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by Siti
Wed Sep 16, 2020 12:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 40
Views: 7037

Re: Stg 4 para aortic and Iliac Lymph Nodes

Hi Siti, Was about to ask you how are you handling Teysuno? I was offered this drug some months ago after my lung VATS surgery but I was told by my second opinion it was not necessary. I was starting a new job then so I didn't take it. How does it work out for you? Lovelife My husband suffered from...
by Siti
Tue Sep 15, 2020 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 40
Views: 7037

Re: Stg 4 para aortic and Iliac Lymph Nodes

I’m in recovery from surgery today. The PET scan just before showed the maintenance chemo had held me stable For three months. The surgeon said it went well and they removed a lot of nodes. I was reading up on surgical options for lymph nodes and found this example of a patient with multiple lymph ...
by Siti
Tue Sep 15, 2020 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 21
Views: 1531

Re: To my CC family

So so sad to hear the news. I am so sorry. I sincerely wish I could give you a hug. Sending you and your family lots of strength during this very difficult time.
by Siti
Sat Aug 29, 2020 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Black Panther Actor Dead at 43
Replies: 14
Views: 1831

Re: Black Panther Actor Dead at 43

I was really affected by the news, so young...how unfair to him and all who loved him. Devastating.
by Siti
Sat Aug 29, 2020 12:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3741

Re: Blood clots and low oxygen and hospice OH MY

I hate this disease. It not only takes away our loved ones but destroys everyone around it. I wish we could all do something to take away the pain and honestly, even a million dollars won’t help. I hope you and your family would be able to find peace, after all, I am sure that’s what your husband wo...
by Siti
Fri Aug 28, 2020 11:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Strange question for the group
Replies: 5
Views: 593

Re: Strange question for the group

Not a strange question at all, it’s very sweet :) I agree with JulieJ, the best gift to her is being alive and to grow old together, just celebrating every moment you have when the opportunity allows. Personally as a caregiver, it’s the small things that count, not just one big gift. Just the fact t...
by Siti
Sun Aug 23, 2020 5:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel Issues
Replies: 3
Views: 1425

Re: Bowel Issues

As CRguy suggested, try to get the colonoscopy done ASAP! My husband had to wait 6 weeks before he could get scheduled for a colonoscopy and another 9 days for the results to be out! I have regretted every moment of it, thinking perhaps he would have been stage 3 instead of 4 if we didn’t have to wa...
by Siti
Sun Aug 23, 2020 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PSK supplements
Replies: 10
Views: 1503

Re: PSK supplements

Thanks for the heads up! We have a stock because the first batch from mushroom science went “missing” on transit and I had to reorder the another batch. Then suddenly the day after I ordered it arrived! :lol: Anyway the expiry is in a year so I think there’s sufficient for now :)
by Siti
Fri Aug 14, 2020 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin - painful skin after two years
Replies: 5
Views: 1192

Re: Avastin - painful skin after two years

Hi jp81, Sorry for not reverting sooner — I just logged on. My husband had the same side effects till the point he was unable to walk as his feet were burning and peeling. His oncologist switched Xeloda to Teysuno (S-1), a Japanese drug developed in 1999 and widely used in Asia but only approved in ...
by Siti
Tue Aug 04, 2020 7:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband is working !!! and starting Xeloda.....
Replies: 6
Views: 646

Re: Husband is working !!! and starting Xeloda.....

It’s great that your husband started working again :) My husband was on CAPOX and then went on maintenance by dropping Ox and had a 30% dose reduction of capecitabine (he was previously taking 4300mg, but later taking 3000mg daily — 2 weeks on, 1 week off). Avastin every 3 weeks. His biggest side ef...
by Siti
Mon Jul 27, 2020 7:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I stand up to use the word cure(d)....
Replies: 51
Views: 11401

Re: I stand up to use the word cure(d)....

But I can tell when I eat red meat, I feel I have a lot more energy. I try to eat it twice a week but sometimes forget. I try and remember to put butter on my bread, but I forget. But I do like garlic toast, so I try and eat more of that. Probably not the answer you wanted to hear, but I have alway...
by Siti
Thu Jul 23, 2020 9:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 16 year birthday/cancerversary to me.
Replies: 12
Views: 962

Re: Happy 16 year birthday/cancerversary to me.

I remember discovering this forum for the first time, just a day or two after my husband’s surgery. It was late into the night, I couldn’t sleep but your posts it gave me so much hope. I couldn’t wait to tell my husband that there are Stage 4 survivors! Thank you for coming back and giving us inspir...
by Siti
Fri Jul 17, 2020 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PSK
Replies: 6
Views: 720

Re: PSK

Yeah you’re right... come to think of it, we haven’t gone out much at all since my husband’s diagnosis 1 year ago. We only had a short break in February where we spent a week on an island in the sun and I spent some time with my family back home. The good news is, I am very pleased to share that his...
by Siti
Thu Jul 16, 2020 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PSK
Replies: 6
Views: 720

Re: PSK

Phew! Glad you managed to get some :)) We are okay, it’s rather lax in The Netherlands, no mask no social distancing. To be on the safe side, we haven’t hung out with anyone since early March but trying to keep our spirits up. My husband’s CT scan results are out tomorrow. Praying for continued good...
by Siti
Thu Jul 16, 2020 7:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PSK
Replies: 6
Views: 720

Re: PSK

Mushroom Science — https://mushroomscience.com/

It took 1 month to arrive as it was stuck in customs in the Netherlands but I’m sure you won’t be any issues in the US.

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