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by beach sunrise
Sat Nov 28, 2020 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The stigma of cancer
Replies: 7
Views: 304

Re: The stigma of cancer

You are so right that work is a whole different animal. Thanks for bringing that up.
No one at my work knows. With surgery I took a 4 wk vacation giving no details, then covid hit about the same time and I still work from home so that is the only plus of covid19.
by beach sunrise
Fri Nov 27, 2020 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The stigma of cancer
Replies: 7
Views: 304

Re: The stigma of cancer

Being a sister to my 2 terminally ill sisters with CF I already knew so much about how people are /will be. When I got the news of cancer I only told my immediate circle (6 people) and that still is the way it is. My oldest son doesn't even know because he has so much drama in his life and I don't n...
by beach sunrise
Thu Nov 26, 2020 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doing a 180 with oncology
Replies: 6
Views: 397

Re: Doing a 180 with oncology

Read about resveratrol, grape seed extract and boswellia to help prevent lung mets. Hot water extracted turkey tail and some other mushrooms (I take RealMushroom brand right now) Also, potent beta glucan powder (I take a beta glucan 1.3/1.6 Immunodyne by LCI found on amazon) I also take lots of othe...
by beach sunrise
Thu Nov 26, 2020 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doing a 180 with oncology
Replies: 6
Views: 397

Re: Doing a 180 with oncology

Well, with 3 independent onc consults they all agreed cimetidine was good to take. But if you back read rp1954 he gives papers about it not being so useful but not harmful if you have a low ca19-9 panel. I did take it 6wks before and 6wks after surgery, 600mg BID before and after. From what I've rea...
by beach sunrise
Wed Nov 25, 2020 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tetrathiomolybdate
Replies: 6
Views: 411

Re: Tetrathiomolybdate

That is something to consider. My liver counts have always been good throughout 1 1/2 yrs of chemo except for after round 7 folfox when they climbed to 100. I refused any more chemo and requested a scan to make sure my liver was not damaged. After a week liver panels were back to normal. One of my d...
by beach sunrise
Wed Nov 25, 2020 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tetrathiomolybdate
Replies: 6
Views: 411

Re: Tetrathiomolybdate

Yes, I am looking for any and every cancer pathway to shut it down and my copper was high in May but came down half just by culling foods and stuff. This drug will help lower it more.
by beach sunrise
Wed Nov 25, 2020 1:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 months left of life
Replies: 31
Views: 5414

Re: 3 months left of life

I am praying hard that you are having good days for special time with your lil boy and family. I like to think of yall snuggled up enjoying shows and telling stories, ect. You are always in my thoughts and I pray hard every day.
by beach sunrise
Tue Nov 24, 2020 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tetrathiomolybdate
Replies: 6
Views: 411

Re: Tetrathiomolybdate

Thank you green tea! I did read that chain while researching.
There are about 60 CRC people so far on the TM with the onc I'm under now so we will see how it works for me. I will update.
by beach sunrise
Tue Nov 24, 2020 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doing a 180 with oncology
Replies: 6
Views: 397

Re: Doing a 180 with oncology

Hi Henny,I take alot of supplements many in high doses based on bloodwork done by my ND. Are you planning on seeing an ND? For starting right now I would suggest back reading rp1954. He has valuable info posted that spans 10+yrs on here. As for xeloda, celebrex a lil bit before chemo dose every day....
by beach sunrise
Tue Nov 24, 2020 1:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: rectal pressure, blood on stool, cea
Replies: 15
Views: 496

Re: rectal pressure, blood on stool, cea

Yes, call the dr and let us know what they are going to do. Be brave if you have to go in and know its for your best health. Crazy as it sounds I was thinking when I go in I will limit my breathing by holding as long as possible between breaths, put neosporin on each nostril, wear ballcap pulled dow...
by beach sunrise
Tue Nov 24, 2020 1:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: rectal pressure, blood on stool, cea
Replies: 15
Views: 496

Re: rectal pressure, blood on stool, cea

Anything not normal is very scary and add covid on top and its borderline terrifying. I get you there!
I have 4 appts I have to go to the hospital for and I am scared.
by beach sunrise
Tue Nov 24, 2020 12:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doing a 180 with oncology
Replies: 6
Views: 397

Doing a 180 with oncology

Update on me: Trying to break up sweetly with my current onc and he's making it hard to do withholding some testing. Want to leave on a good note because might need chemo services down the road if/when I recur (the place is convenient). My surgeon will order scans and has my back there so I feel I a...
by beach sunrise
Mon Nov 23, 2020 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3B Colon Cancer - Lurking Here - Have some questions
Replies: 6
Views: 356

Re: Stage 3B Colon Cancer - Lurking Here - Have some questions

Hi, question 1 in my opinion is a BIG YES on second impressions. As CRguy says "You miss more by not looking..than not knowing." Question 2 in my opinion is it depends on if the patient wants to know CEA during treatment then he/she should request it if its a good marker for them. As for s...
by beach sunrise
Mon Nov 23, 2020 11:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Out...for now
Replies: 11
Views: 417

Re: Port Out...for now

I have asked for the last time at my cancer center so asked the surgeon and he said yes absolutely. I get very sick and tired of having to repeat myself without any action on the other side. So, screw it and move on :) I shouldn't have let it go on this long (big Sigh)...Be your own advocate!!!!

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