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by dianne052506
Tue Jun 17, 2014 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: there are angels among us
Replies: 8
Views: 1271

Re: there are angels among us

Dont forget to include among those angels the friends who write something that makes you laugh -- even though no one knew you were having a miserable day. Skypup, you have been that angel for me more than once. Often here, we cry until we have no tears left. Thank God, there is still a little laught...
by dianne052506
Tue Jun 10, 2014 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2014 ASCO Gastrointestinal Cancers Symposium
Replies: 8
Views: 1474

Re: 2014 ASCO Gastrointestinal Cancers Symposium

Vicki, Your sweet note made me cry. In my head, I've been comparing the general mood of this forum to when I joined 6 years ago. Yes, too often there is still fear, pain, sadness and loss; but these threads about immunology and clinical trials have injected some hope into our common future. Praying ...
by dianne052506
Tue Jun 10, 2014 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer mets to Ovary
Replies: 7
Views: 1779

Re: Colon cancer mets to Ovary

Still here, EIGHT YEARS after original dx of colon cancer with liver and ovarian mets. Had colon resection in June of 06, followed by 4 rounds of chemo, then had hysterectomy and liver resection, followed by more chemo. All those parts don't seem to be a bother, but at the time of dx, there were als...
by dianne052506
Tue Jun 10, 2014 12:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2014 ASCO Gastrointestinal Cancers Symposium
Replies: 8
Views: 1474

Re: 2014 ASCO Gastrointestinal Cancers Symposium

Does anyone wonder how we spent our spare time before we had to help research our own disease? And then there are the wonderful friends (Maia) and family like Vicki and Grouseman who have taken on such huge jobs trying to help the ones they love. Especially to those friends and family doing research...
by dianne052506
Fri Jun 06, 2014 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8th birthday today
Replies: 3
Views: 734

Re: 8th birthday today

Helen, Congratulations on the big 08! Life is hard, it sucks at times but it is also pretty great at other times..so if the great/good times outnumber the bad then you have won. I like that one. It means I'm still winning, and I hope you are, too. Go do something wonderful for yourself today. Best w...
by dianne052506
Fri Jun 06, 2014 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anything help with the coughing?
Replies: 10
Views: 1903

Re: Does anything help with the coughing?

I'm dealing with lung mets too and steroid treatments too, so I know about the cough as well as the hoarseness. I've just about given up trying to talk on the phone because it's so annoying having to repeat myself when I can't hardly talk anyway. I take a cough medicine that has both hydrocodone and...
by dianne052506
Wed Jun 04, 2014 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA ResultsI
Replies: 3
Views: 805

Re: CEA ResultsI

So happy for your good news. Thanks for taking the time to share.
Dianne
by dianne052506
Wed Jun 04, 2014 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 【➽】 Immunotherapy: Trial Finder & NEWS
Replies: 79
Views: 18980

Re: 【➽】 Immunotherapies Trial Finder for CRC

Don't have enough white to wear it all month (if I could quit losing and gaining weight on a regular basis, it wouldn't be as complicated to find clothes!), but I will be sure to wear it this Friday when I go to see my oncologist. He will be very impressed. He is already impressed with you, Maia. di...
by dianne052506
Sat May 31, 2014 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Balancing Between ‘Rational’ and ‘Rationed’ Care
Replies: 9
Views: 996

Re: Balancing Between ‘Rational’ and ‘Rationed’ Care

There are few things I've read that are as scary as this (about cost control, not about Vicki in the parking lot).

Vicki, when you meet the so-and-so in the parking lot, we'll be right there with you.
Dianne
by dianne052506
Fri May 30, 2014 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wow - Results!!!!!
Replies: 7
Views: 1250

Re: Wow - Results!!!!!

I'm not a vengeful person, but that nurse needs to have a serious come-to-Jesus meeting. What she did to you was wrong on so many levels. I know you've got a lot on your plate now, and there are so many other things more important, but I hope you get the chance to talk to her and the surgeon togethe...
by dianne052506
Wed May 28, 2014 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long term survivor
Replies: 13
Views: 2921

Re: Long term survivor

I have just tried 15 days on fentanyl patches, I left the last patch on to help wean me off it. Another nasty drug. Ron, Why do you say fentanyl is nasty? I've just started using fentanyl patches. Today is the 12th day in a row with them. They worked fine for the first few, then I did something tha...
by dianne052506
Tue May 27, 2014 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please no more miracle cure talks
Replies: 30
Views: 3388

Re: Please no more miracle cure talks

Over seven years ago, when I was in the early days of my first line of chemo treatment, someone I used to work with --and thought highly of at the time -- sent me an email that the cure for cancer is already known and that the "government and big pharma" were keeping it from the general pu...
by dianne052506
Tue May 27, 2014 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to this group !
Replies: 4
Views: 936

Re: New to this group !

Connie, In my experience, diarrhea is very common with irinotecan (the big gun ingredient in FOLFIRI). The chemo nurses have a special dosage of immodium they recommend that it totally different from what is on the box. They can also prescribe lomotil. Immodium always seems to work too well for me, ...
by dianne052506
Tue May 27, 2014 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DCVax-Direct: First Case Study Announced
Replies: 18
Views: 4617

Re: DCVax-Direct: First Case Study Announced

My last treatment with the PD-L1 drug was in Feb of this year. Guess I need to hang on while!
Dianne
by dianne052506
Tue May 27, 2014 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DCVax-Direct: First Case Study Announced
Replies: 18
Views: 4617

Re: DCVax-Direct: First Case Study Announced

Maia, I am highly needle-phobic. Can't stand to look at one. I had a needle biopsy on one breast years ago that was just a cyst, but haven't needed anything since then. I'm not sure I could describe the location of the various lung nodules I have, but I would think at least some of them would be dif...

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