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by jdepp
Sat May 26, 2018 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgeon has me feeling horrible
Replies: 24
Views: 1577

Re: Surgeon has me feeling horrible

I was dx in 2008 with 12+ liver tumors across my liver -- totally inoperable. Chemo shrunk things down & I had liver surgery in 2009. There's no sense in assuming chemo won't work. Good luck & hang in there.
by jdepp
Fri Dec 15, 2017 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 595
Views: 107380

Re: TIL Immunotherapy at NCI

Great news! Happy holidays to you!
by jdepp
Wed Nov 15, 2017 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 4183

Re: Tom marsilje

From the time of his diagnosis until his death, he must have done more for other cancer patients than anyone. His absence will be deeply felt by those of us who knew him, as well those who didn't have our good fortune. http://www.philly.com/philly/health/tom-marsilje-colon-cancer-researcher-patient-...
by jdepp
Fri Oct 20, 2017 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: From cancer and a blog to a book
Replies: 13
Views: 2540

Re: From cancer and a blog to a book

Julie,

Congratulations! You are required reading for people going through stage 4 with kids. I hope you have a lot more writing in you before this book comes out! /jdepp
by jdepp
Sat Sep 23, 2017 10:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Chemo Lifers? Incurable Stage 4
Replies: 17
Views: 2850

Re: Any Chemo Lifers? Incurable Stage 4

Hi Nikmakmom, I'm in the same boat. I've been on chemo or clinical trials for 8 of the last nine years (I had one year of NED). My personal approach is to find a level of treatment that is physically & psychologically tolerable. Sometimes that's high, sometimes it's low, but I always want to be ...
by jdepp
Mon Sep 18, 2017 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Britanny Maynard
Replies: 126
Views: 12303

Re: Britanny Maynard

For those who followed the discussion surrounding Brittany Maynard and the aid-in-dying legislation in California, here are a couple of updates: Maynard's husband gives an interview: http://www.coloradoindependent.com/161452/brittany-maynard-colorado-aid-in-dying TIME reports that since the law took...
by jdepp
Thu Sep 14, 2017 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 595
Views: 107380

Re: TIL Immunotherapy at NCI

Fabulous news! Keep on keepin' on!
by jdepp
Mon Jul 24, 2017 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 117
Views: 25211

Re: BrownBagger ....... I don't know what to say

BB was a mainstay of the Colon Club and an inspiration to many. I hope his final days were peaceful.

His family and many friends have a lot of cherished memories to help them through.

Condolences to all of us who knew him.
by jdepp
Tue Jun 27, 2017 7:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got post-surgery results and they aren't good
Replies: 59
Views: 12445

Re: Just got post-surgery results and they aren't good

I read this the same way as Tdubz. I think the oncologist means Xeloda + oxaliplatin is more effective & cytotoxic than just Xeloda. I agree. Incidentally, I've had many rounds of oxaliplatin. After an initial presentation with liver mets and 19 infected lymph nodes, six rounds of it helped get ...
by jdepp
Thu Jun 15, 2017 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 595
Views: 107380

Re: TIL Immunotherapy at NCI

I had a scan and met with my doctors today. Progression everywhere, so I'm now off the trial. Best wishes to DAS43 and everyone. /jdepp
by jdepp
Sat Jun 10, 2017 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Message of hope from a wiley crc veteran
Replies: 32
Views: 3388

Re: Message of hope from a wiley crc veteran

Rob, Thanks for checking in! You've done amazingly well & are benefiting from bold treatment decisions. I remember when you had to talk the Pittsburgh crew into letting you a clinical trial to attack your lung mets. That was a gutsy move & it paid off (incredibly). Keep up the good work &...
by jdepp
Tue Jun 06, 2017 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blockage
Replies: 89
Views: 13919

Re: Blockage

Wishing you strong thoughts and great memories of Mrs. Grouseman.
by jdepp
Thu Jun 01, 2017 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 595
Views: 107380

Re: TIL Immunotherapy at NCI

Wow, great news that the TIL are working so well! May they continue until they wipe out your cancer!

:)
by jdepp
Wed May 24, 2017 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 595
Views: 107380

Re: TIL Immunotherapy at NCI

DAS43,

I don't know why they're giving you another MRI. I had two, but that was all. Good luck next Wednesday.
by jdepp
Tue May 23, 2017 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 595
Views: 107380

Re: TIL Immunotherapy at NCI

I'm on my way back from Bethesda after an NIH TIL trial follow up. The first scan wasn't very good, so I expected to be dropped from the trial today, but the second scan was mixed: some lesions slightly larger, some slightly smaller, so I may be getting some benefit after all. I'm scheduled to rinse...

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