Thank you, Rp for support and believing in me that it was possible to stir down the road less taken. Yes, one met was there at dx but just sitting there at 3-4mm but was told its nothing at this point and "could" be debris (inhaled) or scar tissue. Mhmmm, then 3 1/2 yrslater it ws still th...

Pagola, expanded blood panels show it long before a scan will. Skimom, thank you for all the support. I am so happy you have extra support and searching for things to help like the histotripsy (its also in my back pocket just in case). Its always good to plan ahead for different scenarios that could...

In August it will be 5 yrs since dx. SOC was barbaric mentally and physically to me. I have no regrets making a detour from SOC. Having mets show up eventaully 3 1/2 into this fight was no surprise. I still have cancer floating around somewhere, no definitive on where yet. CEA sits at 7.0. I feel gr...

Zephyr, I can't thank you enough for sending me in the right direction to help deal with inflammation and sPTSD. The yoga instructure and I talked about the vegus nerve stimulation, fascia and the impact on nervous system and balance is where I need to begin, mediatation, then when she mentioned ada...

Aside from booted out to an outhouse, psyllium husk provides healthy fiber. Chlorofresh could possibily help with order as it promotes good gut flora.

Thank you so much,zephyr! I looked into yoga after your post and will start in 1 week (still dealing with a crushed hand, smh).
I will ask my IVC doc about quercetin IV. I do take it orally.

ctDNA is neg again. Waiting on labs to be posted. Still can not find source of inflammation. I read and watched youtube videos about the vagus nerve if dysfunctional can cause chronic inflammtion. Digging deeper into this theory. Frustrated with the "don't know why." I have severe PTSD but...

My surgeon was Dr. Kern. He was fantastic, very experienced and knowledgable surgeon. His bedside manner is second to none. He has the longest white coat of any specialist I have ever seen.
I met all of them and I would request Dr. Kern if I had to go back.

My surgeon was Dr. Kern. He was fantastic, very experienced and knowledgable surgeon. His bedside manner is second to none. He has the longest white coat of any specialist I have ever seen.
I met all of them and I would request Dr. Kern if I had to go back.

One of my mets confirmed was described as ground glass opacity. So, after lung surgeon consults here in the USA blew me off in favor of chemo "to see what happens" I contacted The Lung Hospital in Coswig Germany and was a candidate for Rolles Laser lung surgery. 3 of 4 small "spots&qu...

Hey R_R! Wow, you are in this trial.
I read about a virus that can kill cancer a few months back. I was impressed by it and seemed out of this world how they found this potential cancer killer virus.
Will be keeping an eye for more of your updates!
All the best,
B

Are you in the USA? If so, I can give you a contact for a stem cell doctor, expert in this field. He has patients come to him from all over the USA. He might could give you some advice/guidance being a cancer patient NED.

Claudine, thank you for your reply! Much appreciated.
Please let me know if you get a letter.
Our health care system is clown world absurd!!!

Thank you for your thoughts on this, Rp. Much appreciated. I see sinister things fixing to happen within the next year mostly likely due to increasing profit over patient scenarios. Hands swiping hands.
BCBS also sent thr letter to my onc so our appt will be interesting.

My small one at dx showed up but not lit up. I have PET/CT scan every year. They didn't light up until the 3rd one, 3 1/2 yrs later. And even then only the 5 mm met lit up at 1.3 SUV. Went to Germany, had all 4 taken out and 3 were mets even though just one lit up. I have 3 CT scan per yr (3 month s...