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by roadrunner
Sat Apr 10, 2021 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does "We" Drive Anyone Else Crazy?
Replies: 2
Views: 190

Re: Does "We" Drive Anyone Else Crazy?

Your comment about pregnancy made me smile. If I had tried to say “we’re pregnant”—even once, in a low voice, in private—when my wife was pregnant with our kids, I wouldn’t have to worry about cancer killing me. I’d be dead already :wink: On a more serious note, I do think it’s important to define a...
by roadrunner
Sun Mar 07, 2021 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin induced ototoxicity (hearing problems)
Replies: 7
Views: 843

Re: Oxaliplatin induced ototoxicity (hearing problems)

I assume you’re describing tinnitus. There’s no question that Oxaliplatin does a number on nerves—I can vouch for that every time I get up in the morning and walk across the bedroom floor (and my neuropathy is quite minor from what I have read/understand!). However, tinnitus is also a very common co...
by roadrunner
Sat Mar 06, 2021 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo/radiation - tablets or iv infusion?
Replies: 8
Views: 885

Re: Chemo/radiation - tablets or iv infusion?

Here’s the study on “switching.” I believe these folks were chemo naive, which you aren’t. Also, I in essence “switched” when I bailed out from FOLFOX into CRT/Capecitabine, and had no ill-effects. I think a took a few weeks to get the CRT together, though, in case that matters. https://fightcolorec...
by roadrunner
Sat Mar 06, 2021 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo/radiation - tablets or iv infusion?
Replies: 8
Views: 885

Re: Chemo/radiation - tablets or iv infusion?

In my view, this is a very complicated topic and decision. I would certainly ask your oncologists (both medical and radiation) why they are using infusional 5FU instead of Xeloda/Capecitabine. I do not think it’s simply because you have a port—I did 4 rounds of neoadjuvant FOLFOX thru a port, then C...
by roadrunner
Wed Feb 24, 2021 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24631

Re: Covid 19 vaccine

I am not on active chemo, but I have read extensively on this subject, and oncologists are nearly uniform in recommending the COVID-19 vaccines for cancer patients (including those on active chemo). And when I was on active chemo, my team told me to get a flu shot (I did). Efficacy of the COVID vacc...
by roadrunner
Tue Feb 23, 2021 12:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Declining WBC/ANC - post-chemo?
Replies: 3
Views: 706

Re: Declining WBC/ANC - post-chemo?

This must be frustrating. Unfortunately I don’t have any bright ideas, but I will offer one observation. The decreases in ANC certainly *appear* to suggest a trend, but they are relatively small changes overall, and there are few data points (I think you mention two downward moves). You’re also rela...
by roadrunner
Wed Feb 17, 2021 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24631

Re: Covid 19 vaccine

I received my second Pfizer shot yesterday, thought I’d follow Weissoccermom’s lead and give a report. After the first shot I had moderate arm soreness, somewhere between a flu shot and a tetanus shot. It was mostly resolved the next day, but I felt little twinges for a total of 3 days. Maybe a tiny...
by roadrunner
Wed Feb 10, 2021 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried - lesion in liver which is not hemangioma
Replies: 6
Views: 991

Re: Worried - lesion in liver which is not hemangioma

IwF: I had used this study as a reference for my comments. https://pubmed.ncbi.nlm.nih.gov/24866542/ It is, as I recall, at least fairly representative of the general literature on this topic (though of course there are lots of variations). The link you included appears to be a seminar deck, but I s...
by roadrunner
Tue Feb 09, 2021 12:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried - lesion in liver which is not hemangioma
Replies: 6
Views: 991

Re: Worried - lesion in liver which is not hemangioma

I agree with Stu, and would stress that your doctors’ perspective is crucial here. As you likely are aware, a very low percentage of TSTC liver lesions are mets, and even lesions classed as “suspicious” TSTC lesions are only mets around a quarter of the time (according to one large study I’ve seen)....
by roadrunner
Wed Jan 27, 2021 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still losing weight and hair
Replies: 28
Views: 8384

Re: Still losing weight and hair

I think it is very unlikely that you would be having shortness of breath due to COVID and have normal blood tests and a normal chest x-ray, as well. I hope you get this sorted soon!
by roadrunner
Wed Jan 20, 2021 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel issues worried about colon cancer?
Replies: 9
Views: 2316

Re: Bowel issues worried about colon cancer?

I agree with others that you should get this checked out. But I would not worry about it at all. Hemorrhoids are very common in general, and even more so in your specific situation (postpartum). Colorectal cancer at your age is very, very rare. Also, you may get some resistance to a request for a co...
by roadrunner
Wed Jan 13, 2021 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24631

Re: Covid 19 vaccine

Sonofafighter: This may or may not matter to you, but I just saw a news report in US media that Sinopharm results showed only 50% effectiveness in Brazil, much lower than reported initially. Again, I don’t know how credible this is, or whether it even matters to you, but just thought I’d pass it alo...
by roadrunner
Thu Jan 07, 2021 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24631

Re: Covid 19 vaccine

Immunocompromised people were excluded from the trials. That said, there is a very long history of vaccine use in immunocompromised individuals. Live, attenuated vaccines have in some cases caused problems for immunocompromised recipients, but not “killed” or inactivated vaccines, like the adenoviru...
by roadrunner
Tue Jan 05, 2021 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24631

Re: Covid 19 vaccine

Stu: Saw an interesting report this morning that intersects with our discussion above. The US FDA disagrees with the UK approach on the grounds that it is not supported by the trial data—not that it won’t work, just that there was not sufficient evidence that it would—and noted that most of the Mode...
by roadrunner
Mon Jan 04, 2021 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still losing weight and hair
Replies: 28
Views: 8384

Re: Still losing weight and hair

I usually post what I see as useful information, not expressions of emotion or empathy (quintessential male, my wife would say!), but I really feel for you right now, and since I have nothing useful to add, I just want to wish you the best for understanding what’s going on and getting better! Good l...

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