Search found 34 matches

Go to advanced search

by camicom
Fri Nov 13, 2020 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FoundationOne CDx Testing Results!
Replies: 0
Views: 1050

FoundationOne CDx Testing Results!

Hello all, I just had this testing done, and my oncologist didn't really cover it with me. I know the basic Kras, Braf, etc but the muts are a little confusing. Would any of you take a look at this and offer me you opinion? Thanks in advance https://www.keepandshare.com/doc11/29014/imflrxfxrxp1-2-ti...
by camicom
Thu Nov 05, 2020 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 60% Liver Resection
Replies: 3
Views: 591

Re: 60% Liver Resection

I can share my mum’s experience and what I observed if that helps . Way back in 2009 my mum had a spread from segments 4 through to 8 . She had six cycles of chemo and a brilliant response. One tumour alone was 5 cm . She had a combined bowel resection and four wedge resections in her liver . After...
by camicom
Thu Nov 05, 2020 3:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 60% Liver Resection
Replies: 3
Views: 591

60% Liver Resection

Hello all, I have 35 liver METS covering roughly 60% of my liver. The other 40% has just a few small ones that can be ablated. I am about 9 months out from doing 9 cycles of Folfox with a 40% reduction in growth. I currently am taking Xeloda as maintenance. My largest met is about 1.4cm, most are un...
by camicom
Mon Aug 03, 2020 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband is working !!! and starting Xeloda.....
Replies: 6
Views: 946

Re: Husband is working !!! and starting Xeloda.....

Hello, havent updated my profile in a while, but started taking Xeloda about 2.5 months ago for maintenance after Folfox caused 40% shrinkage in my multiple liver tumors and a MRI showed them inactive or dead. I started taking 4000mg per day, Im 5'11 230lbs, I had no nausea whatsoever, developed one...
by camicom
Mon Apr 13, 2020 11:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had Y90 Radionembolization?
Replies: 3
Views: 797

Re: Has anyone had Y90 Radionembolization?

On this forum, most of the Y90 posts are found under the keyword "SIRT". (Please note that on this forum you cannot simply search for Y90 since the keyword "Y90" does not have the required minimum four characters. You have to search for SIRT instead.) Selective Internal Radiatio...
by camicom
Mon Apr 13, 2020 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dead or Inactive Liver Mets!
Replies: 1
Views: 726

Dead or Inactive Liver Mets!

Its been a pretty wild 7 days. After my scans earlier in the month showed a 40% decrease in tumor size(35 tumors) my Oncologist suggested that I wouldbe eligible for a liver resection. This gave me a lot of hope as it changes the 5 year survival rate from 11% to aound 50%. I talked to my liver sugeo...
by camicom
Mon Apr 13, 2020 8:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had Y90 Radionembolization?
Replies: 3
Views: 797

Has anyone had Y90 Radionembolization?

Looks like my oncologist was a little hopeful telling me I would probably qualify for a resection. The surgeon still didn't like the amount of liver I would have left so it was a no go. He suggested Y90, which I've been told before from a Interventional Radiologist that I would be a candidate. All o...
by camicom
Fri Mar 27, 2020 9:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Likely Liver Resection Coming. Need advice please:)
Replies: 5
Views: 1166

Re: Likely Liver Resection Coming. Need advice please:)

Thanks so much for the replies. Glad to see you're doing well.
by camicom
Thu Mar 26, 2020 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Likely Liver Resection Coming. Need advice please:)
Replies: 5
Views: 1166

Likely Liver Resection Coming. Need advice please:)

Hello, Just finished 3 months of FOLFOX, and had about a 30-40% reduction in all of my tumors according to the latest MRI. My liver surgeon had said a reduction in size would probably qualify me for a resection. 60% of my liver carries 33 of the 35 tumor, with 2 small ones in the 40%. He talked abou...
by camicom
Fri Dec 20, 2019 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV With Liver Mets
Replies: 9
Views: 1297

Re: Stage IV With Liver Mets

Thank you all so much for you replies. I contacted Dr Mayo's office and talked to his knowledgeable scheduler about my situation. She said they usually wait to see how people respond to their first round or two of chemo before doing the pump, for response and for insurance purposes. Its makes comple...
by camicom
Thu Dec 19, 2019 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV With Liver Mets
Replies: 9
Views: 1297

Re: Stage IV With Liver Mets

Thank you all for your replies. I am MSI stable and am waiting for the latest biopsy to tell me if I'm still BRAF and KRAS wild(i think I have that right, if you are wild that mean you don't have it). I am on the west coast and will do some further research on locations that offer HAI.
by camicom
Wed Dec 18, 2019 4:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV With Liver Mets
Replies: 9
Views: 1297

Stage IV With Liver Mets

Was diagnosed with Stage 3B after surgery on 7/19. They took a total of 48 nodes and only 1 was affected. Odds were 80% 5 year DFS with or without chemo, so I chose not to. Decided to change my diet to completely Vegan. My pre surgery CEA level was 1.2NL Had CT scans in August due to abdominal pains...
by camicom
Wed Aug 07, 2019 5:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 3764

Re: Staging and treatment options.

Like Beckster, I was on Xeloda for six months. I took 6,000 mg daily—two weeks on, one week off. Side effects included skin darkening, rashes, occasional fatigue, some dehydration, and elevated creatinine levels; I didn’t have any problems with diarrhea, nausea, or vomiting. All in all, it was very...
by camicom
Wed Aug 07, 2019 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 24590

Re: Quick intro -- diagnosed Friday

Before my diagnosis, I was in great physical shape working out 5 days a weeks, and felt invincible. Its amazing how something like this changes your outlook on life and what is important.. Have to admit I broke down reading about your reaction to getting clean scans. The morning after my colonscopy ...
by camicom
Wed Aug 07, 2019 8:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Normal Aches And Pains 19 days After Open Surgery?
Replies: 3
Views: 818

Normal Aches And Pains 19 days After Open Surgery?

Hello all, I had an extended right hemicolectomy surgery was on 7/19. They had to convert to open due to the location of the tumor. I seem to be doing good other than a couple of issues. My surgeon doesn't seem to think they are any big deal, but I would very much like your opinions and experiences....

Go to advanced search