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by Vana3
Wed Feb 26, 2020 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 for 4 years, looking for advice
Replies: 17
Views: 1950

Re: Stage 4 for 4 years, looking for advice

Hi Michelle, I am in the first year of diagnosis and so we have done lots of research but still just on the journey. There is quite a bit of evidence to support watch and wait. I have a similar view towards everything as you do. Would you be willing to share what you did with diet when you said you ...
by Vana3
Fri Feb 07, 2020 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 4758

Re: No more chemo?

I just wanted to second Julie (BTW Juliej you rock)
“Stay strong. Be persistent and keep asking questions”

We have been continually shocked by the differences between doctors.... we also are searching for the ones that think outside the box!
by Vana3
Tue Feb 04, 2020 10:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan tomorrow anxiety is out of control
Replies: 9
Views: 1130

Re: Scan tomorrow

I will be sending you good thoughts tomorrow. Remind yourself to breathe deep
by Vana3
Wed Jan 29, 2020 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years since diagnosed
Replies: 9
Views: 1410

Re: 10 years since diagnosed

Love hearing stories like yours, thank you for sharing the hope!!!
by Vana3
Sun Jan 26, 2020 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching to Xeloda, what to expect?
Replies: 7
Views: 826

Re: Switching to Xeloda, what to expect?

Thank you Andy! I’ve been on it for a week now. My doc has me doing 2 weeks of 3x 500 mg in the morning and evening, then one week off... so a 3 week cycle. I definitely am getting queasy here and there but overall still too early in it to know. When you talked about your finger tips I looked at min...
by Vana3
Fri Jan 24, 2020 2:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching to Xeloda, what to expect?
Replies: 7
Views: 826

Re: Switching to Xeloda, what to expect?

Thank you both for sharing your experiences. Brenda I was pretty relieved to hear your hair grew back. I know it’s vain of me but I just want my hair back. I feel like I am doing my best dealing with everything else but my hair....sigh.. I started the Xeloda 3 days ago and am just feeling off but re...
by Vana3
Wed Jan 22, 2020 1:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LDH blood test
Replies: 7
Views: 776

Re: LDH blood test

Oh wow.... JJH, Thank you so much for the link there is so much info in that conversation it's going to take me some time to look up each thing to understand it! This is exactly what I was looking for! CRguy, thank you as well this is great information! CEA is not a good marker for me either so I th...
by Vana3
Tue Jan 21, 2020 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LDH blood test
Replies: 7
Views: 776

Re: LDH blood test

Thank you JJH, that was helpful! But I still am not sure what it means to me. Do you know why this is good to monitor? All my other were blood levels are good and anemia seems to not be an issue....
by Vana3
Tue Jan 21, 2020 6:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LDH blood test
Replies: 7
Views: 776

LDH blood test

Do any of you know about the LDH blood test? What does it mean? Why do it?
I just had this test done, it was slightly elevated and says Hemolysis present.... what does that mean?
by Vana3
Mon Jan 20, 2020 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching to Xeloda, what to expect?
Replies: 7
Views: 826

Switching to Xeloda, what to expect?

Hi! I am switching to Xeloda and Avastin regime and nervous about it. Can you tell me your experience with it? side effects? I was hoping my hair will grow back!? We are prepping for potential Liver surgery. I have a scan in 8 weeks as long at is continues to show stability we will move forward with...
by Vana3
Sat Jan 18, 2020 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When is it my turn
Replies: 13
Views: 1600

Re: When is it my turn

I know how you feel...
I read others stories and see that this is a process and a fight. That is what I remind myself when I wonder if it will ever be my turn as well. Don’t lose hope! Like Amy said, you are doing great!
by Vana3
Fri Jan 17, 2020 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The last thing I expected at my MSK appt today
Replies: 15
Views: 1978

Re: The last thing I expected at my MSK appt today

Yay! I was thrilled to read your post and so happy for you!
by Vana3
Fri Jan 17, 2020 12:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery tomorrow! Need positive vibes
Replies: 32
Views: 4357

Re: Surgery tomorrow! Need positive vibes

Thinking of you and hoping everything goes well!
by Vana3
Sun Jan 12, 2020 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Liver Spots they missed
Replies: 8
Views: 1182

Re: The Liver Spots they missed

[ Thank you for responding!!!!!! It’s sounds like we are very alike with our cancer. I was originally diagnosed with 3C colon cancer T4N2M0 but really I was stage 4 all along. Are you or have you had a liver resection? I had an amazing surgery in Sept of 2019 with the liver Mets. On the 15th of Jan....
by Vana3
Wed Jan 08, 2020 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member - scared & looking for tips
Replies: 35
Views: 3169

Re: New member - scared & looking for tips

Vana3 - Thanks for taking the time to reply. I see yours was in you cecum as well. Where you having any symptoms? What was your road to being diagnosed? I was not having ANY symptoms. I had just had a wonderful pregnancy, never constipated, full of energy, active..... But once I delivered my babe s...

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