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by annieliz
Fri Oct 18, 2019 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 173
Views: 14622

Re: Newly diagnosed rectal cancer

Yay! So happy for you. I hope your nasty side-effect symptoms subside quickly.
Enjoy the weekend!
by annieliz
Thu Oct 17, 2019 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 242
Views: 38147

Re: My CRC with liver mets journey

Awesome! Congrats and best wishes for a speedy recovery from surgery! :D :D :D
by annieliz
Mon Oct 14, 2019 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 173
Views: 14622

Re: Newly diagnosed rectal cancer

Ugh! I am so sorry that I don’t have any tips for you as I have yet to go through the treatment you are enduring. I have to wait until Christmas for that :( Sounds like you have tried everything in the book. I hope you at least get a few hours of relief every day. If I am counting correctly, you are...
by annieliz
Wed Oct 09, 2019 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any prepping and scoping buddies out there ?
Replies: 25
Views: 1116

Re: Any prepping and scoping buddies out there ?

Enjoying the lyrics based on some of my old favorites! Glad your prep and scope went well, CRguy. My prep was pretty easy - 2 Fleets before I left home for my appt today. Sigmoidoscopy showed a good amount of tumor shrinkage - rough estimate of 30%. Worst part of the day was waiting in the exam room...
by annieliz
Mon Oct 07, 2019 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any prepping and scoping buddies out there ?
Replies: 25
Views: 1116

Re: Any prepping and scoping buddies out there ?

I am supposed to have a flex sig on Wednesday to see if the chemo is shrinking my tumor, but they haven't called to tell me that I have to prep in any way. I'm pretty sure that based on how I am feeling that the tumor is indeed shrinking. Fingers crossed.
by annieliz
Mon Oct 07, 2019 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 173
Views: 14622

Re: Newly diagnosed rectal cancer

So sorry to hear that you are having a rough time — I am looking forward to the day you post that it was your turn to ring the bell!
Wishing you all the best as you keep marking off the days until the end of your treatments!
by annieliz
Mon Sep 30, 2019 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: m3814 clinical trial
Replies: 1
Views: 556

m3814 clinical trial

Anybody heard of this trial? m3814 is a DNA-PK inhibitor that is supposed to make sure that cancer cells stay completely destroyed and don't repair their own DNA. It's a Phase 1B study to find out the highest dose that can be given along with chemoradiation. My radiation oncologist was very excited ...
by annieliz
Sat Sep 28, 2019 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 1287

Re: Questions regarding Folfox treatments

So, I had my appointment for round 4 yesterday. I reported all of my side-effects, but the nurse didn't seem to think they rose to a level to be concerned about, but they did contact my onc to discuss and the one concern was my very low ANC, so I have to go back tomorrow for neulasta. I plan on taki...
by annieliz
Sat Sep 28, 2019 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My 2157 day journey ended today
Replies: 14
Views: 1624

Re: My 2157 day journey ended today

Congratulations! I've read your blog a couple of times as I have just started my treatment journey - halfway done with 8 rounds folfox! Your blog entries are really helpful, along with all of the great info here on Colon Talk. It's so good to know that feelings I am experiencing have been experience...
by annieliz
Mon Sep 23, 2019 7:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear colonoscopy
Replies: 9
Views: 545

Re: Clear colonoscopy

Such great news. Congrats!
by annieliz
Sun Sep 22, 2019 9:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 142
Views: 16285

Re: Quick intro -- diagnosed Friday

Pyro is absolutely correct, which is why I packed so many items in my bag for my first treatment. Also, never hesitate to call the number for your doctor's office during business hours, or the on-call number after hours if you have ANY questions about anything of concern. I called several times when...
by annieliz
Sat Sep 21, 2019 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 142
Views: 16285

Re: Quick intro -- diagnosed Friday

Hi Zack, Glad you are getting used to your port. From what I remember, you are not doing Folfox - just an oxaliplatin infusion and then you take pills, right? Anyway, my first infusion went a lot more quickly than I thought it would, and I brought far too much stuff with me which I had to lug back a...
by annieliz
Sat Sep 21, 2019 8:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 1287

Re: Questions regarding Folfox treatments

Thanks, zephyr. I guess I should report every side effect, which I have been pretty good at documenting every day. I just don't know if finger tingling and hand spasms that last until about day 5 is considered worrisome or just a mild side effect. I read somewhere today that your experience with you...
by annieliz
Sat Sep 21, 2019 3:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 173
Views: 14622

Re: Newly diagnosed rectal cancer

Hi MeAndMine,

So sorry to hear of your discomfort during your treatments. I think of you often, and hope that you are finding some relief.
by annieliz
Sat Sep 21, 2019 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 1287

Re: Questions regarding Folfox treatments

Thanks everyone! I will definitely keep my doc updated about my side effects. Sounds like it's better to do that instead of just sucking it up past the point when something can be done to prevent or minimize the long-term effects. I will definitely ramp up my protein intake. I mostly crave things li...

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