Search found 171 matches

Go to advanced search

by AlexandraZ
Mon Mar 16, 2020 4:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We've lost Ben (Pyro70)
Replies: 12
Views: 1527

Re: We've lost Ben (Pyro70)

Oh no, so sorry to hear this. Always so sad to lose a member, especially someone as helpful and active like Pyro70.

I've been thinking about Pyro too. He hasn't been online/active since December. I hope he's ok!
by AlexandraZ
Sat Mar 14, 2020 4:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4838

Re: No more chemo?

Wow, crazy times indeed. I hope you all are coping all right. In a way it feels like we (caregivers and patients) are freaking out LESS than the rest of the population, although we are the ones who actually have something to worry about. It's funny, I feel like the worst thing has already happened s...
by AlexandraZ
Thu Mar 12, 2020 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4838

Re: No more chemo?

Thinking of you . It sure is new territory with this virus . Hope you get home safely and keep chemo going till this settles . Stay safe , Stu Yeah it's pretty crazy. Like a dystopian science fiction novel. Cancer or corona virus is manageable. But both?? :shock: Hoping we don't get stuck in Denmar...
by AlexandraZ
Thu Mar 12, 2020 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4838

Re: No more chemo?

And just as we were planning our trip to MSK, I got an email from them saying they are not accepting International patients due to the corona virus. Such bad timing! Hopefully it blows over soon. I was thinking about you and the travel ban from Europe... Just what you needed :( I knoooowwww :shock:...
by AlexandraZ
Thu Mar 12, 2020 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4838

Re: No more chemo?

I thought of you immediate when I read the news this morning about the travel ban to the US. Such terrible timing! There’s a major panic here in the Netherlands with people stocking up after the government announced a semi lockdown this afternoon. I hope you guys are prepared for it (on top of all ...
by AlexandraZ
Thu Mar 12, 2020 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lukewarm to positive?
Replies: 7
Views: 408

Re: Lukewarm to positive?

Amazing news!! I've heard the CEA often rises after surgery due to inflammation in the body, so it's great news that his is coming down!
by AlexandraZ
Thu Mar 12, 2020 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4838

Re: No more chemo?

A little update from us - Jesper is back on FOLFIRI and we are currently in Budapest for some oxygen treatment. (We come here once in a while - seems to at least alleviate some of his side effects). FOLFIRI definitely hits him harder than FOLFOX did. Hopefully that means it hits his cancer harder to...
by AlexandraZ
Tue Mar 10, 2020 4:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 1287

Re: Me again, my fave topic: CEA

If it's in the normal range, I wouldn't worry at ALL. Unless it was SUPER stable in a lower range and then suddenly shot up. Just like any other blood test, there is a normal RANGE, which means that anywhere within those limits is normal and not a cause for concern. Unless there was an obvious trend...
by AlexandraZ
Thu Feb 27, 2020 6:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 69
Views: 5787

Re: Cea on the rise

I just wanted to say I feel for you! I know how scary it is when the CEA is just rising and things are looking scary. But you still have so many options, so that's a big positive. You are a great wife and I am sure he appreciates everything you do. I'm not trying to give you advice as I don't know a...
by AlexandraZ
Wed Feb 26, 2020 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4838

Re: No more chemo?

Hey Alex, Sorry to hear about the latest mood there. If it’s any consolation, that’s almost exactly the attitude I experienced too as a stage IV patient in a European public health system. I know it’s hard not to let it get you down, but just hang onto the fact that he’s currently fit and well, and...
by AlexandraZ
Tue Feb 25, 2020 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4838

Re: No more chemo?

We FINALLY got an answer from MSK! Jesper is approved for an on-site appointment. Now we just need to figure out how to fit it in time-wise. I feel like he's been off chemo long enough! I'd rather give him a bit of FOLFIRI and then do the second opinion during a chemo break. Yay! I bet you're glad ...
by AlexandraZ
Tue Feb 25, 2020 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4838

Re: No more chemo?

Hi Alexandra, I know the scan results weren't exactly what you were looking for but a stable scan is a good scan. I started off with FOLFOX and had disease progression so was switched to FOLFIRI. I am having more issues now with side effects so my conversations with my oncologist revolve around man...
by AlexandraZ
Sun Feb 23, 2020 4:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFIRI: The good, the bad, and the ugly truths
Replies: 8
Views: 568

Re: FOLFIRI: The good, the bad, and the ugly truths

Thanks for the feedback so far. DH is eager(as one can be in this situation) to get started. Side effects aside he's in to beat it! That's great! You can do it! I agree with Rob about the fluids. Jesper drank about 4 liters a day while on FOLFIRI, he was drinking all the time. Jesper never had trou...
by AlexandraZ
Sun Feb 23, 2020 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFIRI: The good, the bad, and the ugly truths
Replies: 8
Views: 568

Re: FOLFIRI: The good, the bad, and the ugly truths

For my boyfriend, FOLFIRI was rougher. But of course it's different from person to person. On FOLFIRI he had bad nausea and severe malaise. On FOLFOX he felt bad too, but never quite as intensely as he did on FOLFIRI. However, he got sick with the flu and various fevers while on FOLFOX, and that nev...
by AlexandraZ
Sat Feb 22, 2020 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4838

Re: No more chemo?

And yes my husband was one for whom oxaliplatin didn’t work (as xelox not folfox) but who responded very well to Folfiri. He’s on chemo break now to recover from surgery but his onc will get him back on Folfiri if his CEA value is high when he gets checked mid March so I’d think it could be started...

Go to advanced search