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by jsbsf
Mon Oct 14, 2019 4:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone taking artemisinin?
Replies: 5
Views: 595

Re: Anyone taking artemisinin?

I did a little research on artemisinin, but haven’t brought myself to purchasing any. I did read your thread about the COC protocol, and the side effects of Metformin. I bought a copy of Jane McCleland’s book, but for the most part found it overwhelming. I don’t know where to start. I did, however p...
by jsbsf
Sat Oct 05, 2019 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got post-op staging
Replies: 20
Views: 1472

Re: Got post-op staging

That sounds like FOLFOX. It’s Oxaliplatin with leucovorin, then a 5fu pump to take home. We just started Monday, 9/30. Wednesday, they showed me how to help disconnect the pump so it saves a trip to the hospital on day 3. It’s not very complicated. They recommend the caregiver take on the responsibi...
by jsbsf
Fri Sep 27, 2019 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

Hi Claudine, I feel like you read this same article: https://bcct.ngo/search-therapies/search-therapy-summaries/turkey-tail-mushroom I discovered how to get the links to the products I described earlier. The noomadic one has a lot of information on its can to describe what it contains. Turkey Tail M...
by jsbsf
Thu Sep 26, 2019 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

I should also mention that his blood test numbers are all consistently very well. His blood tests are all absolutely perfect. So, I’m not sure that taking PSK would be a good idea for others. We are not going to take any known NSAIDs during the course of treatment. We need to get a blood test 2 days...
by jsbsf
Thu Sep 26, 2019 8:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

Hi claudine, I went directly to mushroom science, mushroomscience.com. And the one I ordered is called “Coriolus Super Strength”. This is the one that is PSK and has been studied a lot. The price was a bit less than on Amazon. The shipping was free and there was a good tracking system. I live in Cal...
by jsbsf
Thu Sep 26, 2019 12:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

I wanted to follow up on this thread. Today we met with an oncologist at a very highly regarded hospital here in San Francisco for our second opinion. Her recommendations were in line with our oncologist’s. I brought up turkey tail, modified citrus pectin, and cimetidine. I just haven’t felt comfort...
by jsbsf
Mon Sep 23, 2019 10:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on Stage IV...
Replies: 24
Views: 2193

Re: Thoughts on Stage IV...

I feel like it’s a little unfair to give stats on stage IV alongside those for less advanced, since there is no upper limit. Stages I-III have upper boundaries and can have progressed only so much. Stage IV is “everything else”. I also feel very strongly that the numbers have to be at least 5 years ...
by jsbsf
Tue Sep 17, 2019 9:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Guess who was told she's NED??
Replies: 33
Views: 1997

Re: Guess who was told she's NED??

This made my day! Very happy for you.
by jsbsf
Sat Sep 07, 2019 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

I just searched for “turkey” and scoured the site for references to turkey tail. I had been trying to find specifically psk. There were a lot of people who couldn’t tell which was the one we want. The winner seems to pretty clearly be from Mushroom Science. You can find it here: https://mushroomscie...
by jsbsf
Fri Sep 06, 2019 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

Yes, the oncologist recommended d3 supplement throughout chemo. He’s getting FOLFOX. 14 day cycles. The first day he gets 3 of something and comes home with a pump for something else. Day 2 is the pump at home. Day 3 is return to disconnect the pump. This every 14 days, 12 times. If my math is right...
by jsbsf
Fri Sep 06, 2019 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

Yes, my previous post is still pending approval, but I did realize ehut began taking his PSK following chemo and for two years thereafter. The results were relatively good in my case, as can be expected. There is a 1cm lesion on the liver along with the 5+ cm tumor on the rectum. It’s being treated ...
by jsbsf
Fri Sep 06, 2019 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

Hi Siti, I just found my answer to the question I had for ehut. It’s in a thread he responded to in March 2013 called one year post surgery. He did not find out about PSK until after chemo, so therefore he began taking it following chemo. If you find that thread it has a lot of other information, to...
by jsbsf
Fri Sep 06, 2019 8:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

Thank you siti, I hope so too. Yes I hear that Turkey tail can be a good adjuvant therapy. I’m still not clear about when ehut took the supplement in relation to actually being in chemo, and in what amounts. A lot of people don’t follow the recommended dosage. I read reviews about one of the bottles...
by jsbsf
Thu Sep 05, 2019 10:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

Hi Siti, I’m the spouse/caregiver. We are at Kaiser in San Francisco. Yesterday was “chemotherapy orientation”. We just got him his colonoscopy 8/23 (5+cm tumor, lower rectum), and had a CT scan 8/26 which showed a spot on the liver. We had a Pet scan on 9/3, and the results are in. We are getting t...
by jsbsf
Wed Sep 04, 2019 9:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3346

Re: Those of you in Japan - PSK Mushrooms

Ehut , Did you take the PSK and Modified Citrus Pectin throughout chemo? We had chemo orientation today and were told to reduce antioxidant intake while on chemo. The explanation was that antioxidants strengthen the cell walls, and that’s the opposite purpose of chemo. So antioxidants would benefit ...

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