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by Ulendon
Sat Aug 08, 2020 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not tolerating Xeloda. Are there any options?
Replies: 15
Views: 2867

Re: Not tolerating Xeloda. Are there any options?

Thank you guys. I am (well, was) taking the pills as directed. Within 30 minutes after a meal. The doctor went with the pills to reduce my possible covid exposure. Pills I only go in every 3 weeks versus every 2 for folfox. I'm sure it's the Xeloda as it gets worse and worse the farther out from the...
by Ulendon
Thu Aug 06, 2020 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not tolerating Xeloda. Are there any options?
Replies: 15
Views: 2867

Not tolerating Xeloda. Are there any options?

I've been having a really hard time with the adjuvent Chemo. The Oxaliplatin has been going ok but I've been having terrible reactions to the Xeloda pills. We have tried a few things including throwing all the anti-naseau drugs in the book at it and lowering the dosage but nothing seems to help. I s...
by Ulendon
Wed Jun 17, 2020 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

Ugh, how do people do this? This is day 6 after my second infusion and I'm still puking and nauseated. I have to work if I don't want to be homeless and it's just so hard. I emailed the doctor to see if we can switch up the meds somehow so mornings aren't so horrible.
by Ulendon
Thu May 28, 2020 1:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

Things are a little better. I think we may have found an appliance that will work for my ostomy. Wound nurse says I'm not the worst case she has had but in the top 5 :/ So anyway I slept through last night without leaking. I was up checking it every few hours but definitely got more sleep than I hav...
by Ulendon
Tue May 26, 2020 12:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

I'm doing really poorly. I haven't slept much at all since the infusion and I'm trying to work today. Just got done vomiting in my office. This really doesn't feel sustainable. I feel like my body weighs a thousand pounds. I'm weak and shaky and can hardly think straight. I ache all over. Now I'm wo...
by Ulendon
Sat May 23, 2020 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

First infusion went fine. They had an acupuncturist there too. I was surprised that I started having side effects before the infusion even ended. I really tolerated chemo during radiation well so I had my hopes up that this would be the same. I went to the bathroom towards the end of the infusion an...
by Ulendon
Mon May 11, 2020 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 74
Views: 14121

Re: Scary times . . .

I'm starting chemo next week. The procedure will be a bit different because of covid. I'll be taking pills and coming in only once every 3 weeks for Oxaliplatin infusion.
by Ulendon
Mon May 11, 2020 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

Thanks JJH,

I've been seeing the wound care nurse and using allllllll the products. Still haven't dialed things in but working on it and I'll try the ostomate forum.
by Ulendon
Thu May 07, 2020 5:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

Thanks guys, chemo starts on the 18th. I'm still having pain issues. The pain isn't particularly bad it's just incessant I don't mind too much during the day but I've been having a hard time getting to sleep. I'm also having issues with the ileostomy appliance. Middle of the night leaks and allergic...
by Ulendon
Wed Apr 29, 2020 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

I made it home yesterday. My stoma woke up and seems to be functional. Pain is still an issue, had a hard time getting to sleep last night but once I did I slept well. Being able to sit and lay in different positions has made all the difference in the world for the back pain I was experiencing, Wich...
by Ulendon
Sat Apr 25, 2020 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

Still in the hospital. Still in tons of pain. They took the NG tube out yesterday. I've had a little clear liquids today. Really not doing well though.

It feels like the pain is never going to go away.
by Ulendon
Sun Apr 19, 2020 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

They are going to give me some gabapentin and flexerall to help with the muscle pain. Why is it hurting so lmuch for so long. I haven't read anyone else having this kind of experience.
by Ulendon
Sun Apr 19, 2020 6:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

They said I have to go to emergency to get more pain control. The though of getting up and into the car is too much.
by Ulendon
Sun Apr 19, 2020 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24454

Re: Please help, input needed

My whole world is pain right now. Surgery was Wednesday hot to my room at 8 pm on excruciating pain. Horrible back spasms. It took aged to get any pain meds and none of it seemed to work. They sent me home yesterday. I have 5 mg of oxy every and 1000 mg of Tylenol every 6 hours and it's just hardly ...
by Ulendon
Wed Apr 15, 2020 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 74
Views: 14121

Re: Scary times . . .

Hang in there-it will be over soon. My prep went well, but like you, I had to get up at 3:30 am to head to the hospital. Once I got there all went smoothly. They gave me a nerve block in pre-op and that worked really well. Haven’t had any real pain yet. Best wishes for a good experience and speedy ...

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