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by Siti
Thu Jul 09, 2020 4:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Numb and numberer
Replies: 5
Views: 544

Re: Numb and numberer

You’re definitely not alone on this. My husband too suffers the same side effects. He’s usually very independent and sometimes he would need assistance to open a water bottle cap. I guess on top of neuropathy, he has hand and foot syndrome too. To adapt, there a few things that he found useful. Acup...
by Siti
Thu Jul 09, 2020 4:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!
Replies: 10
Views: 850

Re: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!

Thank you for sharing and very happy you’re NED. Your fighting spirit is an inspiration!
by Siti
Sun Jun 21, 2020 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still here still clear
Replies: 15
Views: 1957

Re: Still here still clear

Great news! Wishing you continued good health.
by Siti
Tue Jun 16, 2020 8:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 month scans clear
Replies: 21
Views: 2350

Re: 6 month scans clear

Wonderful news!!
by Siti
Thu May 28, 2020 5:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH is back in the hospital :(
Replies: 22
Views: 2966

Re: DH is back in the hospital :(

Hi Jep, So sorry you and your family are going through this. My dad had a major emergency surgery recently. The hospital didn’t allow visitors but they made an exception for 1 visit, daily, as long as the my mom followed all the strict rules such as temperature check, hand sanitising and wore a mask...
by Siti
Thu May 28, 2020 4:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maintenance Chemo Questions
Replies: 5
Views: 1022

Re: Maintenance Chemo Questions

Sorry for the late response, I haven’t been logging on much lately. My husband was on capecitabine pills + Avastin as maintenance chemo. He had bad diarrhoea and cramps in the beginning but was able to control that with Psyllium husk + Loperamide. He subsequently developed really bad hands and feet ...
by Siti
Mon May 25, 2020 5:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years since my Stage IV DX!!!!!
Replies: 21
Views: 2944

Re: Celebrating 10 years since my Stage IV DX!!!!!

Thanks for the update. I really needed to read this. It’s our wedding anniversary today, instead of celebrating, I am hiding in my room crying. This gives us a lot of hope.
by Siti
Tue May 19, 2020 3:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news & update
Replies: 4
Views: 895

Re: Good news & update

Thanks for sharing your post! It’s nice to receive good news amid the bad news that currently surrounds us. Do come back to share your good news even if it’s just checking in once a year :)

Take good care and all the best!
by Siti
Wed Apr 29, 2020 3:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: S-1 Maintenance Chemo
Replies: 2
Views: 876

Re: S-1 Maintenance Chemo

In 2010-2011, I got the impression that S-1 is hard to finely dose and has more side effects, typically dosed with more immune damage for limited periods of treatment time. Oncologists may have gotten better at that over a dozen years since startup. I have not seen experience reported on how much S...
by Siti
Fri Apr 24, 2020 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: S-1 Maintenance Chemo
Replies: 2
Views: 876

S-1 Maintenance Chemo

Hello everyone, Wanted to pick your brain. My husband is still at the hospital getting his Avastin infusion as we speak but with a little surprise our oncologist has suggested to switch capecitabine to S-1 due to hands and feet side effects. He said that it works the same was as capecitabine without...
by Siti
Fri Apr 24, 2020 7:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lukewarm to positive?
Replies: 28
Views: 4539

Re: Lukewarm to positive?

Looks like any other surgery is better than cancer! It’s strange how it has come to this. Sending positivity your way :)
by Siti
Tue Mar 31, 2020 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 2126

Re: Chemo break due to covid-19 outbreak

Zephyr — thank you! I’ve not heard of henna therapy and will certainly ask him if he’d like to try. Last week his feet were so painful he couldn’t walk. So working from home is definitely quite helpful. He too applies cream minimum 3x a day and sometimes cover with gloves and socks. Roadrunner — I j...
by Siti
Tue Mar 31, 2020 4:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 2126

Re: Chemo break due to covid-19 outbreak

The oncologist assured him it would make no difference and would allow his immune system a better chance to repair itself Here too - taking a two week Xeloda break to give my immune system a boost. I'm more afraid of COVID-19 than I am of the cancer. My husband is on the same maintenance chemo. Doe...

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