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by TinaFish
Fri Sep 20, 2019 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with bowels
Replies: 57
Views: 4010

Re: Help with bowels

Ok thanks, I don't think he would be able to finish the glass either at least in an adequate amount of time. He could but over hours, that's why capsules is the route we took. Ordered them. Hoping and praying this will help him get his bowels moving more regular without all the clustering. He had a...
by TinaFish
Fri Sep 20, 2019 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 14
Views: 991

Re: Rogaine! seems to be working for me

Are you still using it? I've buzzed my head and embraced the bald. I don't even hate it. I was concerned that it would make me look sick or make the kids uncomfortable. Those goobers are constantly rubbing my head and there are plenty of bald jokes to go around. :lol: I often thought about going &q...
by TinaFish
Fri Sep 20, 2019 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Do I need to eat meat during chemoradiation?
Replies: 11
Views: 556

Re: Do I need to eat meat during chemoradiation?

I'm very anti-meat as well, but I love dairy foods. When you're in chemo, sometimes your appetite is just nonexistent. Between the diarrhea and lack of appetite, I lost 30 lbs over the first three months of being diagnosed. I had to cut out the off-label drugs that I was taking. They were contributi...
by TinaFish
Fri Sep 20, 2019 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone taking artemisinin?
Replies: 5
Views: 522

Re: Anyone taking artemisinin?

I was interested in researching the possibilities of this in cancer research over 30 years ago when the chemical compound in this was originally identified and shown to contain a rather unique organic peroxide functional group. I built a case for investigating this to my department director, but he...
by TinaFish
Wed Sep 18, 2019 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 14
Views: 991

Re: Rogaine! seems to be working for me

I was using Rogaine a few years ago, just because I'm vain and I figured it would give me super-thick, luscious hair. Well, I never got to see it to fruition because it gave me a HORRIBLY itchy scalp. People probably thought I had lice. I just couldn't stand the itching anymore, and I had to stop us...
by TinaFish
Wed Sep 18, 2019 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone taking artemisinin?
Replies: 5
Views: 522

Anyone taking artemisinin?

I researched a lot of alternative treatments, and some of you may have read about my diarrhea journey, so you may already know that I had to cut a lot of them out. However, a lot of great stuff is being said about artemisinin, and as luck would have it, I can't find any information accusing it of ca...
by TinaFish
Wed Sep 18, 2019 10:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Guess who was told she's NED??
Replies: 33
Views: 1961

Re: Guess who was told she's NED??

So happy for you! And news like this gives the rest of us hope for ourselves too! Congratulations!!
by TinaFish
Wed Sep 18, 2019 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand Foot Syndrome
Replies: 32
Views: 1748

Re: Hand Foot Syndrome

I just started my Xeloda again today. How are you doing Tina? I hope your treatment is getting easier and you're handling it well. Doing really well, thank you for asking! I'm going in for round 5 of chemo tomorrow. Round 4 was the easiest thus far. It made a huge difference for me to stop taking t...
by TinaFish
Wed Sep 04, 2019 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 20
Views: 3036

Re: Daily Enema Therapy for LARS

Hi Tina, Just my 2 cents. The other week, I was having a constipation issue that was ultimately resolved with some Miralax and senna per my on-call doc at MSK. In a subsequent phone call, we went over steps I should take if constipation happens again, and I asked about enemas. The doctor said - no ...
by TinaFish
Wed Sep 04, 2019 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Itchy Skin
Replies: 7
Views: 703

Re: Itchy Skin

Clobex Spray is prescribed for many different itchy skin conditions. I had a patch of psoriasis on my scalp, and it was the only thing that gave me relief. The scary thing was that after I rubbed it into my scalp with my fingers, I noticed that it removed my nail polish! So obviously it's some kind ...
by TinaFish
Tue Sep 03, 2019 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 763

Re: The Budwig diet

I tried it for some. Don't remember why I stopped though. I actually liked taste of it , nice creamy feel. Add a bit of black salt and cucumbers chunks. See if it helps. One of my favorite dishes is German "guerkensalad." Thinly-sliced cucumbers, vinegar, salt, some sour cream, and some b...
by TinaFish
Tue Sep 03, 2019 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 763

Re: The Budwig diet

Brearmstrong wrote:I did it daily for about 9 months during folfox. Cancer came raging back. Who knows.


Thank you for giving me more reason not to eat it ;)
by TinaFish
Mon Sep 02, 2019 10:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 20
Views: 3036

Re: Daily Enema Therapy for LARS

Sorry, you guys - what is LARS? I googled it and didn't come up with anything. I'm new to all of this and just got diagnosed about three months ago. I've only been through four rounds of chemo - nothing else. Prior to being diagnosed, I was having intermittent blood in my poop. My doctors had told m...
by TinaFish
Mon Sep 02, 2019 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 763

Re: The Budwig diet

Yeah, I'm sure that MSK couldn't say that the diet worked unless there had been studies that they could reference. And of course the propaganda states that no one wants to orchestrate a study because there's no money for anybody in the results. Aaaand of course we really wouldn't know how viable the...
by TinaFish
Mon Sep 02, 2019 8:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 763

The Budwig diet

Anyone tried it? You know, you blend cottage cheese together with flaxseed oil? Opinions, experiences, results? I tried it when I was first diagnosed, and I just couldn't get it down. I thought it was so disgusting. Blending it together with an overripe banana was the only way to make it tolerable, ...

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