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by AlexandraZ
Thu Dec 12, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri and Nausea
Replies: 12
Views: 923

Re: Folfiri and Nausea

My boyfriend had a harder time on FOLFIRI too. He had quite a bit of nausea and heartburn and just looked sick as a dog for the first few days. His skin also turned a sickly pale grayish color and it smelled like chemicals. FOLFOX is a lot less noticeable. I even had him check to make sure the 5-FU ...
by AlexandraZ
Wed Dec 11, 2019 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 16
Views: 1596

Re: Baseline CEA levels

It seems to me that what matters, if CEA levels are good indicators for you, is the trend, not single values. But even so. I was so worried this morning when we went to the onc to hear about last Friday's control scan. My husband's levels, after bottoming out at 3.2 in July, have since slowly but r...
by AlexandraZ
Mon Dec 09, 2019 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is radiation/chemo treatment actually like?
Replies: 17
Views: 1071

Re: What is radiation/chemo treatment actually like?

Are you doing chemo or radiation or both? I think that would be the first thing to find out. I don't know much about radiation as my boyfriend has only had chemo. Some people get chemo in pills, others get it intravenously. My boyfriend has a little port that is semi-permanently placed under his ski...
by AlexandraZ
Sat Dec 07, 2019 2:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer Research Project
Replies: 13
Views: 994

Re: Colon Cancer Research Project

From Denmark here! I'd be glad to help. (although it is my boyfriend who has the diagnosis. If you want to communicate directly with him that's ok too)
by AlexandraZ
Thu Dec 05, 2019 4:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 16
Views: 1596

Re: Baseline CEA levels

For what it's worth, in US for me at least units are ng/ml (two cancer centers, both in California). By happenstance, I had CEA done twice in 2 days at different labs. One was 1.6 and the other was 3.4. Values evidently, at least for low values, can vary by a factor of 2 is appears. Oh thanks, yeah...
by AlexandraZ
Thu Dec 05, 2019 4:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results are back and scared :(
Replies: 8
Views: 1240

Re: Results are back and scared :(

I agree with Gina - they don't mess around when it's cancer. They would most likely tell you right away. We're in Denmark, but my boyfriend had an ultrasound on his liver because of liver pains, and right away the doctor told him his liver wasn't right. The next day my boyfriend's regular doctor cal...
by AlexandraZ
Fri Nov 29, 2019 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 52
Views: 2475

Re: 1st bad scanning... advice please!!

Identical reaction —a couple of days after first infusion, cramps then fever, 39.8. We couldn’t bring fever down even after paracetamol and cold towels, so he was admitted to hospital at 2am. They took stool, urine and blood. The doctor on the night shift gave him antibiotics. We met our oncologist...
by AlexandraZ
Fri Nov 29, 2019 6:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 52
Views: 2475

Re: 1st bad scanning... advice please!!

So last night Jesper started having bad stomach cramps and he had a fever, so we had to go in to the hospital. His fever kept rising (to 39.5) so they kept him overnight, and he was up all night with diarrhea and also threw up once. His CRP last night was 12 (just above the upper limit of 10) and th...
by AlexandraZ
Thu Nov 28, 2019 2:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My hair is falling out.
Replies: 30
Views: 3299

Re: My hair is falling out.

What worked for Jesper when his hair thinned out like crazy in the summer was saltwater spray and blowdrying his hair. I know he's a guy so it's not the same, but it definitely gave his hair more volume and texture and hid his scalp. He'd just spray the saltwater in his hair after washing it and the...
by AlexandraZ
Thu Nov 28, 2019 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhoea only at Night
Replies: 18
Views: 742

Re: Diarrhoea only at Night

Sending you lots of good thoughts Siti! I know the feeling of dreading chemo and its side effects all too well. Jesper has had cramping and diarrhea today too, three days after his first FOLFOX. Nothing like your husband has been going through, though. I gave him a glass of water with a teaspoon of ...
by AlexandraZ
Thu Nov 28, 2019 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did my first at home disconnect today.
Replies: 3
Views: 344

Re: Did my first at home disconnect today.

Yay, you're almost done!! So happy for you, and only slightly jealous. Lol! Jesper always disconnects his own 5FU pump and we live 15 minutes away from the hospital. I can't believe you had to drive all that way just to get it disconnected every time! I understand the hair issue. I don't think I'd d...
by AlexandraZ
Thu Nov 28, 2019 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effects with chemo
Replies: 11
Views: 446

Re: Side effects with chemo

My boyfriend had his first oxy infusion three days ago and today he has stomach cramps and diarrhea. He never had anything like this on FOLFIRI. Maybe this is how it goes on oxy? I'm sorry to hear you are dealing with this.
by AlexandraZ
Thu Nov 28, 2019 2:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 43
Views: 3310

Re: Please help, input needed

Sorry that you're going through this! It may not be as bad as you are fearing, though. I know it's hard, but try not to worry too much until you have the results back! If you browse the threads on this forum, you'll find that even if it HAS metastasized, there are so many treatment options, and a lo...
by AlexandraZ
Wed Nov 27, 2019 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 287
Views: 44871

Re: My CRC with liver mets journey

So good to hear an update from you, Gina! Sorry this recovery is taking longer. But man, your body has been through a lot this year! I hope you have lots of cozy plans this Christmas. Honestly, Jesper and I had a pretty cozy time during this last chemo. Christmas movies on Netflix, lots of candles b...
by AlexandraZ
Mon Nov 25, 2019 6:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 52
Views: 2475

Re: 1st bad scanning... advice please!!

Siti wrote:That’s great... I hope folfox kills all the dang cancer! Wishing Jesper a complete response!


Thanks so much Siti! I am definitely hoping for the same!!! xxx

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