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by Siti
Wed Jan 15, 2020 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer and coffee????
Replies: 9
Views: 433

Re: Cancer and coffee????

What is the relation between..chemo and coffee?? Is it good to take during the treatment or not? Any tips?? Thanks Milk rather than Coffee may be the thing to avoid . But that's another controversy for you. Why milk? Initially we avoided dairy because of supposed growth hormones etc which we read i...
by Siti
Mon Jan 13, 2020 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The last thing I expected at my MSK appt today
Replies: 11
Views: 531

Re: The last thing I expected at my MSK appt today

Sounds like awesome news! From inoperable liver mets to NED!
I am really happy for you — time to enjoy your lake house since spring is fast approaching.
by Siti
Wed Jan 08, 2020 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 12
Views: 969

Re: In need of metastasis education

I'm glad I located this post. Since my mother was DX I've been wanting to learn and much as possible. She's the complete opposite. She doesn't want to know anything because of her nerves. So far her CT abdomen / pelvis says her liver appears normal. We are just waiting on the chest CT and PET Scan....
by Siti
Wed Jan 08, 2020 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 12
Views: 969

Re: In need of metastasis education

I am sooo so happy to read this news!! I really hope that your husband will have a curative outcome :) I wish that both of you will grow old together, as planned 90 :wink:
by Siti
Wed Jan 08, 2020 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 31
Views: 3844

Re: Neuropathy improvement: individual experience

Sounds logical cause the half life of oxaliplatin is pretty short and this would reduce the reach to hands and feet. I read somewhere in the forum that sucking on ice chips helps too. My husband gets his infusion through the arm and almost immediately has sensitivity to the cold. So I’m not sure if ...
by Siti
Mon Jan 06, 2020 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Toast to 2020!
Replies: 10
Views: 617

Re: A Toast to 2020!

Thanks for being an active member and sharing your story. I read your posts when I found this forum and it gave us a lot of hope. Cheers to an amazing decade ahead, totally cancer free and living life to the fullest!
by Siti
Sun Dec 29, 2019 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 5708

Re: Liver and lung mets

Hi Alexandria, My husband had to postpone his chemo by 1 week on his 3rd infusion too — it was due to severe diarrhoea and high fever. On the bright side, he had a good CT scan after his 3rd infusion so I guess 1 week didn’t impact the results negatively, but quite the opposite. His platelets have b...
by Siti
Sat Dec 21, 2019 5:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 5609

Re: Para-aortic node recurrence

Thank you everyone for your feedback. MetastaticEquilibria — you’re spot on. He said he wants to keep oxaliplatin for the future since it worked so well on him. And indeed on our first meeting, he says that we need to trust him. He continued by saying that if we can’t trust, then we should change do...
by Siti
Wed Dec 18, 2019 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 5609

Re: Para-aortic node recurrence

Hey everyone, Sorry it's me again -- so our oncologist insisted that a PET scan is not necessary at this stage (despite persistent persuasion). He says that even if there's still activity, the treatment remains the same, because he says that continuing Oxaliplatin would result in severe/permanent ne...
by Siti
Tue Dec 17, 2019 5:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear CT results!
Replies: 19
Views: 2070

Re: Clear CT results!

How about asking for a PET scan to find if there’s any activity?
by Siti
Sun Dec 15, 2019 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 5609

Re: Para-aortic node recurrence

Don't forget that part of post diagnosis survival, that is LIVING a purposeful LIFE! Every day is an opportunity to make a good memory for all around us. Merry Christmas and a blessed New Year! WS You’re absolutely right. I thank god for every extra day I have with my husband and we try to live lif...
by Siti
Sun Dec 15, 2019 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 5609

Re: Para-aortic node recurrence

Thank you so so much for everyone’s feedback :) I think everyone here concur with a PET scan since his last one was 5 months ago. Our oncologist has proposed to drop Oxi after the 6th cycle and go on maintenance (Capecitabine+Avastin). I think we need to be extra vigilant and ensure there’s no activ...
by Siti
Tue Dec 10, 2019 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 5609

Re: Para-aortic node recurrence

Hi Siti, My advice (as always not a dr) is that if they can be surgically removed, then go for the surgery. You are correct that in most studies (so few of them out there) that the only real long term success has been with PALND. Often times surgery is too risky but if it can be successfully done t...
by Siti
Mon Dec 09, 2019 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 5609

Re: Para-aortic node recurrence

Bumping this thread back up, hoping to learn from all of you. How’s everyone doing? I really hope all of you are well :) A bit of a background on my husband’s diagnosis: CT scan revealed a cluster of swollen lymph nodes along the Para Aorta. The subsequent PET-CT scan done before surgery revealed a ...
by Siti
Mon Dec 09, 2019 8:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 3556

Re: Still at the hospital :(

I don’t know what else to say but sending positive vibes your way. I hope he will recover ASAP!

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