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by polluxx
Sun Sep 20, 2020 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ctDNA test
Replies: 3
Views: 820

Re: ctDNA test

I just wanted to update after seeing my oncologist and asking her to give me a ctdna test every 3 months since CEA is not a good indicator for me. She was not a fan of the idea. She said they were all super excited about it a while back, but it hasn’t played out the way that they had hoped. She said...
by polluxx
Mon Sep 14, 2020 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 29
Views: 8426

Re: In need of metastasis education

I was actually diagnosed with colon cancer as a result of blood clots. I went to the ER with shortness of breath as my only symptom. It turned out I had 5 pulmonary embolisms in 3 lobes of my lungs. At that time, they also discovered that I was extremely anemic. They told me right then that I most l...
by polluxx
Fri Sep 11, 2020 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 4
Views: 625

Re: New here

I know exactly how you feel. My oncologist gave me the same 70% talk. In her defense, she didn’t have my pathology report back when she said it. I insist that they give me a hard copy of my report and all of my scans so I can read and research for myself. When I finally got my path report, I asked m...
by polluxx
Tue Sep 08, 2020 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ctDNA test
Replies: 3
Views: 820

Re: ctDNA test

I’m asking my oncologist about this next week when I see her. Hopefully, I’ll have more information then.
by polluxx
Sun Sep 06, 2020 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Never thought I'd be here, but glad I found you!
Replies: 9
Views: 1173

Re: Never thought I'd be here, but glad I found you!

Welcome.

I’m wishing you the best and hope that you get an answer about what is causing your symptom.
by polluxx
Sun Sep 06, 2020 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Curious on attitude towards future
Replies: 4
Views: 940

Re: Curious on attitude towards future

I just completed my 12th FolFox treatment and I found myself floundering emotionally towards the end. I like to plan. My childhood friends tease me because I’m the only one who ended up doing exactly what they said they were going to do when we were kids. I made a plan and I stuck to it. Now, I don’...
by polluxx
Tue Sep 01, 2020 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Silly Question
Replies: 17
Views: 3907

Re: Silly Question

When I got my port put in, I was given a card for my wallet, a card for my keychain and a gray bracelet. The nurse told me that I only needed 2 out of 3. I’m a belt and suspenders kind of girl, so I use all 3. I’m am finishing my 12th and final FolFox treatment. I’m asking my oncologist to leave my ...
by polluxx
Sat Aug 29, 2020 11:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Generational Colon Cancer
Replies: 2
Views: 618

Re: Generational Colon Cancer

My dad died of colon cancer and now here I am. It is hard. I also have a kid with Autism. Mine is 26 and I haven’t seen her since my diagnosis, but she will be home for Christmas. I have 4 kids at home now ranging in age from 24 to 10 years old. It is hard to think about leaving them. I just want yo...
by polluxx
Sat Aug 29, 2020 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions welcome: how old to test?
Replies: 4
Views: 732

Re: Opinions welcome: how old to test?

My oncologist and my genetic counselor both said that my kids should get their first colonoscopy at 40.

I was 53 at diagnosis.
by polluxx
Sat Aug 22, 2020 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Monitoring after FolFox
Replies: 3
Views: 621

Monitoring after FolFox

I only have one more round of FolFox to go. Yay me! But now I need to get with my oncologist about what happens next. First she told me that I would have an appointment with her and she would check CEA every 3 months and I would get a scan every 6 months. I told her I wasn’t comfortable with that be...
by polluxx
Mon Jul 20, 2020 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid and the non-believers
Replies: 18
Views: 2571

Re: Covid and the non-believers

When I needed to go to the hospital for a scan, I told my oncologist that I feel very safe in our hospital. She agreed that our county was doing really well minimizing Covid and she felt fine about the hospital too. Fast forward 6 weeks and I reminded her of that conversation. She said that was a wh...
by polluxx
Fri Jun 19, 2020 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My dad
Replies: 3
Views: 1455

Re: My dad

I’m so sorry that you are going through this. It is so hard. I lost my own father to colon cancer, but strangely, I still feel like he is so close to me. I’m praying for your dear family. May you all be granted grace and perfect peace throughout this next transformation.
by polluxx
Sun Jun 07, 2020 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reducing Oxaliplatin
Replies: 8
Views: 1763

Re: Reducing Oxaliplatin

The cycle with 15% reduction was much more manageable. I tried the glutamine and I feel like that helped as well. Thanks for the tips.
by polluxx
Fri Jun 05, 2020 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage III's
Replies: 6
Views: 984

Re: Stage III's

Monday, I have FolFox treatment 6 of 12. I’ve also read studies that show that 6 treatments are as effective as 12, however, my oncologist is adamant that I need all 12, so 12 it is. We have had to reduce the Oxiplaplatin by 15% and I’m resigned to the idea that it may need to be reduced farther bef...
by polluxx
Thu May 21, 2020 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: when CEA is not a good indicator.
Replies: 4
Views: 862

when CEA is not a good indicator.

My presurgery CEA was 1.2. My oncologist said that she did not think CEA would be a good indicator for me because I had a pretty hefty cancer load at that time. She is, however, continuing to monitor my levels. February 23=1.2 March 25=0.6 April 27=.9 May 20=1.5 Tuesday, I go in for my 5th FolFox cy...

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