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by Marie25
Fri Dec 06, 2019 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery stories please! APR
Replies: 2
Views: 600

Surgery stories please! APR

Hubby is likely going to get his APR surgery in the end of January. 3 months ago the surgeon said it would be about a 2 to 3 hour surgery. Now we just talked to him again and he said it will be 4 to 5 hours. Is this normal? I am pretty upset about this and very worried. Is this considered a "sa...
by Marie25
Fri Dec 06, 2019 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 13
Views: 965

Re: 7 Year cancerversary

Awesome news!!! :D
by Marie25
Fri Dec 06, 2019 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 1552

Re: 8 year cancerversary

Awesome. Congrats!! And congrats on your family as well :D
by Marie25
Tue Nov 12, 2019 9:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 411

Re: HELP! suspended treatment (nephrology)

natelaugh wrote:Have you try to ask to use only 5FU without oxaliplatin? My dad has kidney issues so nurse advise him to drink more water before blood test.

Nate.



We will ask about doing that. Thank you!
by Marie25
Tue Nov 12, 2019 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 411

Re: HELP! suspended treatment (nephrology)

Have they mentioned dialysis? In my experience as a nurse, stage 4 kidney disease requires dialysis. They may not be able to resume chemo until dialysis is begun. Nope, his nephrologist says dialysis is not needed untill stage 5, when the function is around 10%. he is in the high 20s. Also we would...
by Marie25
Mon Nov 11, 2019 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 411

HELP! suspended treatment (nephrology)

DH was scheduled for his 6th cycle today. Got a call from the local oncologist and between her and his nephrologist they have "suspended treatment untill further notice" In the meantime I know he will be enjoying his side effect free days but really hope it isn't put off longer than a week...
by Marie25
Mon Nov 04, 2019 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 721

Re: 3 month scan ? What to expect. (Rectal)

Marie25, We hope for good results for your husband. I also have never heard of FOLFOX first. Surgery seems to be the standard. My follow-up was colonoscopy. The PET scan I had was a year after my surgery and treatments. There were a number of people here on TNT trials in 2018. Correct and based on ...
by Marie25
Sat Nov 02, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 721

Re: 3 month scan ? What to expect. (Rectal)

Hi Marie, What sort of scan is he having? I had good shrinkage of all my lesions after 4 cycles (8 weeks) of FOLFOX (about 30-40% reduction, so that was encouraging. One thing to consider however is that the rectal area doesn’t always image very well on CT, so don’t be too disappointed if they don’...
by Marie25
Fri Nov 01, 2019 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 721

Re: 3 month scan ? What to expect. (Rectal)

Are CEA levels good markers for your husband, and does he get them with each infusion? They are for mine, and the big CEA drop early in his Folfiri treatment was mirrored by a significant decrease in tumor size. It's not the same as getting actual shrinkage measurements but it gives you something i...
by Marie25
Fri Nov 01, 2019 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 721

Re: 3 month scan ? What to expect. (Rectal)

My first scan showed shrinkage. It's hard to stay positive, I know. I believe with all my heart that the caregiver has the hardest job. I don't know how my husband does it, and I'm more thankful to him than I could possibly express. One thing that kept me going during some dark periods was his insi...
by Marie25
Fri Nov 01, 2019 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 721

3 month scan ? What to expect. (Rectal)

What were your results like after 3 months folfox for rectal cancer? DH scan is in one month and I am starting to worry. I am hoping, praying etc that the scans are good. Hopefully this folfox does it's job because the side effects aren't fun for him. Feel free to share your 3 month scan results and...
by Marie25
Thu Sep 26, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vision & chemo
Replies: 6
Views: 959

Vision & chemo

I see that blurry vision can be a side effect from the steroids or chemo. Has any one had it only happen in just 1 eye? (It went away after about 2/3 days) The oncologist says it should happen in both eyes and because of that, if it happens again she wants a scan.
by Marie25
Wed Sep 11, 2019 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox7 vs folfox6
Replies: 1
Views: 371

Folfox7 vs folfox6

For his first infusion, he got folfox7 at Mayo Clinic. Now he just went for his 2nd infusion locally and they gave him folfox6. From what I am reading it is just a small dosage difference between the ox (130 vs 100) and lv (400 vs 200) the 5fu is still 2400. He is going to ask why they gave him a di...
by Marie25
Fri Sep 06, 2019 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effect question.
Replies: 7
Views: 770

Side effect question.

When taking folfox is being cold a side effect? I know about the cold sensitivity in mouth, hands and feet. But was wondering if it also makes your whole body cold? Hopefully he isn't fighting an infection. It's only been 1 week since his first round. :cry:

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