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by Marie25
Thu Jul 09, 2020 9:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 month scan
Replies: 4
Views: 538

Re: Pet scan

Claudine wrote:Hoping for a clear scan, Marie25, keep us posted! The waiting part is the worst!


Came back all clear!
by Marie25
Mon Jul 06, 2020 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 month scans clear
Replies: 21
Views: 2869

Re: 6 month scans clear

Awesome!!!
by Marie25
Mon Jul 06, 2020 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 month scan
Replies: 4
Views: 538

5 month scan

Still waiting on results of husband's 5 month PET scan... he occasionally has the hiccups when he eats or drinks and last night his arms and legs were itchy(first time it happened and it is already gone) . I know these can be signs of liver mets. His pathology from surgery 5 months ago was stage 2 l...
by Marie25
Thu Jun 11, 2020 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence questions
Replies: 2
Views: 817

Recurrence questions

I am worried his cancer is returning. He has his 6 month scan is in 2 weeks and an appointment for results 2 weeks after that. He returned to work (after 10 months off) in late May. This was also the same time he had his 4 month CEA of 0.9. As of yesterday we realized his appetite has slightly decre...
by Marie25
Tue Feb 18, 2020 10:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 1128

Re: HELP! Post surgery pain

Everyone thank you! We just made it back home an hour ago and his pain is gone. He ended up passing some stool and gas and bam no more pain. So he will be taking some milk of magnesium and miralax for awhile to make sure he doesn't get bound up again! I have had so many questions here and I hope one...
by Marie25
Tue Feb 18, 2020 10:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 1128

Re: HELP! Post surgery pain

Hi Marie— I hope your husband is feeling better, figuring out what the issue is. I can share a few experiences from my own situation—I had the same surgery a little over four years ago. I don’t know how long his pain lasted or it’s specifics, but I absolutely recall the jarring, completely out of n...
by Marie25
Tue Feb 18, 2020 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 1128

Re: HELP! Post surgery pain

Thanks everyone. Update....he has a permanent colostomy so i don't think it would be a leak anywhere. No fever but has also been taking tylenol. The pain is kinda in the middle and near where the drain tube was. He is Still in the hospital. Had a CT scan and at first they thought it was diverticulit...
by Marie25
Sun Feb 16, 2020 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 1128

HELP! Post surgery pain

Husband's APR surgery was about 17 days ago. Yesterday he had severe pain in belly area. Oxycodone and tylenol did not relieve it. We are now at our local ER and they are refusing to look at him and want to send him by ambulance to Mayo Clinic (6 hours away). We are going to drive ourselves in a few...
by Marie25
Tue Jan 14, 2020 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight
Replies: 5
Views: 835

Re: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight

Oh sorry I missed that it was your husband in your signature. Is his tumor super low? My mom had short course radiation but got the temp ileo and got it reversed about 3 months later. Yes it's pretty low and possibly invading part of the sphincter muscle. The goal is definitely to cure him s0 some ...
by Marie25
Mon Jan 13, 2020 11:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight
Replies: 5
Views: 835

Re: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight

Hi! Your post caught my eye because your treatment plan seems identical to my mom’s who also had hers at Mayo. Will you be getting a temporary ileo? Who is your surgeon if I may ask? My mom was told she did not need additional chemo beyond the 8 neoadjuvant cycles of Folfox she received before radi...
by Marie25
Mon Jan 13, 2020 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight
Replies: 5
Views: 835

When do you feel back to normal? Surgery soon. NED? Please read Looking for insight

Next week short course radiation begins on Thursday. It is ending the following Wednesday and then surgery is Thursday the 30th. We have 1 more meeting with the colorectal surgeon before the surgery. Any suggestions on what to ask him is appreciated. Surgery is at Mayo Clinic and the surgeon already...
by Marie25
Fri Dec 06, 2019 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery stories please! APR
Replies: 2
Views: 1005

Surgery stories please! APR

Hubby is likely going to get his APR surgery in the end of January. 3 months ago the surgeon said it would be about a 2 to 3 hour surgery. Now we just talked to him again and he said it will be 4 to 5 hours. Is this normal? I am pretty upset about this and very worried. Is this considered a "sa...
by Marie25
Fri Dec 06, 2019 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 3306

Re: 7 Year cancerversary

Awesome news!!! :D
by Marie25
Fri Dec 06, 2019 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 2708

Re: 8 year cancerversary

Awesome. Congrats!! And congrats on your family as well :D
by Marie25
Tue Nov 12, 2019 9:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 1610

Re: HELP! suspended treatment (nephrology)

natelaugh wrote:Have you try to ask to use only 5FU without oxaliplatin? My dad has kidney issues so nurse advise him to drink more water before blood test.

Nate.



We will ask about doing that. Thank you!

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