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by Marie25
Thu Sep 26, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vision & chemo
Replies: 6
Views: 832

Vision & chemo

I see that blurry vision can be a side effect from the steroids or chemo. Has any one had it only happen in just 1 eye? (It went away after about 2/3 days) The oncologist says it should happen in both eyes and because of that, if it happens again she wants a scan.
by Marie25
Wed Sep 11, 2019 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox7 vs folfox6
Replies: 1
Views: 314

Folfox7 vs folfox6

For his first infusion, he got folfox7 at Mayo Clinic. Now he just went for his 2nd infusion locally and they gave him folfox6. From what I am reading it is just a small dosage difference between the ox (130 vs 100) and lv (400 vs 200) the 5fu is still 2400. He is going to ask why they gave him a di...
by Marie25
Fri Sep 06, 2019 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effect question.
Replies: 7
Views: 672

Side effect question.

When taking folfox is being cold a side effect? I know about the cold sensitivity in mouth, hands and feet. But was wondering if it also makes your whole body cold? Hopefully he isn't fighting an infection. It's only been 1 week since his first round. :cry:
by Marie25
Tue Sep 03, 2019 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal pain? From the tumor?
Replies: 6
Views: 608

Re: Rectal pain? From the tumor?

Is it pain from pushing when going to the bathroom or is it just pain randomly through the day? I definitely had the former and maybe the latter. I was rather beside myself bugging the medical staff with the comment that it seemed to be getting bigger and bigger. They didn't offer any solutions to ...
by Marie25
Tue Sep 03, 2019 10:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal pain? From the tumor?
Replies: 6
Views: 608

Rectal pain? From the tumor?

DH has recently been having rectal pain which we assume is from the tumor. He is trying to manage it with meds and rest. He told the doctors and they didn't say much. Does anyone have advice on what can help manage the pain? Or know if it means anything, like is the tumor growing/spreading? His next...
by Marie25
Wed Aug 28, 2019 2:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1073

Re: Deciding between treatments?

This is a tough call, and there isn’t really a “wrong” answer. I believe the evidence suggests long-term oncological outcomes are similar between the two. I ended up deciding on long-course radiation for a few reasons: - I had a fairly “bulky” primary - a T3b tumour, about 3.5cm. My rad onc believe...
by Marie25
Wed Aug 28, 2019 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1073

Re: Deciding between treatments?

I had 4 rounds of Folfox with Vectibix then short course. My tumor was less than 1 cm from the anal verge. I got the same message as your husband. very likely APR but would see when they got in there. I am convinced that it all depends on the surgeon. I had THE guy at Mayo Rochester who works on lo...
by Marie25
Wed Aug 28, 2019 12:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1073

Re: Deciding between treatments?

One potential benefit to short course is not dealing with any side effects. My mom still says her 5 days of short course were the easiest part of her whole journey. (Btw, she did not need a permanent colostomy with short course—did they say why that would be the case in your situation?) Thank you a...
by Marie25
Tue Aug 27, 2019 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1073

Re: Deciding between treatments?

Did they mention distance from the anal verge? That seems to be the most critical factor. I don't have rectal cancer, but I've observed that people almost always report their doctors saying "they won't know until they re in there" and it seems as if an awful lot of them have permanent col...
by Marie25
Mon Aug 26, 2019 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just DX. looking for info.
Replies: 8
Views: 846

Re: Just DX. looking for info.

Thanks everyone. So far the suregon and radiation oncologist said the cruise should be fine but to also check with the chemo onc.!
by Marie25
Mon Aug 26, 2019 5:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1073

Deciding between treatments?

Long term radiation vs short term radiation (both with chemo) . I guess these are both called TNT. They said long term(5 weeks) is to shrink the tumor, then have surgery about 2 months later. The short term (1 week) is to kill/stop growth and surgery happens immediately following that. With the shor...
by Marie25
Thu Aug 22, 2019 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just DX. looking for info.
Replies: 8
Views: 846

Just DX. looking for info.

My husband was just diagnosed in late June. We made an appt at Mayo for the next week. He had more testing done there. We have also spoke to the surgeon about 2 weeks ago and now just waiting to get to the oncologists on 8/26 & 8/28 (because they had no availability till then) I am hoping he won...

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