WOW !! Thank you all for your replies, I admittedly am ashamed that we are having so much trouble deciding this, as I know surgery is the ultimate way to get more time after this awful diagnosis. I haven't updated my signature in a long time, back in 11-2019 after the referrals from many people on v...

Thank you for replying, when we met with the colon surgeon he explained about the chemo resistance... my dh's tumors have also mutated from kras wild to kras .. this was of concern to the surgeon.. the HAI pump onc said the chemo is different because its stronger and directed to the tumors..

Has anyone regretted going this route??? my DH is a candidate for this with sigmoid resection but because his tumors have become chemo resistant he is having a difficult time deciding if he wants to go through with it , he's concerned it "wont be worth it " has anyone had this done after e...

Hi again, I have set up the account with MSK and forwarded records, we are awaiting their contact to set up an appt. hopefully.... I am getting nervous though about the fact that as of now my husband is not doing any type of chemo at the moment, the day we went for the CT scan results he had just st...

We went to my husbands appt..to get the results of the CT scan as well as for his 3 week avastin treatment.. Right out of the gate we knew something was amiss, as his dr wanted to speak with us before any bloodwork was done... She informed us that the scan that was done has shown the cancer is growi...

Thank you, today is the day we learn the scan results ... it's been heavy on my mind, I will post when I can

Moni

Reading this breaks my heart for you, I don't have any advice medically as this is a new journey for us as well, please don't be offended, but one thing that jumped out at me that I really would like to say is, don't be afraid, I know that sounds so irresponsible of me to say, and I don't know if I ...

We will be finding out today ........ my husbands cea has increased , after 3 months of no marker tests it was recently checked and has nearly doubled and is over 1400 now... the only change that was made was switching from 5fu & avastin infusions every other week to xeloda 2weeks and avastin at...

Where is/was your husband's primary tumor and has it been resected? Does/did he have suspected or confirmed lymph node involvement? Has there been any discussion of a plan to get him to resection and hopefully NED? Have you considered the possibility of the HAI pump? Primary is sigmoid colon, no ly...

Hi, I am curious, my husband is going for his CT scan tonight to determine what is going on back in June his CEA started to go up so his Onc ordered a PET scan, results showed nothing ... so she decided to STOP testing CEA as it "caused unecssary anxiety"... 3 months later she decided to c...

Witherap ,

I apologize, but I dont know what that means , would that info be found in his biopsy report??

Claudine, Thank you so much for your reply, you have described our relationship, I have always been the "go to" for this, I have been with my husband since I was 17, we've raised our family and this was going to be "our " turn to be a "couple" again.. then this dx happe...

Boxhill, I agree totally, I did discuss this with my DH, he said he told her he'd like to wait until Oct , but this was before we knew about his CEA rising, she has not contacted him regarding it,because as you said she is likely put off by his request to wait, we received the notification of his te...

Good morning to all, I have a question regarding chemo and treatment, my DH had a CEA level increase back in June, his Dr ordered a PET scan but the scan didn't reveal anything suspect, she then decided to hold off on doing CEA tests for a bit as they can cause unnecessary anxiety, at his last treat...

Pyro,

RIP
Monimom : (