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by Monique
Sun Jul 12, 2020 7:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 798
Views: 330519

Re: For Stage III's: NED for how long now?

In 2006, I was diagnosed with what is now considered stage IIIC colon cancer. I've been NED for 14 years.
by Monique
Sun Sep 25, 2016 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy- how long?
Replies: 3
Views: 1147

Re: Neuropathy- how long?

Hi Alessandria I finished my Folfox almost ten years ago and had fairly pronounced neuropathy in my hands and feet; I also experienced a 'zinging' sensation in my legs. If memory serves, I think I started experiencing the neuropathy around my sixth infusion and it increased thereafter. It was probab...
by Monique
Fri Sep 23, 2016 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 8
Views: 1373

Re: Hello from a new member

Welcome to the board, Pinecone. I'm happy you found us, as CC is wonderful resource.

I hope your pain has eased since you last posted.

Warm wishes,
Monique
by Monique
Fri Sep 23, 2016 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and hopeless
Replies: 22
Views: 3447

Re: Just diagnosed and hopeless

Hello TXLiz, As others have pointed out, you're not being a baby! Rather, you're going through a totally understandable reaction to an upsetting situation. I was in the same situation ten years ago when I too was diagnosed with stage III colon cancer - I also had two lymph nodes that tested positive...
by Monique
Wed Sep 14, 2016 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX Cycle 11 complete . . . one more to go
Replies: 10
Views: 1907

Re: FOLFOX Cycle 11 complete . . . one more to go

Belated congratulations on getting disconnected from the bastard pump. Finishing cycle eleven is a huge milestone - only one more to go! Kudos to you. Also, remember that it's ok to feel down and weepy (at least that's what I told myself when I was having treatment and some days were a little harder...
by Monique
Sat Sep 10, 2016 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ten years after Stage III diagnosis
Replies: 12
Views: 2670

Ten years after Stage III diagnosis

Hello, I’ve been hesitant to post as I’ve lost some good friends to cancer and I suppose I have ‘survivor’s guilt’. My survival, in my mind, is simply a matter of chance rather than courage, a fighting spirit, faith, or a totally changed lifestyle. That said, when I was first diagnosed with cancer I...
by Monique
Tue Oct 07, 2014 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constant diarrhea, flatulence and stomachache
Replies: 14
Views: 2441

Re: Constant diarrhea, flatulence and stomachache

Hello, I'm sorry to hear that you're in such discomfort, feeling frustrated and depressed. When I was undergoing chemo I suffered terribly from diarrhoea and yes, it was awful. Eight years later, I still suffer from irritable bowels (likely due to the fact that I had 18 inches of my colon removed). ...
by Monique
Thu Aug 22, 2013 1:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help - unique situation
Replies: 56
Views: 8040

Re: Please help - unique situation

I hear you. I hated the fucking 5-FU pump too. Really, really hated it. What I ended up doing was buying a water bottle holder, something like this: http://www.chinatraderonline.com/wholesale-suppliers/Water-bottle-holder/ The water bottle holder, which I wore around my waist and covered with a shir...
by Monique
Thu Oct 18, 2012 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Recruit
Replies: 18
Views: 2323

Re: New Recruit

Hi Charlie, I can totally understand how your diagnosis has rattled you. I was diagnosed six years ago with a T4 tumour and two of my lymph nodes were involved. I underwent surgery (had 18 inches of my colon removed) and followed up with seven months of chemo (I had to postpone my chemo twice due to...
by Monique
Tue Aug 23, 2011 11:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: dose reduction
Replies: 3
Views: 468

Re: dose reduction

Hi Jenny, From what I've read and heard, I don't think that it's uncommon to have one's dose reduced. Due to blood cell and platelet counts, I had my dose reduced twice (treatments were also postponed twice). If memory serves, I had both the oxaliplatin and the 5-FU reduced by a total of 30%. When I...
by Monique
Sat Aug 13, 2011 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Experiences of those who are using Avastin as Maintenance
Replies: 6
Views: 1132

Re: Experiences of those who are using Avastin as Maintenanc

Hello, I'm sorry to meet you under these circumstances, but I'm happy that you found this forum (it's a wonderful resource!). I don't have the answers to many of your questions (however, I think that the outcomes of various treatments varies widely from person to person), but I'm bumping this post i...
by Monique
Sat Aug 13, 2011 10:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long term survival
Replies: 9
Views: 1899

Re: Long term survival

Hello, welcome to the forum, though I'm very sorry to hear about your Mum. I have a friend who was diagnosed with colon cancer a month after I was. He was classified as stage IV as he had metastasis to his liver. As with your mother, his liver was operated on. Due to a bad reaction he was only able ...
by Monique
Sat Aug 13, 2011 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New, recently diagnosed and a million questions
Replies: 38
Views: 5435

Re: New, recently diagnosed and a million questions

I know you didn't mean to upset me. I'm just scared in general and ultra sensitive about everything right now. I can't talk to anyone about it face to face without falling apart. I've never been one to cry over every little thing, so it is very embarassing. It has been a frustrating week. Still hav...
by Monique
Fri Aug 12, 2011 11:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: do your pets help?
Replies: 26
Views: 1913

Re: do your pets help?

Great post. And, to answer to your question, Good god, yes! My cat companions made me feel "normal" when I was undergoing treatment. Frankly, they didn't take it easy on me, and were just as demanding as ever. No pussy-footing around. Oddly, I found a lot of comfort in their behaviour, as,...
by Monique
Thu Aug 11, 2011 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Platelet Count
Replies: 4
Views: 934

Re: Low Platelet Count

Today my seventh chemo session was postponed because my platelet count was down a hundred points from my last treatment. Speculation is that the Oxalyplatin dose needs adjusting. During my last treatment I developed a severe itch that was quelled with Benadryl. Could this reaction mean that the Oxa...

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