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by Monimom
Wed Oct 21, 2020 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So the news was not good....
Replies: 7
Views: 1687

Re: So the news was not good....

Hi again, I have set up the account with MSK and forwarded records, we are awaiting their contact to set up an appt. hopefully.... I am getting nervous though about the fact that as of now my husband is not doing any type of chemo at the moment, the day we went for the CT scan results he had just st...
by Monimom
Sat Oct 17, 2020 8:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So the news was not good....
Replies: 7
Views: 1687

So the news was not good....

We went to my husbands appt..to get the results of the CT scan as well as for his 3 week avastin treatment.. Right out of the gate we knew something was amiss, as his dr wanted to speak with us before any bloodwork was done... She informed us that the scan that was done has shown the cancer is growi...
by Monimom
Fri Oct 16, 2020 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wheels haven't stopped turning...
Replies: 10
Views: 2063

Re: My wheels haven't stopped turning...

Thank you, today is the day we learn the scan results ... it's been heavy on my mind, I will post when I can

Moni
by Monimom
Fri Oct 16, 2020 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 months left of life
Replies: 32
Views: 9061

Re: 3 months left of life

Reading this breaks my heart for you, I don't have any advice medically as this is a new journey for us as well, please don't be offended, but one thing that jumped out at me that I really would like to say is, don't be afraid, I know that sounds so irresponsible of me to say, and I don't know if I ...
by Monimom
Fri Oct 16, 2020 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does chemo regimen have impact on CEA?
Replies: 2
Views: 808

Re: Does chemo regimen have impact on CEA?

We will be finding out today ........ my husbands cea has increased , after 3 months of no marker tests it was recently checked and has nearly doubled and is over 1400 now... the only change that was made was switching from 5fu & avastin infusions every other week to xeloda 2weeks and avastin at...
by Monimom
Mon Oct 12, 2020 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wheels haven't stopped turning...
Replies: 10
Views: 2063

Re: My wheels haven't stopped turning...

Where is/was your husband's primary tumor and has it been resected? Does/did he have suspected or confirmed lymph node involvement? Has there been any discussion of a plan to get him to resection and hopefully NED? Have you considered the possibility of the HAI pump? Primary is sigmoid colon, no ly...
by Monimom
Mon Oct 12, 2020 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wheels haven't stopped turning...
Replies: 10
Views: 2063

My wheels haven't stopped turning...

Hi, I am curious, my husband is going for his CT scan tonight to determine what is going on back in June his CEA started to go up so his Onc ordered a PET scan, results showed nothing ... so she decided to STOP testing CEA as it "caused unecssary anxiety"... 3 months later she decided to c...
by Monimom
Wed Oct 07, 2020 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo fail?
Replies: 10
Views: 1903

Re: Chemo fail?

Witherap ,

I apologize, but I dont know what that means , would that info be found in his biopsy report??
by Monimom
Tue Oct 06, 2020 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo fail?
Replies: 10
Views: 1903

Re: Chemo fail?

Claudine, Thank you so much for your reply, you have described our relationship, I have always been the "go to" for this, I have been with my husband since I was 17, we've raised our family and this was going to be "our " turn to be a "couple" again.. then this dx happe...
by Monimom
Tue Oct 06, 2020 6:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo fail?
Replies: 10
Views: 1903

Re: Chemo fail?

Boxhill, I agree totally, I did discuss this with my DH, he said he told her he'd like to wait until Oct , but this was before we knew about his CEA rising, she has not contacted him regarding it,because as you said she is likely put off by his request to wait, we received the notification of his te...
by Monimom
Mon Oct 05, 2020 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo fail?
Replies: 10
Views: 1903

Chemo fail?

Good morning to all, I have a question regarding chemo and treatment, my DH had a CEA level increase back in June, his Dr ordered a PET scan but the scan didn't reveal anything suspect, she then decided to hold off on doing CEA tests for a bit as they can cause unnecessary anxiety, at his last treat...
by Monimom
Tue Sep 08, 2020 8:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 45
Views: 7740

Re: Bucket List

Pyro,

RIP
Monimom : (
by Monimom
Tue Sep 08, 2020 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My first Avastin treatment.
Replies: 9
Views: 2447

Re: My first Avastin treatment.

Hi, My husband is also on Avastin, he started his chemo out with Folfox and avastin. now he is on Xeloda for 2 weeks and he gets Avastin every 3rd week, his side effects are runny nose/eyes(only mildly), stomach pain for a couple days after infusion (tylenol helps) and he initially had nose bleeds ,...
by Monimom
Wed Aug 19, 2020 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: a big question about the Avastin dosage ... help me please
Replies: 3
Views: 1385

Re: a big question about the Avastin dosage ... help me please

Thank You , here is how it is written in detail, bevacizumab (AVASTIN) 600 mg in sodium chloride (NS) 0.9 % 100 mL IVPB 600 mg (rounded from 564.75 mg = 7.5 mg/kg × 75.3 kg Order-specific weight), Intravenous, Administer over 15 Minutes, Once, Fri 8/14/20 at 1600, For 1 dose he is 5'7 and 167 lbs. a...
by Monimom
Wed Aug 19, 2020 5:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: a big question about the Avastin dosage ... help me please
Replies: 3
Views: 1385

a big question about the Avastin dosage ... help me please

Hi, I was curious how can I find out if the amounts of meds my DH is receiving is within parameters , first I am curious if he is on palliative / maintenance chemo would the dosing be the same as curative dosing?? also, he recently switched to Xeloda but is still required to receive Avastin every 3 ...

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