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by jsbsf
Sun Feb 16, 2020 2:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOR REFERENCE - treatment of adrenal metastases
Replies: 14
Views: 1031

Re: FOR REFERENCE - treatment of adrenal metastases

Hey Claudine, My husband coincidentally had surgery on the very same day as yours. It was his first real surgery. His was a laparoscopic liver resection. He spent the night in the hospital, was in quite a bit of pain on Wednesday. We went for a hike on Friday and again today, and the pain has almost...
by jsbsf
Fri Feb 14, 2020 1:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 21
Views: 2103

Re: In need of metastasis education

That is very interesting about the distant sites where mets are more or less likely to occur. DH has very low rectal cancer, and the only mets were liver, one in either side. The first appeared on the far left side, where there’s a “tip”, so relatively easy to resect. The second was below the surfac...
by jsbsf
Thu Feb 13, 2020 1:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 21
Views: 2103

Re: In need of metastasis education

Hi rock_robster, Very interesting! I was looking at your signature and you both have a lot in common. I believe his tumor is a bit lower, so low that at first, we believe he was destined for a permanent colostomy. His treatment path seems practically identical to yours. He had only 2 liver mets that...
by jsbsf
Wed Feb 12, 2020 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 21
Views: 2103

Re: In need of metastasis education

Thanks cured. We have tried fenben too. Husband is doing very well, and we are not sure which treatment or combination of treatments is making the biggest difference. He did a 4 week 3 days on 4 days off regimen once. He started a second 4 week try, but just had surgery yesterday so didn’t do the 4t...
by jsbsf
Thu Jan 09, 2020 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 21
Views: 2103

Re: In need of metastasis education

Thank you Siti. I hope your husband is getting some good news and that you’re both staying positive. One of the reasons I don’t want to know the details is I’m afraid it might impact me negatively. So I didn’t really know about lymph node involvement until very recently. When CEA spiked early during...
by jsbsf
Wed Jan 08, 2020 3:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 21
Views: 2103

Re: In need of metastasis education

We had good news on Monday. DH met with his liver surgeon and she says the met that disappeared didn't even show on the MRI with contrast. So, she'll insert a probe and burn the area. The other one is so small, she can remove it with a laparoscopic procedure. She says that burning the area where the...
by jsbsf
Sat Dec 28, 2019 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 21
Views: 2103

Re: In need of metastasis education

Thanks for your responses Claudine and Stu. It is very mysterious. I have a friend whose 77 year old father was recently diagnosed with a different type of cancer. It’s a less common blood cancer and his white blood cell count has skyrocketed into the hundreds of thousands. He was given about a mont...
by jsbsf
Sat Dec 28, 2019 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 21
Views: 2103

In need of metastasis education

I feel like after 4 months I still don’t understand some to the basics about what causes metastasis. There seem to be different approaches regarding treatment, and I would like to get a better understanding of the rationale behind those decisions. I understand why treatment depends on “stage” and ha...
by jsbsf
Thu Dec 05, 2019 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 2150

Re: 8 year cancerversary

Hi Siti, Good to hear from you. My situation is similar. Husband had high cholesterol about 10 years ago. Since he had to eat more healthy, I did too. Now with cancer he has to be even more careful. We used to drink an occasional glass of wine. And we went back to eating a bit too much ice cream. No...
by jsbsf
Tue Dec 03, 2019 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 2150

Re: 8 year cancerversary

My mother had a very bad diet. Lots of greasy, fast food. Lots of cheese. She also drank heavily. She had breast cancer in her forties, and was diagnosed with stage III colon cancer at 56. It progressed to Stage IV, and she passed away after a near 10 year battle. She had so many health problems, bu...
by jsbsf
Mon Dec 02, 2019 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 2150

Re: 8 year cancerversary

You are an inspiration and your very first post is one everyone here needs to read through: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=40315&p=288270#p288270 I came here grasping for any hope I could find, and researched the supplements you told us you were taking way back ...
by jsbsf
Tue Nov 05, 2019 10:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 1098

Re: 3 month scan ? What to expect. (Rectal)

The original plan was was always subject to change, but we were told that if things worked out there would be 12 rounds of FOLFOX, and liver mets would be the focus and to expect resection after the 6th round. Because things are going at least as good as expected, the plan is for a PET scan on 12/16...
by jsbsf
Tue Nov 05, 2019 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 1098

Re: 3 month scan ? What to expect. (Rectal)

It has not yet been 3 months, but today DH had an ultrasound after his 3rd round of FOLFOX (10/29). His 2 liver mets grew pretty aggressively between 8/23 and 10/4. First treatment was on 9/30. On 10/4 the larger met was just under 4cm. The smaller one “grew substantially” from its original 7mm. As ...
by jsbsf
Wed Oct 23, 2019 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 1/2 years post Stage IV liver resection
Replies: 10
Views: 812

Re: 7 1/2 years post Stage IV liver resection

Today makes 2 months since my world was turned upside down. Thank you for sharing the encouraging news. I look forward to hearing more stories like yours.
by jsbsf
Mon Oct 14, 2019 4:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone taking artemisinin?
Replies: 5
Views: 905

Re: Anyone taking artemisinin?

I did a little research on artemisinin, but haven’t brought myself to purchasing any. I did read your thread about the COC protocol, and the side effects of Metformin. I bought a copy of Jane McCleland’s book, but for the most part found it overwhelming. I don’t know where to start. I did, however p...

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