Congratulations on 10 years. And thank you for taking the time to document your journey in your blog. It’s truly a gift and reading it helped me so much. Cheers! Anne
Also posting to encourage others - NED as of scan on 3/4/22, so that's 2 years for me. Thankful for all of the help I found from the members on this board and for my amazing doctors and family.
My situation is similar to yours. Had chemo, radiation and surgery at MSK in NYC. Tumor was 7.8cm from AV. Had robotic LAR on 4/14/20 and reversal of ileostomy on 7/15/20. The first couple of weeks were a bit crazy with urgency and clustering, but no accidents, leakage, etc. I went back to work in p...
It's been a year since my colonoscopy, a bit over 3 months since my LAR surgery, and 2 weeks since my reversal surgery. Met with my surgeon today for a follow-up visit and he said I should have a colonoscopy in the late fall, so that would put me at around the 8-month mark as well. That will be foll...
Agree, jts, that the ileostomy is kind of a drag, but it's great having the predictability and control. And I was also getting quite good at the fine art of changing the bag! Enjoy the rest of the summer and good luck with your reversal. And NH Mike, you can be sure I took note of all of the advice ...
So, I am scheduled for my ileostomy reversal this Tuesday. I think I have done everything I can to prepare - reading posts in this forum and following links to additional information regarding tips for managing varying degrees of LARS, which of course I am hopeful that I will not experience (wishful...
Yes, I agree about the great customer service. I was always able to get most appointments scheduled at my convenience. Just yesterday morning I was worried about the skin around my stoma so I emailed photos to the surgeon's office and the office manager forwarded the email to the appropriate people ...
If you live in the NYC area I highly recommend MSK. I am very happy with the treatment I am receiving there. My oncologist is Dr. Geoffrey Ku. Hope this helps a little. I am happy to answer any other questions you may have.
I am so sorry to hear that you are in so much pain. It does get better, and walking really helps. The hardest part for me is getting up off the couch, but once I get my legs going everything feels a little better. I hope you have already gotten some relief and are starting to feel better.
Hang in there-it will be over soon. My prep went well, but like you, I had to get up at 3:30 am to head to the hospital. Once I got there all went smoothly. They gave me a nerve block in pre-op and that worked really well. Haven’t had any real pain yet. Best wishes for a good experience and speedy r...
Hi Stu, Not much to report as I head into surgery next Tuesday. A few weeks ago, I had a nice call with one of the nurses who walked me through the whole preparation routine. Earlier this week, the office called again to tell me that I had to get a COVID-19 test 48 hours before surgery; that's sched...