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by I_will_fight
Mon Feb 22, 2021 2:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's come back - :(
Replies: 36
Views: 7725

Re: It's come back - :(

Hi, it’s going ok. I’m just getting over my round 3 infusion. It’s really knocked me this time. The nausea and fatigue are relentless this time round, but I’m now day 6 so hopefully will start turning the corner. I had my planning scan for my radiation/chemo on Friday so it looks like I’ll be start...
by I_will_fight
Sun Feb 14, 2021 1:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For anyone about to undergo surgery: a few articles on Complete Mesocolic Excision
Replies: 0
Views: 242

For anyone about to undergo surgery: a few articles on Complete Mesocolic Excision

Hi all, Not sure how relevant this is for those that have already been operated, but hopefully it is useful for those that might be operated soon. I have read a few articles on Complete Mesocolic Excision (CME) for colon cancer. This is becoming standard, but apparently it is not applied everywhere....
by I_will_fight
Sun Feb 14, 2021 12:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 35
Views: 8072

Re: 10 Years and Counting

Hi Skifletch, For newcomers like me, It is inspiring to read your story. Also to see all the answers from so many other oldtimers is a very encouraging thing! Am I the only one frantically scanning the signatures and getting a little bit reassured and a little bit more hopeful every time someone's s...
by I_will_fight
Wed Feb 10, 2021 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right verses left colon cancer symptoms
Replies: 4
Views: 558

Re: Right verses left colon cancer symptoms

Hi Jay, and welcome. I am not medically trained but I think, given the symptomps you are reporting, you should have a complete colonoscopy performed on you. It is a painless and mostly risk-free procedure, the main inconvenience is drinking the preparation and avoiding specific foods a day or two be...
by I_will_fight
Tue Feb 09, 2021 11:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried - lesion in liver which is not hemangioma
Replies: 6
Views: 662

Re: Worried - lesion in liver which is not hemangioma

I agree with Stu, and would stress that your doctors’ perspective is crucial here. As you likely are aware, a very low percentage of TSTC liver lesions are mets, and even lesions classed as “suspicious” TSTC lesions are only mets around a quarter of the time (according to one large study I’ve seen)...
by I_will_fight
Tue Feb 09, 2021 11:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried - lesion in liver which is not hemangioma
Replies: 6
Views: 662

Re: Worried - lesion in liver which is not hemangioma

Hi , If I am reading this correctly you have been on chemo between the two scans ? The positive is that has stayed the same , exactly the same and absolutely nothing else has shown up . So I think that is incredibly positive . I take it they are thinking of removing it ? Keep the positives at the f...
by I_will_fight
Mon Feb 08, 2021 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried - lesion in liver which is not hemangioma
Replies: 6
Views: 662

Worried - lesion in liver which is not hemangioma

Hi all, To say I am scared would be an understatement. After having undergone surgery and 4 cycles of CAPOX I had a CT scan done in mid november 2020, in this scan they found a lesion in the liver which doctors thought was an hemangioma because of the way it showed up in the CT. When they checked th...
by I_will_fight
Sun Feb 07, 2021 2:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 74
Views: 16713

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

I really appreciate the statistic from your own doctor’s cancer group. I was also staged at 3c and I interpreted what I read online to mean that only 25% of 3c patients were even alive in 5 years. Either way, I like 60% much better. When I finished Chemo, my oncologist wanted me to get my port take...
by I_will_fight
Wed Feb 03, 2021 10:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Non cancer issues on scan
Replies: 8
Views: 1802

Re: Non cancer issues on scan

Hey, congratulations on your clean CT, that is the most important thing! I also have a bit of post-surgical hernia and diastasis on the recti muscles, as a result my belly looks round and there is a small protrusion on my belly button. It is unsightly for sure but I dont think it poses a functional ...
by I_will_fight
Wed Feb 03, 2021 10:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Approaching 3 years NED Soon but CEA at 5.9 recently..
Replies: 6
Views: 1578

Re: Approaching 3 years NED Soon but CEA at 5.9 recently..

My oncologist recommends CBD/THC from my nerve pain and joint pain. Because I live in California, I’m able to get it in drops or in capsule form rather than smoking it. I’m pretty sure that isn’t causing my CEA to rise because my last result was 1.2 down from 1.5 during Chemo. I’m wondering if the ...
by I_will_fight
Mon Feb 01, 2021 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: kick'n ass cancer's ass
Replies: 7
Views: 1656

Re: kick'n ass cancer's ass

Congratulations on your 7th anniversary
by I_will_fight
Sat Jan 16, 2021 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How easy is it to differentiate between benign liver spots and small mets on a CT scan?
Replies: 8
Views: 2452

Re: How easy is it to differentiate between benign liver spots and small mets on a CT scan?

Not sure if this helps, but I am asking myself the same question: I have a 1cm nodule in my liver, the report mentioned it was more likely an hemoangioma. This is what the CAT report says: "In the periphery of liver's segment VIII a high-gain 10mm lesion in arterial-phase which becomes homogene...
by I_will_fight
Wed Dec 30, 2020 4:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 3131

Re: Oxaliplatin Dosage - Call Off

I am by no means an expert, but I can tell you my own experience: I had 4 rounds of CAPOX only, but please note that each CAPOX round delivers a higher Oxiloplatin dose than the equivalent FOLFOX (CAPOX 130 mg/kg vs. FOLFOX 85 mg/kg) I applied ice packs to my feet, hands and tonge since round 1. In ...
by I_will_fight
Thu Dec 24, 2020 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 74
Views: 16713

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

... we have a Macmillan nurse ... If your husband has a Macmillan nurse, then he could ask the nurse if she could help get a copy of the surgery pathology report for him. She might know how to navigate the NHS bureaucracy and who to ask in order to get a release of that report. The pathology report...
by I_will_fight
Thu Dec 24, 2020 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 74
Views: 16713

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

Husband has been told the the surgery was curative... The cancer is all out on the face of it. 5/21 nodes removed were affected :cry: Currently awaiting the adjuvant chemo plan which is obviously designed to kill any stray cancer cells that managed to escape. What are the chances of it coming back?...

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