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by polluxx
Wed Jan 06, 2021 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CTdna
Replies: 5
Views: 777

Re: CTdna

I spoke to my patient coordinator yesterday. He told me that the best thing a patient can do is to tell their oncologist that they want to have the ctDNA blood test and have the doctor contact Signitera to find a study. He sent me a couple of links about the process that might be interesting to peop...
by polluxx
Tue Jan 05, 2021 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CTdna
Replies: 5
Views: 777

Re: CTdna

Thank you for looking that up! I was going to call my contact person at Signitera today and try to get more info. I wasn’t given very many details. My doctor said that after I asked for the test, she went to a webinar about it and discovered that someone from John Muir was participating in the study...
by polluxx
Thu Dec 31, 2020 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 61
Views: 10520

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

I really appreciate the statistic from your own doctor’s cancer group. I was also staged at 3c and I interpreted what I read online to mean that only 25% of 3c patients were even alive in 5 years. Either way, I like 60% much better. When I finished Chemo, my oncologist wanted me to get my port taken...
by polluxx
Thu Dec 24, 2020 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CTdna
Replies: 5
Views: 777

CTdna

I just got a clean PET scan and my oncologist said I will continue getting one every 3 months. I’m supposed to get my CEA taken every 3 months, but it isn’t a good indicator for me. It was less than 2 before my surgery when I had a heavy tumor load in my body. I wanted to get CTdna tests instead, bu...
by polluxx
Tue Dec 22, 2020 2:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 66
Views: 5541

Re: Covid 19 vaccine

My oncologist told me she got her first shot this week. Even though I’m finished with chemo and my white blood count has recovered, she said that she would like me to get it as soon as possible. She said that she doesn’t know how it will be rolled out. If she gets a shipment to distribute, she said ...
by polluxx
Sat Dec 19, 2020 3:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is anyone else about 3 months post FolFox?
Replies: 11
Views: 2335

Re: Is anyone else about 3 months post FolFox?

Thanks! I had a very good visit with my oncologist yesterday. She says that she sees this cycle of depression at the 3 month mark with many of her patients. In fact, it isn’t unusual to have people start crying at their 3 month appointment. She feels like I am already on the upside of it, but if I’m...
by polluxx
Fri Dec 18, 2020 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is anyone else about 3 months post FolFox?
Replies: 11
Views: 2335

Re: Is anyone else about 3 months post FolFox?

I just wanted to update than I had my PET scan yesterday. The hospital sent the results to my portal almost immediately. The most important line said, “No evidence of recurrent or metastatic colon cancer” I’m going to go over the report with my doctor today. The scan did pick up something going on w...
by polluxx
Thu Dec 10, 2020 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is anyone else about 3 months post FolFox?
Replies: 11
Views: 2335

Re: Is anyone else about 3 months post FolFox?

Thank you for all of the helpful links! I know that at 2 months out, my neuropathy was still increasing, but it is slowly getting better in my hands now. I’ve been diligent about exercising, and swim 6 days a week. I know I would feel better if I cleaned up my diet too, but I haven’t haven’t quite g...
by polluxx
Tue Dec 08, 2020 12:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is anyone else about 3 months post FolFox?
Replies: 11
Views: 2335

Is anyone else about 3 months post FolFox?

I’m checking in to see if anyone is at the same point in treatment so we can compare notes. I’m having a “base of skull to thigh” PET scan in a week or so. I’m starting to get pretty nervous about that. I can tell that the numbness in my hands is getting better. I think I can see an improvement in j...
by polluxx
Sun Sep 20, 2020 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ctDNA test
Replies: 3
Views: 1020

Re: ctDNA test

I just wanted to update after seeing my oncologist and asking her to give me a ctdna test every 3 months since CEA is not a good indicator for me. She was not a fan of the idea. She said they were all super excited about it a while back, but it hasn’t played out the way that they had hoped. She said...
by polluxx
Mon Sep 14, 2020 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 29
Views: 8927

Re: In need of metastasis education

I was actually diagnosed with colon cancer as a result of blood clots. I went to the ER with shortness of breath as my only symptom. It turned out I had 5 pulmonary embolisms in 3 lobes of my lungs. At that time, they also discovered that I was extremely anemic. They told me right then that I most l...
by polluxx
Fri Sep 11, 2020 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 4
Views: 828

Re: New here

I know exactly how you feel. My oncologist gave me the same 70% talk. In her defense, she didn’t have my pathology report back when she said it. I insist that they give me a hard copy of my report and all of my scans so I can read and research for myself. When I finally got my path report, I asked m...
by polluxx
Tue Sep 08, 2020 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ctDNA test
Replies: 3
Views: 1020

Re: ctDNA test

I’m asking my oncologist about this next week when I see her. Hopefully, I’ll have more information then.
by polluxx
Sun Sep 06, 2020 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Never thought I'd be here, but glad I found you!
Replies: 9
Views: 1397

Re: Never thought I'd be here, but glad I found you!

Welcome.

I’m wishing you the best and hope that you get an answer about what is causing your symptom.
by polluxx
Sun Sep 06, 2020 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Curious on attitude towards future
Replies: 4
Views: 1161

Re: Curious on attitude towards future

I just completed my 12th FolFox treatment and I found myself floundering emotionally towards the end. I like to plan. My childhood friends tease me because I’m the only one who ended up doing exactly what they said they were going to do when we were kids. I made a plan and I stuck to it. Now, I don’...

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