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by jsbsf
Fri Oct 09, 2020 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203380

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thank you prs. You were inspirational, and I followed your story not expecting to ever make it to W&W. I told him about your side effects and how you mentioned later how you felt after recovery. How important it is to stay the course. It seems like he’s one of very few, stage 4, to be given the ...
by jsbsf
Fri Oct 02, 2020 9:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 29
Views: 8403

Re: In need of metastasis education

Hi cured, I’m sorry to hear about the lung mets after 10 years. We received some positive news from the colorectal surgeon this afternoon. He assured us there was no cancer. I’m not sure how it’s possible to make that determination with an endoscopy. Maybe it can be done because of the extensive amo...
by jsbsf
Fri Oct 02, 2020 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203380

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I wanted to give a quick update on the status of DH, mostly to give some hope to those out there who were diagnosed with stage 4 CRC. Its been over a year of chemo and radiation treatment with a laparoscopic surgery halfway through. The radiation was intense and covered a much larger area than the c...
by jsbsf
Mon Sep 14, 2020 1:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 29
Views: 8403

Re: In need of metastasis education

Hi Cured, I am sorry for being very late to reply. I don’t receive notifications, and don’t visit the site as frequently as I have in the past. I hope your wife is doing well. I actually found your post searching “fenbendazole”. DH completed his 12th round of FOLFOX, coincidentally, on 6/2. He had a...
by jsbsf
Tue Aug 11, 2020 12:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has Anyone Any Experience With The Joe Tippens Protocol?
Replies: 12
Views: 1718

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

We didn’t do the Joe Tippens protocol exclusively, but used bits and pieces of information we found in this forum. DH started taking Turkey Tail (mainly PSK) and Modified Citrus Pectin early on, starting about a month before chemo. There was no strict rule. He had a 5g scoop daily of MCP and took tw...
by jsbsf
Tue Jul 28, 2020 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203380

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Congratulations on the progress so far!!! Because my tumor involves the sphincter, barring a ccr, I have been told that any surgery would leave me with a colostomy bag with which I am unwilling to live. If I were given your husband’s options, I would opt for surgery if it did not involve an ostomy....
by jsbsf
Thu Jul 23, 2020 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203380

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Is it unheard of to w&w with a stage IV diagnosis? DH has had an unbelievable response so far. He completed his 12th round of FOLFOX on 6/2. His liver resection was in February, halfway through. Colorectal surgery was discussed at that point, but was postponed due to scheduling conflicts. The pr...
by jsbsf
Wed Jun 03, 2020 5:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo graduation
Replies: 2
Views: 813

Chemo graduation

Hi everyone. I just wanted to check in with an update since I haven’t posted in a while. DH completed round 12 of his chemo yesterday. It’s been a tough road and there is still a long way to go, but the outcome is positive and the nurses said he’s a success story. He has had the 2 liver mets success...
by jsbsf
Sun Mar 29, 2020 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Likely Liver Resection Coming. Need advice please:)
Replies: 5
Views: 1137

Re: Likely Liver Resection Coming. Need advice please:)

DH is following in rock_robsters steps in large part. He hasn’t had the rectal surgery yet, but had a microwave ablation on 2/5 and a laparoscopic resection on 2/11. The MWA required only one needle. If the lesion is spherical, the heat can radiate from the center and cover the entire area. Otherwis...
by jsbsf
Sun Mar 29, 2020 9:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 2425

Re: Chemo break due to covid-19 outbreak

It was recommended with his best interest in mind. He was already scheduled, and the oncology floor is set up specifically for patients to get their infusions. I think it has to do with things like filters in the ventilation system as well as best practices to keep certain areas properly sanitized a...
by jsbsf
Sun Mar 29, 2020 5:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spontaneous expulsion of primary tumor
Replies: 12
Views: 2089

Re: Spontaneous expulsion of primary tumor

Oh siti, After his 8th round of treatment he still experienced the sand in shoes sensation. It lasted a couple days and was similar to after the 7th round. So, we aren’t sure if the ice packs helped. He brought this up to the oncologist who told him if that sensation lasts only 2 to 3 days it most l...
by jsbsf
Sun Mar 29, 2020 5:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 2425

Chemo break due to covid-19 outbreak

Just wanted to pass this on to anyone concerned about getting chemo during the coronavirus outbreak. DH had a phone all from his oncologist to check in on his progress. Just completed 8th round of FOLFOX. The conversation started off with him recommending to cancel the 9th round appointment and to p...
by jsbsf
Sun Mar 29, 2020 5:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spontaneous expulsion of primary tumor
Replies: 12
Views: 2089

Re: Spontaneous expulsion of primary tumor

Thanks for your responses. Prs, your posts are some I followed early on, and I am aware of the watch-and-wait approach. I even reached out to your doctor in the LA area at one point, but didn’t hear back. DH also has Kaiser, but in San Francisco. Unfortunately, he’s at stage IV and doesn’t qualify, ...
by jsbsf
Mon Mar 23, 2020 12:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 74
Views: 14010

Re: Scary times . . .

One argument I heard about wearing the mask is not so much that it would prevent the virus from being breathed in as much as it would provide a barrier for when we might instinctively touch our face. It did sound logical.
by jsbsf
Mon Mar 23, 2020 12:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recovery time after liver resection
Replies: 16
Views: 3473

Re: Recovery time after liver resection

I know this thread is about a year old, but wanted to follow up with something similar that happened to DH. He went in on 2/5/2020 for liver MWA, and on 2/11/2020 for a liver resection. The MWA was on his right side, near the top. The liver resection was on his left. The surgeon took a biopsy of a s...

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