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by kurosan808
Wed Sep 02, 2020 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One Year
Replies: 10
Views: 2655

Re: One Year

Update: Seems like I have Proctitis (from the symptoms and the doctors told me that's the case) It is more of nuisance than anything and has kept my chemo on hold. The fact that what happens after the scan in three weeks will determine my fate, he wants me back on Keytruda which was fine but other ...
by kurosan808
Tue Aug 11, 2020 5:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One Year
Replies: 10
Views: 2655

Re: One Year

Update: Seems like I have Proctitis (from the symptoms and the doctors told me that's the case) It is more of nuisance than anything and has kept my chemo on hold. The fact that what happens after the scan in three weeks will determine my fate, he wants me back on Keytruda which was fine but other o...
by kurosan808
Thu Jul 30, 2020 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One Year
Replies: 10
Views: 2655

Re: One Year

As a stage 3 patient, this really isn’t an area where I feel confident that I’m going to be helpful, so please forgive me for venturing a limited observation (that may or may not be relevant). My extensive reading on issues I saw as relevant to me has given me this “side” impression of situations l...
by kurosan808
Tue Jul 28, 2020 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One Year
Replies: 10
Views: 2655

Re: One Year

Hi , Big welcome from me too. Sounds a good time to get more informed . We found it very helpful to get surgical opinions directly not just from the oncologist to see if there was more than one approach to containing the disease. You can read my signature to see the clinical pathway my mum went alo...
by kurosan808
Tue Jul 28, 2020 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One Year
Replies: 10
Views: 2655

Re: One Year

It is not acceptable, IMHO, to have a doctor whose office does not respond to you in a reasonable time. I would try to find someone who practices at a cancer center with more resources. Good luck. I'm considering that however I'm a working professional and it's difficult to seek it with my tight sc...
by kurosan808
Tue Jul 28, 2020 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One Year
Replies: 10
Views: 2655

Re: One Year

I am sorry to hear of the difficulty of your situation. It appears complex, and I’m not sure I can add much, but I would say that it’s important to have a team of doctors whom (1) you trust and (2) who are communicative and responsive. It sounds like you may be having trouble with the latter at lea...
by kurosan808
Mon Jul 27, 2020 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One Year
Replies: 10
Views: 2655

One Year

I was recommended to come here with my concerns and I'm not sure where to start but here I go. I was diagnosed one year ago with rectal cancer, it has spread to my liver and lungs (stage 4) I started FOLFOX on August 2019 and ended in January 2020. I went on to FOLFIRI from March until now. I had to...

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