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by Marie25
Tue Feb 18, 2020 10:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 627

Re: HELP! Post surgery pain

Everyone thank you! We just made it back home an hour ago and his pain is gone. He ended up passing some stool and gas and bam no more pain. So he will be taking some milk of magnesium and miralax for awhile to make sure he doesn't get bound up again! I have had so many questions here and I hope one...
by Marie25
Tue Feb 18, 2020 10:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 627

Re: HELP! Post surgery pain

Hi Marie— I hope your husband is feeling better, figuring out what the issue is. I can share a few experiences from my own situation—I had the same surgery a little over four years ago. I don’t know how long his pain lasted or it’s specifics, but I absolutely recall the jarring, completely out of n...
by Marie25
Tue Feb 18, 2020 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 627

Re: HELP! Post surgery pain

Thanks everyone. Update....he has a permanent colostomy so i don't think it would be a leak anywhere. No fever but has also been taking tylenol. The pain is kinda in the middle and near where the drain tube was. He is Still in the hospital. Had a CT scan and at first they thought it was diverticulit...
by Marie25
Sun Feb 16, 2020 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 627

HELP! Post surgery pain

Husband's APR surgery was about 17 days ago. Yesterday he had severe pain in belly area. Oxycodone and tylenol did not relieve it. We are now at our local ER and they are refusing to look at him and want to send him by ambulance to Mayo Clinic (6 hours away). We are going to drive ourselves in a few...
by Marie25
Tue Jan 14, 2020 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight
Replies: 5
Views: 694

Re: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight

Oh sorry I missed that it was your husband in your signature. Is his tumor super low? My mom had short course radiation but got the temp ileo and got it reversed about 3 months later. Yes it's pretty low and possibly invading part of the sphincter muscle. The goal is definitely to cure him s0 some ...
by Marie25
Mon Jan 13, 2020 11:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight
Replies: 5
Views: 694

Re: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight

Hi! Your post caught my eye because your treatment plan seems identical to my mom’s who also had hers at Mayo. Will you be getting a temporary ileo? Who is your surgeon if I may ask? My mom was told she did not need additional chemo beyond the 8 neoadjuvant cycles of Folfox she received before radi...
by Marie25
Mon Jan 13, 2020 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When do you feel back to normal? Surgery soon. NED? Please read Looking for insight
Replies: 5
Views: 694

When do you feel back to normal? Surgery soon. NED? Please read Looking for insight

Next week short course radiation begins on Thursday. It is ending the following Wednesday and then surgery is Thursday the 30th. We have 1 more meeting with the colorectal surgeon before the surgery. Any suggestions on what to ask him is appreciated. Surgery is at Mayo Clinic and the surgeon already...
by Marie25
Fri Dec 06, 2019 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery stories please! APR
Replies: 2
Views: 902

Surgery stories please! APR

Hubby is likely going to get his APR surgery in the end of January. 3 months ago the surgeon said it would be about a 2 to 3 hour surgery. Now we just talked to him again and he said it will be 4 to 5 hours. Is this normal? I am pretty upset about this and very worried. Is this considered a "sa...
by Marie25
Fri Dec 06, 2019 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 2913

Re: 7 Year cancerversary

Awesome news!!! :D
by Marie25
Fri Dec 06, 2019 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 2430

Re: 8 year cancerversary

Awesome. Congrats!! And congrats on your family as well :D
by Marie25
Tue Nov 12, 2019 9:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 1458

Re: HELP! suspended treatment (nephrology)

natelaugh wrote:Have you try to ask to use only 5FU without oxaliplatin? My dad has kidney issues so nurse advise him to drink more water before blood test.

Nate.



We will ask about doing that. Thank you!
by Marie25
Tue Nov 12, 2019 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 1458

Re: HELP! suspended treatment (nephrology)

Have they mentioned dialysis? In my experience as a nurse, stage 4 kidney disease requires dialysis. They may not be able to resume chemo until dialysis is begun. Nope, his nephrologist says dialysis is not needed untill stage 5, when the function is around 10%. he is in the high 20s. Also we would...
by Marie25
Mon Nov 11, 2019 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 1458

HELP! suspended treatment (nephrology)

DH was scheduled for his 6th cycle today. Got a call from the local oncologist and between her and his nephrologist they have "suspended treatment untill further notice" In the meantime I know he will be enjoying his side effect free days but really hope it isn't put off longer than a week...
by Marie25
Mon Nov 04, 2019 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 1293

Re: 3 month scan ? What to expect. (Rectal)

Marie25, We hope for good results for your husband. I also have never heard of FOLFOX first. Surgery seems to be the standard. My follow-up was colonoscopy. The PET scan I had was a year after my surgery and treatments. There were a number of people here on TNT trials in 2018. Correct and based on ...
by Marie25
Sat Nov 02, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 1293

Re: 3 month scan ? What to expect. (Rectal)

Hi Marie, What sort of scan is he having? I had good shrinkage of all my lesions after 4 cycles (8 weeks) of FOLFOX (about 30-40% reduction, so that was encouraging. One thing to consider however is that the rectal area doesn’t always image very well on CT, so don’t be too disappointed if they don’...

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