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by Monimom
Tue Sep 08, 2020 8:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 45
Views: 6761

Re: Bucket List

Pyro,

RIP
Monimom : (
by Monimom
Tue Sep 08, 2020 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My first Avastin treatment.
Replies: 7
Views: 802

Re: My first Avastin treatment.

Hi, My husband is also on Avastin, he started his chemo out with Folfox and avastin. now he is on Xeloda for 2 weeks and he gets Avastin every 3rd week, his side effects are runny nose/eyes(only mildly), stomach pain for a couple days after infusion (tylenol helps) and he initially had nose bleeds ,...
by Monimom
Wed Aug 19, 2020 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: a big question about the Avastin dosage ... help me please
Replies: 3
Views: 1035

Re: a big question about the Avastin dosage ... help me please

Thank You , here is how it is written in detail, bevacizumab (AVASTIN) 600 mg in sodium chloride (NS) 0.9 % 100 mL IVPB 600 mg (rounded from 564.75 mg = 7.5 mg/kg × 75.3 kg Order-specific weight), Intravenous, Administer over 15 Minutes, Once, Fri 8/14/20 at 1600, For 1 dose he is 5'7 and 167 lbs. a...
by Monimom
Wed Aug 19, 2020 5:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: a big question about the Avastin dosage ... help me please
Replies: 3
Views: 1035

a big question about the Avastin dosage ... help me please

Hi, I was curious how can I find out if the amounts of meds my DH is receiving is within parameters , first I am curious if he is on palliative / maintenance chemo would the dosing be the same as curative dosing?? also, he recently switched to Xeloda but is still required to receive Avastin every 3 ...
by Monimom
Wed Aug 19, 2020 5:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2315

Re: another HAI pump question and a short rant...

Thank you ALL for replying, and giving such detailed info, this is such a unchartered territory for us, every detail helps !! I will be seeing what I can find out.
Thank you again !!
Moni : )
by Monimom
Fri Aug 14, 2020 5:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2315

Re: another HAI pump question and a short rant...

Thanks so much for sharing your encouraging stories !!!! So please allow me to ask, how did this all take place, in other words, when you had the pump installed, first Dr. Kemeny decides if you are a candidate ? then you go to NYC to MSK ? and do you stay there for the duration of your treatments ? ...
by Monimom
Tue Aug 11, 2020 6:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2315

Re: another HAI pump question and a short rant...

Thanks everyone for replying... I figured she was not accurate, whether shes knowledgeable on the matter or not I don't know, I have gotten the impression from here since day 1 that she has ZERO plans on my DH having any chance at a resection, whenevr asked she would say I can get a liver surgeon to...
by Monimom
Mon Aug 10, 2020 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2315

another HAI pump question and a short rant...

Hi all, today was my DH's appointment with Dr. to begin his Avastin/ Xeloda regimen... long story short , we still dont have the script.. i found out last week the Oncs office tried to utilize the pharmacy they're affiliated with instead of the one my DH's insurance co. uses (they KNEW his ins uses ...
by Monimom
Mon Aug 03, 2020 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband is working !!! and starting Xeloda.....
Replies: 6
Views: 660

Re: Husband is working !!! and starting Xeloda.....

Hi Thanks for the replies...this is how the script has been written.. * capecitabine 150 MG tablet Commonly known as: XELODA Take 6 tablets (900 mg total) by mouth 2 (two) times a day after meals with 1 other capecitabine prescription for 1,900 mg total * capecitabine 500 MG tablet Commonly known as...
by Monimom
Mon Aug 03, 2020 2:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband is working !!! and starting Xeloda.....
Replies: 6
Views: 660

Husband is working !!! and starting Xeloda.....

Hi all great news !! my hub has started working !! hes feeling great, and is switching from the pump to taking Xeloda and getting Avastin infusions... the Dr. prescribed 1900 mg daily ... is that alot ?? are the side effects as bad as she said...?? mouth sores?? GI irritation?? how common is the han...
by Monimom
Tue Jul 28, 2020 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can I get some comparison for my sanity?
Replies: 3
Views: 619

Can I get some comparison for my sanity?

Hi again, I am just looking for comparison, and opinion from more seasoned chemo patients here, as I have posted previously my Hub has had now I believe 16 treatments , the majority was the standard 5FU, Avastin & Oxaliplatin... but after so many Oxali tx's he has neuropathy, so no more of that....
by Monimom
Fri Jul 17, 2020 6:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Personal question ... how do YOU do it?
Replies: 13
Views: 1749

Re: Personal question ... how do YOU do it?

Thank you for your replies,
Martd, I am aware that SSDI will expedite for stage 4 , but is that for Medicare or SSDI ? BTW, I read your tag line, how awesome that your scans are clear !
by Monimom
Thu Jul 16, 2020 6:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Personal question ... how do YOU do it?
Replies: 13
Views: 1749

Personal question ... how do YOU do it?

I apologize for being nosey, but I am curious , for anyone that lost insurance coverage because of being out of work...... HOW did you continue treatment?? Quick overview... My DH was the spouse who carried our health insurance, he is also the one with this dreaded disease, our insurance is going to...
by Monimom
Tue Jul 14, 2020 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recently Diagnosed with Stage IV Colon Cancer
Replies: 13
Views: 1182

Re: Recently Diagnosed with Stage IV Colon Cancer

Hi there, You have basically copy pasted our story, my DH is 57 no history in his family, he's also stage 4 with multiple liver mets...( no lung mets) we were also told inoperable. My DH just had treatment # 15... he started with the same regimen... Avastin, Oxaliplatin & 5FU... they dropped the...
by Monimom
Tue Jul 14, 2020 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For those who have had HAI pump .. I have a question
Replies: 4
Views: 704

For those who have had HAI pump .. I have a question

Hi, although we've not been in contact with MSK yet I have been wondering about the pump ... my husband has several liver mets.. no further spread, would the fact that his colon has not been resected disqualify him ?
Thank you

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