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by Ron50
Wed Dec 13, 2017 6:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 398

Re: Anxiety and questions about follow up and tubular adenoma

At my last scope (three and a half years from the previous one) They removed four tubular adenomas the biggest 11 mm. They had all grown in under four years. Both my GI and my Nephrologist were happy that they were tubular adenomas. They both agreed that they are the least likely to turn. All of min...
by Ron50
Sat Dec 09, 2017 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 2140

Re: Tom marsilje

Most of Toms posts were over my head , it's probably why I never conversed with him. I wish now that I had. That is cancers signature ,we never get a second chance, hugs to his family. Ron.
by Ron50
Mon Dec 04, 2017 6:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: auto immune disorder after chemo
Replies: 8
Views: 273

Re: auto immune disorder after chemo

Since cancer and chemo I have developed a nasty range of auto- immune problems. I guess the worst is auto- immune nephrotic syndrome of the kidneys. Without treatment I lose up to 8 grams of protein a day thru my urine. I take cyclosporine twice a day and it has reduced my protein loss. I have what ...
by Ron50
Fri Dec 01, 2017 2:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oxaliplatin side effects - 9 years after treatment
Replies: 31
Views: 950

Re: oxaliplatin side effects - 9 years after treatment

I never had any of the platinum drugs. I had chemo when late stage3 was being treated with a combination of %fu enhanced aevery second week with 9 tablets of levamisole. Levamisole was in the family of drugs called immune modulators. It was banned for human use in 2001 for sometimes fatal side effec...
by Ron50
Thu Nov 30, 2017 2:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oxaliplatin side effects - 9 years after treatment
Replies: 31
Views: 950

Re: oxaliplatin side effects - 9 years after treatment

We get cancer and we receive the treatment of the day for that time. When I was receiving chemo I asked the oncologist about long term side effects. He just said wait and see, we will deal with them when they occur. Well I had my cancer removed in Jan 1998 , I also finished chemo , 48 sessions for a...
by Ron50
Wed Nov 29, 2017 6:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years cancer anniversary - NED!
Replies: 7
Views: 319

Re: 5 years cancer anniversary - NED!

Hi ab,
Congratulations on the 5 yrs, wishing you a long and ca free life. Ron.
by Ron50
Wed Nov 22, 2017 6:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update: It's just a matter of time
Replies: 12
Views: 727

Re: Update: It's just a matter of time

Hugs and peace to you both, Ron.
by Ron50
Thu Nov 16, 2017 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm honored to be here with you
Replies: 11
Views: 666

Re: I'm honored to be here with you

Hi Bag man, Congratulations on the ten years and I agree totally with your sentiments. I am also a stage 3c survivor. I have always felt that these boards are better for having a mix of the new and the old. The former for getting information and answers and the latter for experience and hope. This c...
by Ron50
Thu Oct 12, 2017 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 1003

Re: Right side pain --mets?

I have had right side pain for years after my cancer op. Most of it disappeared when they removed my gallbladder. It seems to go hand in hand with colorectal cancer and the chemo used. I had a hard time convincing doctors regarding the pain until one of the many small cholesterol stones blocked off ...
by Ron50
Thu Oct 12, 2017 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Acupuncture or dry needling for neuropathy
Replies: 11
Views: 433

Re: Acupuncture or dry needling for neuropathy

I tried dry needling, I've also tried endep,lyrica,neurontin,norspan & fentanyl patches and targin (oxycodone and naloxone) none of them helped. I did not have any of the platinum drugs as chemo just 5fu enhanced with levamisole. My neuropathy was dxed by a neurologist via nerve conductivity tes...
by Ron50
Tue Oct 03, 2017 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy Prep
Replies: 20
Views: 882

Re: Colonoscopy Prep

I think my tastebuds are getting old . I had scope number 12 in April. It was pretty easy. No problems with the prep tho it still rates low on my preferred drinks list. It was three and a half year after my previous scope and my GI expected to find nothing wrong. I suggested he have a real good look...
by Ron50
Fri Sep 29, 2017 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 years NED, stage 4
Replies: 26
Views: 1656

Re: 7 years NED, stage 4

Hi Al, Congratulations on the seven years. I'm out to twenty next January. I no longer have scans or cea tests though I asked for one this year. It came back as <than 0.5. I still have scopes on a regular basis. I had one in April . It was a little over three years since the previous one . They remo...
by Ron50
Mon Sep 18, 2017 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 38
Views: 9280

Re: I'm busted

G'day Wayne, Sounds like they are treating you fairly aggressively, I hope it is doing its job. I had a scope in April. Four polyps from 4 mm to 11mm developed in the last three years. I had to have some internal staples for the largest. No cancer but some mild displaysia in the larger ones. My type...
by Ron50
Sat Sep 09, 2017 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 379
Views: 17076

Re: NEW-Need some positivity here.

Hi Teacher, I was diagnosed at age 48. It turned out to be aggressive stage 3 into 6 nodes. I had a lot of chemo, every Tuesday for 48 weeks. What is positive about that you may ask? I was dxed in Jan 1998 . Next Jan will be the end of year 20 still cancer free. You have my best wishes for a speedy ...
by Ron50
Thu Aug 17, 2017 6:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer works on the mind
Replies: 13
Views: 1388

Re: Cancer works on the mind

Hi Volfan, I have been living in survival mode for twenty years. I was diagnosed in Jan 1998. Some of the things I have learned about cancer. It is a dreadful disease that can kill you . The most surprising thing I have learned about cancer is how people react to having it. Fear, anger ,confusion , ...

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