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by beach sunrise
Thu Sep 24, 2020 10:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally consults in the works
Replies: 5
Views: 469

Re: Finally consults in the works

Hi Vana, it was a good consult overall (great practice for me with future consultations). He let me know he is SOC all the way. That was disappointing. I don't want an onc stuck in the SOC regime. I need real support so on the hunt for it.
by beach sunrise
Thu Sep 24, 2020 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally consults in the works
Replies: 5
Views: 469

Re: Finally consults in the works

Takeaway from consult today was onc is not for maintenance like ADAPT or chronomodulation type. He said they are interesting in theory. On subject of immune system his thought is your immune system is what it is. I could try to build it but biologically I own it for what it is. So, not a fan of supp...
by beach sunrise
Tue Sep 22, 2020 8:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally consults in the works
Replies: 5
Views: 469

Re: Finally consults in the works

Thank you, Lee!
I'm wondering if anyone here has had a consult or is a patient of Dr. Raymond Chang (Meridian Medical Group). I have a consult with him and just wondering if anyone has any tips on how he is.
by beach sunrise
Tue Sep 22, 2020 8:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here, diagnosed with Colorectal Cancer and have a few questions
Replies: 24
Views: 1365

Re: New here, diagnosed with Colorectal Cancer and have a few questions

There has been mention on here before about having sperm frozen. Something to think about before radiation.
by beach sunrise
Mon Sep 21, 2020 9:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed in twenties
Replies: 6
Views: 388

Re: Diagnosed in twenties

Hi Henny, congrats on successful surgery. From what I have read 3A is totally beatable. And you have your age on your side. Back read CRguy and rp1954 on this forum for valuable info you won't find anywhere else. I'm cheering for you!!!
by beach sunrise
Sun Sep 20, 2020 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3803

Re: Blood clots and low oxygen and hospice OH MY

Hi Mohrfamily, the end of having your loved one here is torture. Experiencing it personally 4 times within my family I have to say being at home surrounded by the people who love you is such a peaceful way vs hospital setting. I've had my dad and my aunt pass in my living room and both my sisters pa...
by beach sunrise
Sat Sep 19, 2020 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery or no?
Replies: 10
Views: 822

Re: Surgery or no?

Best news I've had all day!!!
Congrats on working hard to get to surgery!!!
I know you have to be on cloud nine and thats a good place right now :)
by beach sunrise
Fri Sep 18, 2020 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My story
Replies: 2
Views: 419

Re: My story

Hi, you are so so young!!! That is a triple plus for you in beating this!!! Research all you can find to find doctors to help you with curative approaches and don't take NO for an answer. Keep advocating for yourself! I didn't find this sight until after neoadjuvant and surgery. I missed many opport...
by beach sunrise
Thu Sep 17, 2020 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 9
Views: 586

Re: Xeloda Avastin Maintenance Plan

Right Riki! Its not them, its us. Personally I think SOC kept their lip zipped when chemo alone wasn't working well and just keep poisoning me when I could be doing something to help the chemo work but they would never suggest anything but chemo. Be your own advocate!!!
by beach sunrise
Thu Sep 17, 2020 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 9
Views: 586

Re: Xeloda Avastin Maintenance Plan

Hi sdino, I researched the TIL trial early on when dx. It was on my list to get more info.
by beach sunrise
Thu Sep 17, 2020 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally consults in the works
Replies: 5
Views: 469

Finally consults in the works

Hi all, navigating consultations with oncologists has been like driving a spaghetti junction interchange. So confusing and hard during covid. But got two consults nailed down. So I feel like I am making progress with more discussions and information to go forward. Ya, its been a pretty good day.
by beach sunrise
Wed Sep 16, 2020 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vit D and immunotherapy
Replies: 3
Views: 503

Re: Vit D and immunotherapy

I have been researching high dose vitamin D protocol and like the sound of the benefits. I am going to bring it up for discussion to the ND. I sent him a heads up about it so we will see.
by beach sunrise
Wed Sep 16, 2020 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 40
Views: 7040

Re: Stg 4 para aortic and Iliac Lymph Nodes

Hi AT, so very happy it all went well! You are an inspiration to others for being your own advocate! I hope you feel better and better than the day before during recovery.
by beach sunrise
Wed Sep 16, 2020 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 21
Views: 1537

Re: To my CC family

Jill, your family has been heavy in my thoughts and prayers for a few days. Your husband and my son share the same birthday. I hope you are finding people and ways to help you cope right now. Please let us know how you are doing when you feel like it. In the meantime just know I am thinking of you.
by beach sunrise
Wed Sep 16, 2020 5:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 9
Views: 586

Re: Xeloda Avastin Maintenance Plan

Hi Riki, your MCV is trekking up. That's really good!!! My onc was excited mine trekked up from 90's to just over 100 and told me its a sign the chemo is working good with the dose I am on. I got to digging papers about MCV and chemo (and looking here). Research it if you get a chance. I started tak...

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