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by jts
Wed May 27, 2020 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cryotherapy to Prevent Neuropathy (Icing hands and feet and sucking on ice chips)
Replies: 7
Views: 981

Re: Cryotherapy to Prevent Neuropathy (Icing hands and feet and sucking on ice chips)

Like I wrote before, I'm doing 12 rounds of FOLFOX, and have been icing my hands and feet and sucking on ice chips during my oxaliplatin infusions. I didn't have much or any cold sensitivity in my hands and feet. Only my face, mouth and throat. I also didn't notice any neuropathy until after round 8...
by jts
Mon Apr 27, 2020 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cryotherapy to Prevent Neuropathy (Icing hands and feet and sucking on ice chips)
Replies: 7
Views: 981

Re: Cryotherapy to Prevent Neuropathy (Icing hands and feet and sucking on ice chips)

That's very similar to my experience, jts. Except I don't have any problems with my skin when my pump is disconnected. I see you are also a IIIC. I only had one bad node, but my tumor was a t4 and invaded my abdominal wall. May I ask what figures your oncologist gave you regarding odds of survival ...
by jts
Mon Mar 16, 2020 5:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cryotherapy to Prevent Neuropathy (Icing hands and feet and sucking on ice chips)
Replies: 7
Views: 981

Re: Cryotherapy to Prevent Neuropathy (Icing hands and feet and sucking on ice chips)

I'm on round five of FOLFOX and have also been icing my hands and feet, and usually sucking on ice chips during the oxialiplatin infusions. Here's my anecdotal experience so far. The main side effect of the icing is that my hands and feet get cold. I try to get them cold enough that they are a littl...
by jts
Wed Mar 11, 2020 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost made 5 years and now have a recurrence
Replies: 10
Views: 964

Re: Almost made 5 years and now have a recurrence

I’m sorry. That absolutely sucks.

In a way you got really lucky that it became detectable before you got outside the monitoring window.
by jts
Wed Mar 11, 2020 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 1676

Re: Me again, my fave topic: CEA

I am totally feeling the same. I am on round 5 of FOLFOX for adjuvant chemo. Since the surgery the doctors like to say that I am cancer-free. Clear margins. Clean CT scan. But every blood test since the surgery has my CEA going up. Now it’s in the high 3’s. I know these are rookie numbers for a lot ...
by jts
Wed Jan 08, 2020 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 32
Views: 5649

Re: Neuropathy improvement: individual experience

I have a question for FOLFOX veterans. I will start on FOLFOX soon. An oncologist at the hospital (not my local oncologist) suggested that I wear tight chilled gloves and socks during infusions. I guess to cut down circulation to those areas while the poison is strongest. Did anyone try that? Given ...
by jts
Wed Jan 08, 2020 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally staged at IIIc
Replies: 7
Views: 1121

Re: Finally staged at IIIc

Thanks guys for the responses. Of course most importantly this thing is still highly beatable. There is still a high chance that you won’t have to deal with this thing again, so focus on that outcome. Is it, though? I know if you look at stats for all stage III, both RC and CC combined it seems not ...
by jts
Sat Jan 04, 2020 3:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally staged at IIIc
Replies: 7
Views: 1121

Finally staged at IIIc

I had trans-anal TME surgery about 2.5 weeks ago. Recovery is going well I’d say. Within 3-4 days I was outside walking, and I think I went home on the 7th day after surgery. It’s kind-of a blur. Partly because of the holidays they didn’t complete the pathology and post surgery report until after I ...
by jts
Fri Nov 29, 2019 2:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 5966

Re: Diagnosed while working abroad

I also found out there is some family history of colon cancer. Apparently my great grandfather (dad's mom's dad) died young from CC, and the same grandma's nephew died young from CC. I don't know how that relates to my risk, but it's a lot more than the zero cases my parents were aware of.
by jts
Thu Nov 28, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 5966

Re: Diagnosed while working abroad

The trip to visit my family in the US went without any real health issues. I tried not to eat much while in transit, and we took it relatively easy. Unfortunately it was unseasonably cold, so I didn't get out to ride my bike at all. I interviewed for a job while in town just to gather options. I had...
by jts
Wed Nov 13, 2019 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 24130

Re: Newly diagnosed rectal cancer

Carbs are generally less filling compared to fat and protein so you can probably get more calories by going with carbs over protein though, yes, you do need protein. I like cottage cheese too but you have to eat it fairly quickly as it can go bad in a short period of time. I haven't had it for a wh...
by jts
Wed Nov 13, 2019 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 5966

Re: Diagnosed while working abroad

Thanks for the replies everyone. It is almost two weeks since the end of Chemo-Radiation. I am feeling much better. Not good or normal, but every day I feel distinctly better than the day before. During the therapy weeks I got gradually worse, and can now see that I lost track of how crappy I was fe...
by jts
Mon Oct 28, 2019 4:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 5966

Re: Diagnosed while working abroad

Thanks everyone for your responses. This will be my last week of pCR. Thursday is a holiday, so it's actually only 4 trips to the Rad clinic, but I have to keep taking the Xeloda through Friday. I know I won't feel better immediately. I already get weekends off from radiation, and Sunday is usually ...
by jts
Mon Oct 28, 2019 4:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 5966

Re: Diagnosed while working abroad

Perhaps also counterintuitive BUTT this may assuage your wife's zeal for dietary terrorism : :shock: from years of vet practice, when cats were hospitalized we would deliberately not feed their normal favorite foods, because they would then often return home and NOT eat the diet which was fed / ass...
by jts
Mon Oct 28, 2019 4:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 5966

Re: Diagnosed while working abroad

It’s good that you can nap. They say you heal best when sleeping. I am tired but can hardly sleep, I think too much. Sleep as much as you can. I’m glad they gave you things to help along the way. That really is good that you have something to help early. I know what you mean about food. I don’t wan...

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