are back and scared :(
Replies: 8
Views: 1537

Re: Results are back and scared :(

Anthony- wonderful to hear the good news. I suggest some things for your lifestyle and preventative measures. Of course don’t smoke. 1. Exercise, as it separates the people who tend to get cancer from those who don’t. 2. take fiber daily. I use Konsyl, psyllium husks, which is like Metamucil but wit...
by Cured
Mon Dec 09, 2019 11:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Iliostomy or colostomy?
Replies: 8
Views: 942

Re: Iliostomy or colostomy?

Paul, Make sure you have a Colorectal Surgeon. So that your advice is the best. The best surgeons can often preserve functions. I am confused by your mention of margins. The idea is that the surgeon removes colon to the extent of finding tissues which no longer contain cancer cells. The same with ly...
by Cured
Mon Dec 09, 2019 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is radiation/chemo treatment actually like?
Replies: 29
Views: 3133

Re: What is radiation/chemo treatment actually like?

Ulendon- It’s like what Rock_Robster said. I drove myself to the radiation oncologist each day for 5 weeks. After the quick treatments I drove myself 30 minutes to work. You don’t feel the radiation directly. They required me to be on chemo as the treatment is a combination of the 2. Today a lot of ...
by Cured
Mon Dec 09, 2019 10:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 3598

Re: Still at the hospital :(

Jep, prayers for you both and hope you get to go home soon. After my colon surgeries it was 5 days before going home; as my surgeon did not allow even liquids for days. Must be slow and gradual and not stressing the bowels. Then I’m sure you know what foods to avoid and what you can eat at first. Yo...
by Cured
Sun Nov 17, 2019 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just need to vent because I’m angry
Replies: 16
Views: 1159

Re: Just need to vent because I’m angry

Carboxo, Sounds like you really love your sister. It is good to vent your feelings. When my wife and I were frustrated with our kids a wise priest advised us to “Talk to God more about them, instead of talking to our kids about God.” We can’t control what others do and feel. But prayers can work. Pr...
by Cured
Sun Nov 17, 2019 7:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 3329

Re: 10 Years and Counting

SkiFletch- it is good of you to make the optimistic post. People need hope. Even though some will suffer more than us. I thought I was cured and was cured for 10 years. Even though my cancer came back, I don’t regret thinking that or posting encouragingly. I’m at 11 and 1/2 years now- still kicking ...
by Cured
Sun Nov 10, 2019 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 774
Views: 287036

Re: For Stage III's: NED for how long now?

To Claudine, “As you can see from my signature, my husband is also dealing with lung mets; it's great to hear from another person for whom Folfiri did the trick for those! I assume you're on Avastin maintenance?” After the Folfiri they had me do 4 doses of Avastin. This was to help both the colon ca...
by Cured
Tue Nov 05, 2019 2:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS and other findings help
Replies: 8
Views: 545

Re: KRAS and other findings help

Team Colon Club, Thanks for the insight. I have asked my Onc to catch me up on the current descriptors. 11 years ago when I was diagnosed, it was adenocarcinoma and not much else. I get that these genetic/molecular markers allow for more precise treatments and testing of new treatments. I hope to le...
by Cured
Tue Nov 05, 2019 10:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Birthday to me!!
Replies: 14
Views: 635

Re: Happy Birthday to me!!

Amy, Congratulations so far. May God give you more courage and healing.
Praying that all continues so good and that you have many years as your child grows-up.
by Cured
Tue Nov 05, 2019 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 957

Re: 3 month scan ? What to expect. (Rectal)

Guys, thanks for jumping-in and clarifying things. I didn’t mean to dis chemo pre-surgery. When I did radiation before surgery they would only do it while I had continuous infusion of 5fu. With all of the talk of “sterilizing the field” I asked “so can I skip surgery”? The answer was a resounding NO...
by Cured
Sun Nov 03, 2019 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 957

Re: 3 month scan ? What to expect. (Rectal)

Marie25, We hope for good results for your husband.

I also have never heard of FOLFOX first. Surgery seems to be the standard.
My follow-up was colonoscopy. The PET scan I had was a year after my surgery and treatments.
by Cured
Sun Nov 03, 2019 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 800

Re: SCAN QUESTIONS

Mbpser, You are correct to make sure you understand everything. Sorry for your travel hassles. Here they don’t like to give me the Radiologist report until the Onc has interpreted it to me. But I always want to read it myself, as the Onc gives a brief explanation. Especially when they are listing th...
by Cured
Thu Oct 17, 2019 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phuong is the new ColonClub President !
Replies: 19
Views: 5865

Re: Phuong is the new ColonClub President !

Phuong - I look forward to your leadership.

The Club is so important to so many....but we take it for granted that it will exist. Thanks for giving of yourself To keep it going.

PS: can spellcheck learn your name?

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