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by roadrunner
Tue Mar 26, 2024 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice for next steps
Replies: 10
Views: 1307

Re: Need advice for next steps

You included in your new post what looks like material new information. You say you have two mets in your right lung (seemingly RUL and RLL) that “are stable and might begin growing again.” I have to assume this is a mistake, because if these are known metastases, I believe the treatment plans you’r...
by roadrunner
Mon Mar 25, 2024 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: osteoarthrosis - platelet rich plasma and stem cell implant for oncologic patients?
Replies: 2
Views: 126

Re: osteoarthrosis - platelet rich plasma and stem cell implant for oncologic patients?

One thing worth considering, in case you’re not aware. I’m wildly under-qualified to judge the importance of this factoid in this context, but platelets are believed to have a central role in facilitating metastasis. Your signature suggests that your may have confidence that a recurrence is very unl...
by roadrunner
Sat Mar 23, 2024 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met
Replies: 17
Views: 587

Re: Lung met

This sounds like a malignant pleural effusion.
by roadrunner
Fri Mar 22, 2024 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met
Replies: 17
Views: 587

Re: Lung met

[deleted duplicate]
by roadrunner
Fri Mar 22, 2024 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met
Replies: 17
Views: 587

Re: Lung met

You haven’t provided enough information. A “ground glass opacity” or “GGO” is a radiological finding—basically just a semi-transparent area in the lung through which structures can be visualized. It is commonly malignant in lung cancer. I’m not familiar with CRC metastases presenting as GGOs, but I ...
by roadrunner
Fri Mar 22, 2024 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodules and genetic testing
Replies: 10
Views: 315

Re: Lung nodules and genetic testing

Pagola44: You got good responses from great posters here, but in my view the picture being painted is unduly negative. Background facts are vital: First, when you get a radiological finding like this you need to understand the context: Yes, benign pulmonary nodules are very common, even arguably ubi...
by roadrunner
Wed Mar 20, 2024 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met
Replies: 17
Views: 587

Re: Lung met

Alright, I understand now. This is very unfortunate. It certainly sounds as though her doctors are operating with very outdated ideas and models. There are many, many people on this forum who are long-term survivors of pulmonary metastases. The fact that your friend also had a liver met complicates ...
by roadrunner
Wed Mar 20, 2024 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met
Replies: 17
Views: 587

Re: Lung met

What does “end of the road” mean?
by roadrunner
Sat Mar 16, 2024 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member - Looking for Some Reassurane
Replies: 5
Views: 466

Re: New Member - Looking for Some Reassurane

Surgery leaves scars. It would be surprising if you did not have some residual change in sensation at the surgical site. I have had many surgeries, and each has left such symptoms behind. Here, you have reported zero factors indicating persistent disease in a background context of low risk. Unless y...
by roadrunner
Wed Mar 13, 2024 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pet scan
Replies: 10
Views: 969

Re: Pet scan

Should’ve added: I have seen other stories of long-term survival with CRC bone metastases. And that’s not just about “quality time”— therapeutic technology is moving very fast at present, faster than pharmaceutical development (though even there developments appear to be accelerating, and may well d...
by roadrunner
Tue Mar 12, 2024 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pet scan
Replies: 10
Views: 969

Re: Pet scan

Mark: I don’t know too much about this area, but I recall that Claudine from this forum has been down this road with her husband, and while I’m not sure they achieved remission of his bone met, I believe it’s been controlled locally for a number of years. You may want to reach out to her to see if s...
by roadrunner
Thu Mar 07, 2024 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Histotripsy
Replies: 11
Views: 1604

Re: Histotripsy

Sounds good! As far as the immune system goes, it’s def good to be female. Us men weren’t built to last like you are!
by roadrunner
Thu Mar 07, 2024 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Histotripsy
Replies: 11
Views: 1604

Re: Histotripsy

Well, the checkpoint inhibitor wouldn’t likely matter to you anyway, since you are KRAS. I assume you know this, but the success of this kind of therapy, at least when it comes to the potential abscopal effect, is optimized when your immune function is good. IMO that doesn’t necessarily mean “supple...
by roadrunner
Thu Mar 07, 2024 1:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Histotripsy
Replies: 11
Views: 1604

Re: Histotripsy

Skimom: This approach looks very interesting. As I am sure you know, it’s shown very good results in terms of local control but seems to have significantly enhanced abscopal effects as well, at least according to some studies. Are they using a checkpoint inhibitor with it? This looks really promisin...
by roadrunner
Mon Jan 22, 2024 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 40
Views: 4199

Re: New guy with old questions.

Sleeping with a pump is not an issue. Put it in a safe place with the line clear. Back sleeping is better, but side sleeping is fine—the lines can be adjusted to give you slack. Don’t do vigorous gymnastics whilst in bed. Even if something happens it will just beep, then you’ll go in and get it fixed.

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