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by roadrunner
Sun Sep 27, 2020 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 1 to Stage 4
Replies: 4
Views: 366

Re: Stage 1 to Stage 4

My knowledge of Stage 4 issues is limited, but I think you can be reassured that you are addressing your concern about “something being missed” through the FOLFOX chemo. It is a systemic therapy that is designed to address cancer wherever it is, and particularly micrometastases. While it’s true that...
by roadrunner
Tue Sep 22, 2020 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here, diagnosed with Colorectal Cancer and have a few questions
Replies: 28
Views: 1838

Re: New here, diagnosed with Colorectal Cancer and have a few questions

Your situation is similar to mine. I would ask about (or at least research) TNT (Total Neoadjuvant Therapy). I have not heard of doing radiation, chemo, then surgery, but perhaps it is a form of TNT. TNT is a newer strategy. The older one was chemorad then surgery, then adjuvant chemo. With TNT, you...
by roadrunner
Mon Sep 21, 2020 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here, diagnosed with Colorectal Cancer and have a few questions
Replies: 28
Views: 1838

Re: New here, diagnosed with Colorectal Cancer and have a few questions

Prayingforccr: I totally respect your absolute right to follow your own road, but since I understand this is a difficult situation, I will offer two thoughts. First — for context, I’m also doing some extra stuff for a chance of “watch and wait.” I had a “near CCR” after 4 rounds of chemo and chemora...
by roadrunner
Sat Sep 12, 2020 1:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here, diagnosed with Colorectal Cancer and have a few questions
Replies: 28
Views: 1838

Re: New here, diagnosed with Colorectal Cancer and have a few questions

Sorry, should have added — the chemoradiation-then-surgery course (not TNT) is often followed by more chemo (adjuvant chemo).
by roadrunner
Fri Sep 11, 2020 11:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here, diagnosed with Colorectal Cancer and have a few questions
Replies: 28
Views: 1838

Re: New here, diagnosed with Colorectal Cancer and have a few questions

Some general background that may be of use to you: There are a lot of things to figure out, but there’s time; I was told “nothing will happen for 10 weeks” — these are indeed slow growing, and while risk of metastasis is never zero, you generally have time to assess, pick doctors, etc. With respect ...
by roadrunner
Fri Sep 11, 2020 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 4
Views: 469

Re: New here

Sorry, one more thing: You said this was about your girlfriend. In my view it is very important to approach questions like this with deference to *her* approach, preference, and interest. You certainly have a crucial role and vested interest, but let her be your guide in determining what to question...
by roadrunner
Fri Sep 11, 2020 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 4
Views: 469

Re: New here

This is a very high-level response, but in my view those broad survival percentages are not generally helpful. There are many reasons: (1) They are based on old stats, and care is improving all the time; (2) as I think you’ve realized, the variables are numerous — examples are CEA and other markers,...
by roadrunner
Tue Sep 08, 2020 12:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancerous Polyp-Confused
Replies: 3
Views: 541

Re: Cancerous Polyp-Confused

If there are cancer cells, it’s cancer. But what you describe, cancer cells contained in a polyp (in the mucosa of the colon), is stage 0 cancer, which means the treatment will likely be simple removal of the polyp, and that’s that. If testing shows that cancer invaded the submucosa, that would be s...
by roadrunner
Sun Aug 09, 2020 3:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not tolerating Xeloda. Are there any options?
Replies: 15
Views: 2441

Re: Not tolerating Xeloda. Are there any options?

It sounds like your oncologist is considering options; I hope he or she comes up with something that allows you to get the treatment you need without too much more difficulty. It may be worth considering how many cycles you’ve completed — the numbers aren’t magic, some require 12 cycles, some 8, and...
by roadrunner
Thu Aug 06, 2020 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not tolerating Xeloda. Are there any options?
Replies: 15
Views: 2441

Re: Not tolerating Xeloda. Are there any options?

I’m sorry you’re having those challenges, sounds super tough. It sounds like you’re doing CAPOX. I wonder if the following are relevant questions (in no particular order): (1) Why did they pick CAPOX as opposed to FOLFOX (I’ve read that CAPOX is tougher on you)? Xeloda is of course oral, so perhaps ...
by roadrunner
Thu Aug 06, 2020 1:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: colonoscopy without anesthesia
Replies: 6
Views: 679

Re: colonoscopy without anesthesia

I did one with no anesthesia whatsoever and it was totally fine — better than many routine dental appointments (Well, other than the large rectal tumor she found right at the start — that doesn’t usually happen at the dentist!). I understand that it can be more uncomfortable for a small woman (I’m m...
by roadrunner
Tue Jul 28, 2020 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One Year
Replies: 10
Views: 1768

Re: One Year

As a stage 3 patient, this really isn’t an area where I feel confident that I’m going to be helpful, so please forgive me for venturing a limited observation (that may or may not be relevant). My extensive reading on issues I saw as relevant to me has given me this “side” impression of situations li...
by roadrunner
Tue Jul 28, 2020 4:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have just been diagnosed with colon cancer
Replies: 11
Views: 998

Re: I have just been diagnosed with colon cancer

IMO Stu’s point is very important. Various chemotherapy regimes have been successful in eradicating or reducing liver metastasis in CRC. The HAI pump can also work, but these are questions to discuss with your oncologist.
by roadrunner
Tue Jul 28, 2020 11:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One Year
Replies: 10
Views: 1768

Re: One Year

I am sorry to hear of the difficulty of your situation. It appears complex, and I’m not sure I can add much, but I would say that it’s important to have a team of doctors whom (1) you trust and (2) who are communicative and responsive. It sounds like you may be having trouble with the latter at leas...
by roadrunner
Tue Jul 28, 2020 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can I get some comparison for my sanity?
Replies: 3
Views: 619

Re: Can I get some comparison for my sanity?

I have done a lot of both FOLFOX and Xeloda, and Xeloda was basically like a chemo break in comparison. FOLFOX is much tougher. That said, everyone is different, and Xeloda is still a serious drug. I cannot comment on the likely efficacy of Xeloda vs. the harder core treatments.

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