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by Zod
Wed Dec 04, 2019 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 16
Views: 1596

Re: Baseline CEA levels

For what it's worth, in US for me at least units are ng/ml (two cancer centers, both in California).

By happenstance, I had CEA done twice in 2 days at different labs. One was 1.6 and the other was 3.4. Values evidently, at least for low values, can vary by a factor of 2 is appears.
by Zod
Wed Dec 04, 2019 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hiccup
Replies: 3
Views: 428

Re: Hiccup

I tend to get hiccups for 1-2 days after chemo (folfoxiri). Hiccups tend to be persistent during the one day and to restart if I manage to get them stopped. Seems harmless enough although a bother.
by Zod
Fri Nov 15, 2019 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 18722

Re: Quick intro -- diagnosed Friday

You absolutely need to tell them of all of your symptoms, especially neuropathy. They ended up reducing my Oxi dosage when I started getting it. I tell my oncologist about *everything* that lasts more than a few hours and also about anything briefer that seems significant. I preface this with him b...
by Zod
Fri Nov 15, 2019 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pain below right ribcage
Replies: 8
Views: 563

Re: Pain below right ribcage

I get the same thing, both sides, just under the short ribs. Been happening since before my latest round of chemo started. I also get some central pain (front) that sometimes is triggered immediately by drinking water or eating. Current thinking from the docs is that it's related to GERD from stress...
by Zod
Tue Oct 08, 2019 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 24
Views: 2671

Re: Keytruda Side Effects: bad joint pain

Two things: 1 The docs are presumably weighing risks (that is still a liver surgery, still invasive with some level of risk) versus the likely benefit. 2 Check with your oncodoc and/or other docs and strongly tell them about your knee symptoms if you haven't already. Good medical oncologists should ...
by Zod
Tue Oct 08, 2019 9:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming Surgery
Replies: 23
Views: 2500

Re: Upcoming Surgery

I also had an LAR 9 months ago and had (and somewhat still have) problems urinating. Not particularly bad but I seem to be able to void the "top half" of my bladder. E.g., if I'm full then I can void some easily but have to push/tense a lot to get much of the rest out. I'm also on Flomax p...
by Zod
Tue Oct 08, 2019 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long flights with cancer/chemo
Replies: 15
Views: 1660

Re: Long flights with cancer/chemo

My medical oncologist is worried about clots if I fly but I have a mild clotting disorder as well.

He prescribed a blood thinner that I take before the flight.
by Zod
Tue Oct 08, 2019 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does MSK take to get approval to install HAI pump?
Replies: 10
Views: 1266

Re: How long does MSK take to get approval to install HAI pump?

There's no FDA approval required for getting an HAI pump anywhere. I'm told that the combination of Medtronic pump and Codman catheter is off-label and therefore needs FDA approval. Want to confirm or deny that. I expect that MSK has a "bulk approval" of some sort maybe? Or perhaps as you...
by Zod
Mon Sep 30, 2019 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix side effects
Replies: 13
Views: 1456

Re: Vectibix side effects

I did some googling which is usually a bad idea

"Google is a good mortician but a bad doctor." - FWIW
by Zod
Mon Sep 30, 2019 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vision & chemo
Replies: 6
Views: 959

Re: Vision & chemo

I see that blurry vision can be a side effect from the steroids or chemo. Has any one had it only happen in just 1 eye? Same thing with me (one eye, during chemo) but is was age-related vitreous detachment at age 62. That is worth taking to an eye doctor since sometimes can be something more than t...
by Zod
Sun Sep 29, 2019 12:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does MSK take to get approval to install HAI pump?
Replies: 10
Views: 1266

How long does MSK take to get approval to install HAI pump?

How long does MSK take to get approval to install HAI pump? Are they able to get whatever approvals are needed quickly once they decide to use the pump on a particular patient? My understanding is that there can be a 1-2 month wait to sort out paperwork with FDA if getting a HAI pump elsewhere. Wond...
by Zod
Wed Sep 18, 2019 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump Placement
Replies: 5
Views: 479

Re: Pump Placement

I don't have much info about timing, etc. However, in my case docs are talking about combining the pump install with my other 2 operations (liver resection and reversing ileostomy. Do you have other operations that should be combined with installing the pump?
by Zod
Sun Sep 15, 2019 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming Surgery
Replies: 23
Views: 2500

Re: Upcoming Surgery

Here are some things I've done to make life with a (hopefully temporary) ileostomy better. 1 I'll call my WOC nurse if I have questions or problems. She has been super-helpful. Also visited her one time a few weeks after surgery to sort stuff out. 2 The vendor for my bags has a help line you can cal...
by Zod
Wed Sep 11, 2019 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox7 vs folfox6
Replies: 1
Views: 371

Re: Folfox7 vs folfox6

Does it make a huge difference? Should he be put back on the 7 for his 3rd infusion and then on ? My oncologist had to switch my drugs around after my first infusion due to neutrophils getting too low. New mix (done for 3rd and 4th) seems to be OK for neutrophils and fortunately no too-harsh side e...

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