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by AlexandraZ
Thu Oct 17, 2019 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 242
Views: 38144

Re: My CRC with liver mets journey

Wow wow wow, I am so happy for you!!!! :D :D :D

You and Julie are the main reasons Jesper and I are going to MSK, I'm just wrapping up translating all his medical stuff from Danish to English.

Congratulations!!!!!
by AlexandraZ
Wed Oct 09, 2019 7:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long flights with cancer/chemo
Replies: 15
Views: 1302

Re: Long flights with cancer/chemo

Thanks everyone! We had a good flight and arrived safely in Florida. Jesper wore compression socks, walked up and down the stairs of the jumbo jet every hour, and I wiped down his seat and all the things around him. He is gaining weight and is starting to look like himself again, which makes us both...
by AlexandraZ
Fri Oct 04, 2019 5:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix side effects
Replies: 13
Views: 1289

Re: Vectibix side effects

Zod wrote:
I did some googling which is usually a bad idea

"Google is a good mortician but a bad doctor." - FWIW


Absolutely!! Google is the worst and the most pessimistic doctor on the planet.
by AlexandraZ
Fri Oct 04, 2019 1:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long flights with cancer/chemo
Replies: 15
Views: 1302

Re: Long flights with cancer/chemo

Thanks so much guys! I was planning to get compression socks and now I definitely will. Disinfecting the area around his seat is a good idea too! Honestly probably a good idea for anyone, I wonder if those seats EVER get properly cleaned... I'll double check with the hospital too. His blood work was...
by AlexandraZ
Thu Oct 03, 2019 5:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long flights with cancer/chemo
Replies: 15
Views: 1302

Long flights with cancer/chemo

Hi everyone, My boyfriend and I are flying to the US next week and then to Mexico. He was on FOLFIRI for 6 months and it's been almost a month since his last infusion. I've heard that with cancer and/or following chemo, there are increased risk factors for e.g. blood clots. I don't want to worry unn...
by AlexandraZ
Thu Oct 03, 2019 3:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 242
Views: 38144

Re: My CRC with liver mets journey

I understand the Vectibix blues so well!!! Although I haven't had it myself, so maybe I shouldn't say that. But just seeing my bf go through that crap is awful so I can't imagine what you're going through! You are amazing though, I so admire your positivity and drive. It's only natural that there ar...
by AlexandraZ
Wed Oct 02, 2019 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any riders out there?
Replies: 11
Views: 1101

Re: Any riders out there?

Woooooo! That's a nice bike. Enjoy riding through the Melbourne spring!
by AlexandraZ
Sat Sep 28, 2019 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix side effects
Replies: 13
Views: 1289

Re: Vectibix side effects

My rash lasted quite a while after finishing that part of my chemo. Give it another week or two and he will start feeling and looking better. I had mouth sores for about 2 months after, but can't quite remember how long until the skin rash started going away. Dave Damn, I really hope some day cance...
by AlexandraZ
Sat Sep 28, 2019 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix side effects
Replies: 13
Views: 1289

Re: Vectibix side effects

It took six or seven weeks off chemo before my skin was approaching normal post-Vectibix. I would think he would start to see improvement in another week or two, but it does take a LONG time to get the impact of the stuff out of your system. It is truly the worst drug, I feel for him. My latest sid...
by AlexandraZ
Fri Sep 27, 2019 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix side effects
Replies: 13
Views: 1289

Re: Vectibix side effects

Is there anyone whose Vectibix side effects took forever to clear up once getting off it? Jesper had his last FOLFIRI + Vectibix over three weeks ago, and his skin has never been worse. He has massive red rings around his eyes and the skin is constantly leaking/oozing some kind of pus or lymphatic f...
by AlexandraZ
Fri Sep 27, 2019 12:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any riders out there?
Replies: 11
Views: 1101

Re: Any riders out there?

Yeah I think there would be some great roads in Victoria! Jesper's bike is a Suzuki GSXR 1000. He definitely enjoys having it and doing something that makes him happy!
by AlexandraZ
Fri Sep 27, 2019 3:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any riders out there?
Replies: 11
Views: 1101

Re: Any riders out there?

Jesper rides a sportbike too! Shortly after his diagnosis in the spring, he sold his old one (also a sportbike) and bought a new (used) one. It definitely cheers him up! Between his Vectibix rash and other side effects, he hasn't been out on it too often, but it happens once in a while. It makes him...
by AlexandraZ
Wed Sep 25, 2019 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sending private messages help
Replies: 3
Views: 320

Re: Sending private messages help

The same thing happened to me! After a while the message moved itself from outbox to "sent", without me doing anything else. I did get your message!
by AlexandraZ
Sun Sep 22, 2019 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 142
Views: 16281

Re: Quick intro -- diagnosed Friday

In my experience some side effects get better, others get worse. The first round is definitely the scariest as it's just a brand new thing to wrap your head around and you don't know what to expect fully. Then it becomes more routine. Other effects stack up cumulatively as a result of combined toxic...
by AlexandraZ
Thu Sep 19, 2019 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone taking artemisinin?
Replies: 5
Views: 522

Re: Anyone taking artemisinin?

Hi TinaFish! My boyfriend Jesper takes artemisinin, two capsules twice a day. I don't have the jar here and I don't remember how strong they are, sorry! He takes them during the weekdays and then has two days off in the weekend. He hasn't experienced any adverse effects from them, no diarrhea or any...

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