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by Ron50
Sun Oct 07, 2018 6:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 23
Views: 1702

Re: Robino1 has left us today at 6:40pm.

With everyone we lose we lose a little bit of ourselves. She was a special lady. Never once did I hear her complain , she was nothing but positive and supportive. Like so many here she just deserved the chance to live a full and happy life. Cancer SUCKS. Ron.
by Ron50
Fri Oct 05, 2018 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin
Replies: 6
Views: 810

Re: Aspirin

I would love to take aspirin or nsaids just for pain relief. Unfortunately I have nephrotic syndrome of the kidneys and most nephrologists don't like aspirin and nsaids , on top of that I was dxed with atrial flutter and atrial fib in Jan this year. The loss of protein associated with the kidney pro...
by Ron50
Wed Oct 03, 2018 1:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?
Replies: 4
Views: 187

Re: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?

Hi Ocstacy, I use ditiazem daily but I use it for blood pressure control and also because it allows me to use lesser doses of cyclosporine which I take for nephrotic syndrome of the kidneys. Diltiazem is licensed for treatment of hypertension and angina. It appears it is also used in a gel or ointme...
by Ron50
Mon Sep 17, 2018 6:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many different kinds of diarrhea?
Replies: 5
Views: 754

Re: How many different kinds of diarrhea?

Hi O Stoma Mia, I can vaguely recall my oncologist telling me when I first started chemo that 5fu seems to act very much like Epson salts drawing fluid from the body via osmosis and flushing out the system. I had to change the strength and frequency of my chemo to lessen the problem and I had chemo ...
by Ron50
Fri Sep 07, 2018 1:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 47
Views: 13237

Re: Bev G

It was with deep sadness that I read the news of Bev's passing. It was totally unexpected for me. I know she has been suffering some strange and difficult to diagnose problems in the past twelve months. I don't think it was cancer related directly but may have stemmed from some long term side effect...
by Ron50
Sat Aug 18, 2018 7:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It’s my 20th anniversary today :) (stage 4)
Replies: 9
Views: 1090

Re: It’s my 20th anniversary today :) (stage 4)

Congratulations on making the twenty years, I know how hard it is. I was stage3c into 6 nodes. I made it to twenty in Jan this year. I still have regular checks , $ polyps up to 11 mm last scope. Wishing you continued good health, cheers Ron.
by Ron50
Fri Aug 17, 2018 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T2 diabetes and chemo: any advice?
Replies: 4
Views: 692

Re: T2 diabetes and chemo: any advice?

I am type two diabetic. I simply refused to have anything to do with dexamethasone whilst on chemo. Unfortunately I had auto -immune problems with my kidneys some time after chemo. My neph at the time put me on high dose prednisone believing it was minimal change disease of the kidneys. That ramped ...
by Ron50
Sat Aug 11, 2018 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: survivor since 1991
Replies: 19
Views: 5982

Re: survivor since 1991

Hi Bomberbob, Congratulations on your survival. I understand your sentiments completely. Sometimes the medical profession forget that once you have had cancer you are in the zone and will always be at risk of developing new ones. I had to fight to have my last colonoscopy performed. The board at the...
by Ron50
Mon Jul 23, 2018 1:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 14 year cancerversary to me
Replies: 19
Views: 5458

Re: Happy 14 year cancerversary to me

Happy anniversary and big hugs from Ron.
by Ron50
Tue Jul 10, 2018 4:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 27
Views: 7998

Re: what happens after chemo?

Hi Caat55, At the end of my chemo( 48 sessions over a year) my onc did one last scope and scan then handed me back to the surgeon. He did not expect me to survive beyond three years and he continued cea and scans every 6 months for nearly seven years before he finally declared I was cured of that ca...
by Ron50
Mon Jun 25, 2018 1:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right Side vs Left Side
Replies: 11
Views: 961

Re: Right Side vs Left Side

The results of my first scan stated that I had a right side hemicolectomy. I pointed it out to my surgeon and he nearly wet himself. It appears that the technician was looking at the scans and decided if the missing portion of colon was on his right hand it must be a right hemi. I assume my surgeon ...
by Ron50
Mon Jun 11, 2018 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 12th cancer birthday on june 6
Replies: 7
Views: 805

Re: 12th cancer birthday on june 6

Congratulations Helen on the twelve years and commiserations on what it has cost you to get that far. Surviving survival is not easy, Hugs Ron.
by Ron50
Fri May 11, 2018 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?
Replies: 6
Views: 475

Re: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?

I know of several people who had gallbladder issues following crc and subsequent chemo. I was a few years past chemo (5fu and levamisole) I went to ER with severe upper abdominal pain. I had a diseased gall bladder and a small gallstone had blocked off my pancreatic duct. I had my gall bladder remov...
by Ron50
Thu May 10, 2018 2:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ten years and I missed it!
Replies: 17
Views: 4125

Re: Ten years and I missed it!

G'day Dori, Good to see you still going. Survival is not always easy but for some of us it just happens. I remember when you came on board and you always wonder when you haven't seen someone for a while . I am really glad you got to see your little boy grow up. I reached 20 years in Jan. It seems li...
by Ron50
Fri May 04, 2018 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 737
Views: 235395

Re: For Stage III's: NED for how long now?

Congratulations Dori W. I'm glad to hear that you are getting some quality life. I'm out past 20 years (stage 3c) I know that surviving survival is not always easy but some of us manage to slip through the cracks so continue to make the best of it, Hugs ron.

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