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by MetastaticEquilibria
Thu Jan 02, 2020 1:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 30/2020
Replies: 279
Views: 130633

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 26/2019

Just watched “First Man.” As soon as I heard the Theremin in the soundtrack, I thought of yours.

Reading around, it seems Neil Armstrong was a fan of the Theremin. So you have that in common with him!
by MetastaticEquilibria
Fri Dec 27, 2019 7:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 30/2020
Replies: 279
Views: 130633

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 26/2019

What does “Homemade imaging” mean?
Are you using your own equipment? :)
by MetastaticEquilibria
Fri Dec 27, 2019 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update as of 12/27/19
Replies: 1
Views: 554

Re: Update as of 12/27/19

Great news about the CT scan!
by MetastaticEquilibria
Wed Dec 25, 2019 5:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 6048

Re: Please allow me to introduce myself

There's too much confusion I can't get no relief… :mrgreen: :mrgreen: :mrgreen: game on bro' you just chose my all time favorite Hendrix classic listen to the first few bars intro THAT is gold !!!!! and epic Hendrix YES I know, Dylan wrote it ... BUTT .... Jimi LIVED it and brought it to life ... W...
by MetastaticEquilibria
Tue Dec 24, 2019 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After HAI
Replies: 18
Views: 4364

Re: After HAI

mpbser wrote:"You are preaching to the choir Juliej you can't tell him anything he has to fallon his face to 'get it'"

omg....sounds just like my husband... only he has to fall again and again and again before he gets it. Exasperating.


Heh, sounds like me!

Good news about the fluid test results.
by MetastaticEquilibria
Tue Dec 24, 2019 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 6048

Re: Please allow me to introduce myself

Thanks for the vibes, CRGuy!

There must be some kind of way out here,
Said the Joker to the Thief...
by MetastaticEquilibria
Fri Dec 20, 2019 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 6048

Re: Please allow me to introduce myself

Ugh I'm really sorry about the new met. But this treatment sounds promising, I hope it works for you! C'mon CRISPR technology, hurry up we need you! Yes, we could all definitely use some of those miracle treatments that seem to be perpetually right around the corner. Let’s turn the corner in 2020!
by MetastaticEquilibria
Fri Dec 20, 2019 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 6787

Re: Para-aortic node recurrence

I also have no experience with lymph node issues, but agree this is a tricky/frustrating decision. One issue is that oxaliplatin is pretty damaging stuff, and only adds a few extra percent survival to plain chemo (like 5fu/xeloda). Overdoing it can limit one’s options in the future — it can clobber ...
by MetastaticEquilibria
Thu Dec 19, 2019 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV With Liver Mets
Replies: 9
Views: 1252

Re: Stage IV With Liver Mets

I can sympathize with the shock of going from Stage 3 to Stage 4 so quickly. I went from 2 to 4 in 5 months, which surprised my first doctor, who did not expect that to happen so fast. Then I transferred to a major cancer center, where such things don’t surprise them. They have a lot more experience...
by MetastaticEquilibria
Thu Dec 19, 2019 3:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 6048

Re: Please allow me to introduce myself

Been a while, so a quick update. Unfortunately, the Nov. CT scan showed a new tumor in the liver, high up on the left side, in an area that I think had not been irradiated before. CEA and CA19-9 both went up too. So, Lonsurf has been deemed a failure. My doctor proposed trying a technique for which ...
by MetastaticEquilibria
Thu Dec 12, 2019 6:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri and Nausea
Replies: 15
Views: 2368

Re: Folfiri and Nausea

FOLFIRI was much worse for me than FOLFOX. Emend helped. Also had dexamethasone for first couple of days. This combo generally worked well enough to keep me from throwing up, though the dexamethasone gave me hiccups. Besides nausea, though, FOLFIRI generally left me feeling crappy and listless for a...
by MetastaticEquilibria
Thu Dec 12, 2019 4:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer Research Project
Replies: 13
Views: 1718

Re: Colon Cancer Research Project

Ok, let me take a stab at some answers: 1. Your nutritional habits up to diagnosis and your personal feelings on it's significance to your current diagnosis Nutritional habits: mixed Western and Japanese diet, probably not the healthiest, but not the worst either. Probably drank a bit more than I sh...
by MetastaticEquilibria
Tue Dec 10, 2019 4:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is radiation/chemo treatment actually like?
Replies: 42
Views: 8103

Re: What is radiation/chemo treatment actually like?

Others have discussed the mechanics of radiation, which can vary but should be broadly similar. I had a full dose (60 Gy) of pelvic radiation (x/gamma), and had absolutely no side effects until a couple of days after the last dose, when I suddenly developed intolerable abdominal pain and uncontrolla...
by MetastaticEquilibria
Sun Dec 08, 2019 4:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer Research Project
Replies: 13
Views: 1718

Re: Colon Cancer Research Project

I’m a patient in Japan. Happy to help.

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