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by Ron50
Mon Jun 11, 2018 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 12th cancer birthday on june 6
Replies: 5
Views: 247

Re: 12th cancer birthday on june 6

Congratulations Helen on the twelve years and commiserations on what it has cost you to get that far. Surviving survival is not easy, Hugs Ron.
by Ron50
Fri May 11, 2018 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?
Replies: 6
Views: 290

Re: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?

I know of several people who had gallbladder issues following crc and subsequent chemo. I was a few years past chemo (5fu and levamisole) I went to ER with severe upper abdominal pain. I had a diseased gall bladder and a small gallstone had blocked off my pancreatic duct. I had my gall bladder remov...
by Ron50
Thu May 10, 2018 2:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ten years and I missed it!
Replies: 17
Views: 1107

Re: Ten years and I missed it!

G'day Dori, Good to see you still going. Survival is not always easy but for some of us it just happens. I remember when you came on board and you always wonder when you haven't seen someone for a while . I am really glad you got to see your little boy grow up. I reached 20 years in Jan. It seems li...
by Ron50
Fri May 04, 2018 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 730
Views: 176278

Re: For Stage III's: NED for how long now?

Congratulations Dori W. I'm glad to hear that you are getting some quality life. I'm out past 20 years (stage 3c) I know that surviving survival is not always easy but some of us manage to slip through the cracks so continue to make the best of it, Hugs ron.
by Ron50
Fri Apr 20, 2018 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating another year
Replies: 5
Views: 794

Re: Celebrating another year

Congratulations Terry, My anniversary was in Jan, 20yrs clear of stage 3 into six nodes . Surgery and a year of chemo. Some of us do survive. All the best Ron.
by Ron50
Wed Apr 18, 2018 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 31 year old male, 1.5 cm tubular adenoma
Replies: 6
Views: 603

Re: 31 year old male, 1.5 cm tubular adenoma

Hi JGU1986, I'm glad you were aware of your problems and sought help early. You were fortunate in one respect that you had a tubular adenoma as the general view from GI's is that they are the least likely of the polyps to turn cancerous BUT given enough time they will. I am 20 years past stage 3 col...
by Ron50
Fri Apr 13, 2018 7:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SO FRUSTRATED! - I hate these 'mega' medical groups
Replies: 12
Views: 1121

Re: SO FRUSTRATED! - I hate these 'mega' medical groups

Hi Soccermom, Seems to be a world wide problem . I was scheduled for a three yearly scope for my last one. I was out to three years and six months before I had it. . The GI was rather short with me . He could not understand why I was so concerned given that I had survived nearly twenty years without...
by Ron50
Thu Mar 29, 2018 8:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tubular Adenoma Polyp found during colonoscopy - 27 years old
Replies: 7
Views: 1169

Re: Tubular Adenoma Polyp found during colonoscopy - 27 years old

High Sunny, During my last scope they found four tubular adenomas. The biggest was 11 mm It took three of four internal staples to stop the bleeding when they removed it . My GI and nephrologist both agreed if you are going to get polyps , tubular adenomas are the least likely to have anything nasty...
by Ron50
Tue Mar 27, 2018 1:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 730
Views: 176278

Re: For Stage III's: NED for how long now?

Hugs to you both, well done . Ron.
by Ron50
Sun Mar 25, 2018 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1063

Re: Erythema ab igne

Hi Steph, for years I wondered about a condition I had been experiencing. Most of the time the palms of my hands are red. I have asked a lot of doctors but none were able , or willing to enlighten me. In recent times my nephrologist has come to believe that I am suffering from auto-immune hepatitis....
by Ron50
Wed Mar 21, 2018 7:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 46
Views: 13869

Re: I'm busted

Mate remission from any form of lung cancer is incredible. Congratulations. Stay well Ron.
by Ron50
Mon Mar 19, 2018 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coming up 7 years where has time gone
Replies: 9
Views: 1028

Re: Coming up 7 years where has time gone

Hugs Victoria, congratulations to you and Jim and your family , sometimes we do survive. Ron.
by Ron50
Mon Mar 12, 2018 7:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are followup colonoscopies counted as preventative?
Replies: 5
Views: 674

Re: Are followup colonoscopies counted as preventative?

I am in Australia so none of the same rules apply. But if you are asking if they are preventative only the health system would be under the illusion that they aren't. Colonoscopies are rarely for looking for recurrence. That is why we have scans. Polyps are the main target. I have had around a dozen...
by Ron50
Sat Mar 03, 2018 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alcohol use since diagnosis
Replies: 28
Views: 3192

Re: Alcohol use since diagnosis

I had cancer over twenty years ago. That is when I stopped drinking. Ron.
by Ron50
Fri Feb 23, 2018 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to you do to keep up your strength?
Replies: 11
Views: 1025

Re: What to you do to keep up your strength?

G'day Debb, I will start at the end. I had 48 bags of 5Fu via canula and over 200 tablets of levamisole. At the end of it all my oncologist sat down with me and said I have never had that happen before , I said what? He said in the whole 48 weeks your blood counts never wavered ,they remained totall...

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