Search found 56 matches

Go to advanced search

by annieliz
Tue Oct 31, 2023 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back on Halloween 2013......
Replies: 2
Views: 1763

Re: Back on Halloween 2013......

Congratulations on 10 years. And thank you for taking the time to document your journey in your blog. It’s truly a gift and reading it helped me so much.
Cheers!
Anne
by annieliz
Tue Mar 15, 2022 8:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 837
Views: 405420

Re: For Stage III's: NED for how long now?

Also posting to encourage others - NED as of scan on 3/4/22, so that's 2 years for me.
Thankful for all of the help I found from the members on this board and for my amazing doctors and family.

Anne
by annieliz
Thu Jul 22, 2021 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 29F. Just got a colonoscopy. They found something and I’m scared.
Replies: 51
Views: 7574

Re: 29F. Just got a colonoscopy. They found something and I’m scared.

Dr. Garcia Aguilar was my surgeon. He is the best and very experienced with robotic surgery.
You are in great hands - all the best to you,
Anne
by annieliz
Tue Apr 13, 2021 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice about resection and reconnection
Replies: 17
Views: 4657

Re: Advice about resection and reconnection

My situation is similar to yours. Had chemo, radiation and surgery at MSK in NYC. Tumor was 7.8cm from AV. Had robotic LAR on 4/14/20 and reversal of ileostomy on 7/15/20. The first couple of weeks were a bit crazy with urgency and clustering, but no accidents, leakage, etc. I went back to work in p...
by annieliz
Wed Sep 02, 2020 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Greetings After Six NED Years
Replies: 3
Views: 1395

Re: Greetings After Six NED Years

So great to hear; thanks for posting. Congratulations!
by annieliz
Mon Jul 27, 2020 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Normal time frame for followup colonoscopy.
Replies: 4
Views: 1164

Re: Normal time frame for followup colonoscopy.

It's been a year since my colonoscopy, a bit over 3 months since my LAR surgery, and 2 weeks since my reversal surgery. Met with my surgeon today for a follow-up visit and he said I should have a colonoscopy in the late fall, so that would put me at around the 8-month mark as well. That will be foll...
by annieliz
Fri Jul 10, 2020 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal anxiety
Replies: 3
Views: 957

Re: Reversal anxiety

Agree, jts, that the ileostomy is kind of a drag, but it's great having the predictability and control. And I was also getting quite good at the fine art of changing the bag! Enjoy the rest of the summer and good luck with your reversal. And NH Mike, you can be sure I took note of all of the advice ...
by annieliz
Fri Jul 10, 2020 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal anxiety
Replies: 3
Views: 957

Reversal anxiety

So, I am scheduled for my ileostomy reversal this Tuesday. I think I have done everything I can to prepare - reading posts in this forum and following links to additional information regarding tips for managing varying degrees of LARS, which of course I am hopeful that I will not experience (wishful...
by annieliz
Wed Jun 03, 2020 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got diagnosed - advice appreciated
Replies: 22
Views: 4220

Re: Just got diagnosed - advice appreciated

Yes, I agree about the great customer service. I was always able to get most appointments scheduled at my convenience. Just yesterday morning I was worried about the skin around my stoma so I emailed photos to the surgeon's office and the office manager forwarded the email to the appropriate people ...
by annieliz
Wed Jun 03, 2020 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got diagnosed - advice appreciated
Replies: 22
Views: 4220

Re: Just got diagnosed - advice appreciated

If you live in the NYC area I highly recommend MSK. I am very happy with the treatment I am receiving there. My oncologist is Dr. Geoffrey Ku.
Hope this helps a little. I am happy to answer any other questions you may have.

Anne
by annieliz
Mon Apr 20, 2020 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 27563

Re: Please help, input needed

I am so sorry to hear that you are in so much pain. It does get better, and walking really helps. The hardest part for me is getting up off the couch, but once I get my legs going everything feels a little better. I hope you have already gotten some relief and are starting to feel better.
by annieliz
Wed Apr 15, 2020 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 74
Views: 17936

Re: Scary times . . .

Hang in there-it will be over soon. My prep went well, but like you, I had to get up at 3:30 am to head to the hospital. Once I got there all went smoothly. They gave me a nerve block in pre-op and that worked really well. Haven’t had any real pain yet. Best wishes for a good experience and speedy r...
by annieliz
Fri Apr 10, 2020 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery tomorrow APR with permanent Bag, praying for best results
Replies: 7
Views: 1856

Re: Surgery tomorrow APR with permanent Bag, praying for best results

Glad to hear your surgery went well. Best wishes for a speedy recovery!
by annieliz
Fri Apr 10, 2020 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 74
Views: 17936

Re: Scary times . . .

Hi Stu, Not much to report as I head into surgery next Tuesday. A few weeks ago, I had a nice call with one of the nurses who walked me through the whole preparation routine. Earlier this week, the office called again to tell me that I had to get a COVID-19 test 48 hours before surgery; that's sched...
by annieliz
Mon Apr 06, 2020 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 74
Views: 17936

Re: Scary times . . .

Same for me, Ulendon. My LAR is scheduled for Tuesday, 4/14. The hospital's new policy is no visitors at all, so we will be "alone together."

Wishing you all the best - I will be thinking of you on Wednesday!

Anne

Go to advanced search