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by 4us4
Thu Aug 27, 2020 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Thingy
Replies: 4
Views: 1026

Re: Lung Thingy

In my case, I've had three CTs showing growth in my lung nodules, but they are waiting to biopsy until one reaches 10mm. That does not feel quite right to me, but that seems to be the consensus among my doctors.
by 4us4
Sat Aug 22, 2020 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Monitoring after FolFox
Replies: 3
Views: 598

Re: Monitoring after FolFox

It is weird. I held up, emotionally so well throughout this whole process, but the closer I get to finishing chemo, the more depressed I feel.......Can anyone relate to that? Totally relate to this!!! For me, as long as there a “plan of attack” I felt like i could weather the storm. It was the “no ...
by 4us4
Sat Aug 22, 2020 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to Find a Good Oncologist
Replies: 1
Views: 475

How to Find a Good Oncologist

When I first got diagnosed (1year+ ago) everything happened so quickly I never “shopped around” for an oncologist... I just took the default and She was okay-ish. Anyway, she moved a couple months ago (not worth following) and I got stuck with her replacement (who is not great), but I’ve been stayin...
by 4us4
Mon Aug 03, 2020 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Energy
Replies: 6
Views: 931

Re: Energy

Thanks!!! Yeah, this COVID threw a kink in the plan for child care + preschool ... and now it looks like it’s all closed up in my area again Fall2020. I did a bunch of reading about “Cancer Related Fatigue” and added in more protein (which helped). I might just be one of the ones that struggles with...
by 4us4
Thu Jul 30, 2020 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has Anyone Any Experience With The Joe Tippens Protocol?
Replies: 12
Views: 1686

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

I am trying it... no good results to report yet, but no harm either :)
by 4us4
Thu Jul 30, 2020 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How often do you get scanned after treatment?
Replies: 11
Views: 1284

Re: How often do you get scanned after treatment?

CT every three months for me for the first two years
by 4us4
Thu Jul 30, 2020 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Energy
Replies: 6
Views: 931

Energy

Hey All, My energy is sooooooo looooowwwww. I’m 5-6 months past my last chemo... 8 months past major surgery (cytoreductive & Hipec). I guess I felt like I’d have more pep by now... but I’m not doing well with keeping up with just day to day tasks/chores. I spend the day walking to sit in one sp...
by 4us4
Sun May 03, 2020 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT found small lung nodules
Replies: 6
Views: 1472

Re: CT found small lung nodules

These are all new nodules - so not seen on the baseline one year ago or progress scans (I think I've had 5??). I am getting a new CT in 6w to see if there was growth -- and we will decide an action plan after that. It has been 4 months since my last chemo treatment & 2.5 months since my last sca...
by 4us4
Sat May 02, 2020 7:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT found small lung nodules
Replies: 6
Views: 1472

CT found small lung nodules

So.... my last CT showed 4 new small lung nodules? 4mm, 4mm, 3mm, 2mm--- ug This is AFTER discovering the peritoneum spread (which I hope we wiped out after cytoreductive & hipec). My oncologist said that the probability is that this is evidence of new cancer spread, **BUT** we can't say for sur...
by 4us4
Sun Mar 29, 2020 6:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2weeks post Ileostomy Reversal... 4 months post LAR
Replies: 2
Views: 821

2weeks post Ileostomy Reversal... 4 months post LAR

I had my ileostomy takedown almost 2 weeks ago (had it almost four months). My bowels have been sluggish post surgery. I read and was warned lots about increased/extreme frequency and urgency... but Feel like I’m the opposite. I’m having more stomach cramping & small “unsatisfying” semi-solid BM...
by 4us4
Wed Mar 11, 2020 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal -- What do I pack/prep/plan?
Replies: 5
Views: 985

Re: Ileostomy Reversal -- What do I pack/prep/plan?

Driving down to San Diego now... Thanks for all the help. March 17! St. Patrick's Day bowels, hope they are lucky.
by 4us4
Tue Feb 18, 2020 1:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal -- What do I pack/prep/plan?
Replies: 5
Views: 985

Ileostomy Reversal -- What do I pack/prep/plan?

Hey All, I am 3.5 months past HiPEC/Cytoreductive and heading back down to UC-San Diego for my Ileostomy reversal sometime March 2020. What do I pack? From other posts, I'm planning to pack: -Metamucil (to bulk up / combat diarrhea) -Diaper Ointment (to help burning buns) -Imodium (when diarrhea get...
by 4us4
Fri Feb 14, 2020 1:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 8947

Re: Spread into Peritoneal

nzjez wrote:So all went well enough for my Cytoreductive surgery with HIPEC on the 9th Nov. My surgery was an open surgery (there was mention initially of laparoscopic being possible), and took under 6 hours (including the HIPEC).


Just a note to say I had HIPEC and Cytoreducutive on 11/7/19. Almost twins!
by 4us4
Thu Jan 30, 2020 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eating plan: Keto OR Vegan OR Well-Balanced??
Replies: 5
Views: 1404

Eating plan: Keto OR Vegan OR Well-Balanced??

I just finished my last "scheduled" chemo and plan to do a 5-day detox.......Then I want to jump on to a more solid nutrition/eating plan. Honestly, chemo was way too hard to also ADD IN eating restrictions.... but I'm ready now. I feel like the top two "keep cancer away" theorie...

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