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by Siti
Mon Sep 23, 2019 4:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wife, 10 years NED - stage IV
Replies: 15
Views: 1676

Re: My wife, 10 years NED - stage IV

Thank you for sharing! It’s always nice to hear good news and encouraging to all the stage 4 survivors.
by Siti
Mon Sep 23, 2019 4:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 2450

Re: Oncology and chemo business as a monopoly on treatment

This may be a little psychological venting: Twice so far I have had to battle my oncologists for alternative treatments such as cryo or SBRT consultants. Each onc was a "chemo for life" proponent. This most recent occasion I think I bludgeon my Onc to the point where he said I will suppor...
by Siti
Mon Sep 23, 2019 1:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 33
Views: 2945

Re: Olymphians w/ surgery advice/experiences??

Hi Jep, More knowledge sharing here, I just read about this - Cryotherapy. Essentially they use a probe/ needle to freeze / kill the cancer cells. Minimal invasive. I am not certain if it could work but worth the reading up too. There’s also Immuno-cryotherapy techniques. All the best and thinking o...
by Siti
Fri Sep 20, 2019 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 33
Views: 2945

Re: Olymphians w/ surgery advice/experiences??

My colleague recommended this to me recently — her friend knows the founder. I have yet to write to them but I think if you’re looking for trials this could help guide you to the right direction. I’m not sure if they’re any good but I guess no harm enquiring if you’re interested. https://trial-in.com/
by Siti
Thu Sep 19, 2019 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Guess who was told she's NED??
Replies: 33
Views: 1961

Re: Guess who was told she's NED??

Congratulations Amy! Love your positivity and happy to hear the great news!! I hope my husband would be NED too with a good response to chemo :)
by Siti
Thu Sep 19, 2019 2:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 33
Views: 2945

Re: Olymphians w/ surgery advice/experiences??

Glad to hear there are options and that my small input was able to help a little.

What would the trial entail?

Wishing your husband the best outcome and stay strong, Jep! You’ve been amazing.
by Siti
Thu Sep 12, 2019 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 44
Views: 3119

Re: Those of you in Japan - PSK Mushrooms

the nurses told us that if he wants a giant bar of chocolate during chemo, he should eat it. I understand the aspect of not losing weight, etc, but I don't understand why they actively encourage an unhealthy diet. Surely it is best to nourish the body and keep it strong during aggressive chemo trea...
by Siti
Thu Sep 12, 2019 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 44
Views: 3119

Re: Those of you in Japan - PSK Mushrooms

Hey all, We met with our dietitian and as expected, she kept everything quite vague. She seems to be fine with antioxidants because a nutritious meal is always packed with antioxidants. She’s also fine with blueberries and green tea, as long as we don’t overdo it. So a cup of berries or a few glasse...
by Siti
Wed Sep 11, 2019 5:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enhanced CAR-T cell activity against solid tumors
Replies: 2
Views: 479

Re: Enhanced CAR-T cell activity against solid tumors

And another here:
https://www.hopkinsmedicine.org/news/ne ... r-diseases

I am just wondering if anyone in this forum has done it or enrolled in the trial?
by Siti
Tue Sep 10, 2019 4:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 44
Views: 3119

Re: Those of you in Japan - PSK Mushrooms

I'm reading conflicting information online (not surprising...). Some sites say it's better absorbed when taken with piperine (black pepper) whereas others say that does not help at all and that it's fat that improves absorption. Those of you who take it, what are you doing? Are you using pre-mixed ...
by Siti
Tue Sep 10, 2019 3:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 44
Views: 3119

Re: Those of you in Japan - PSK Mushrooms

I can definitely share the data regarding his diet and supplements! Just take it with a grain of salt, as the opinions vary so widely on this point and I wouldn't want to give you any advice that was harmful. :) As far as diet is concerned, we have switched to 100% (at least 95%) organic. He eats a...
by Siti
Sat Sep 07, 2019 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 44
Views: 3119

Re: Those of you in Japan - PSK Mushrooms

Wow, it's interesting how widely opinions vary on this point. Our oncologist here in Denmark said any supplements were ok, just steer clear of huge doses of antioxidants, as in vitamin IVs, etc. My 28-year-old boyfriend has just had 6 months of FOLFIRI for colon cancer with liver and lung mets and ...
by Siti
Sat Sep 07, 2019 3:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 44
Views: 3119

Re: Those of you in Japan - PSK Mushrooms

Interesting study - thanks for sharing. My naturopath continues to send me curcumin research and my onc (who is also a research lab head) continues to shoot them down. One thing that jumped out about that is they had 28 patients in a 1:2 randomisation, meaning about 9 people in the control group - ...

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