Search found 18 matches

Go to advanced search

by mslaurie
Tue Aug 13, 2019 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Would like to hear from those who have had Surgery & HIPEC..
Replies: 11
Views: 2156

Re: Would like to hear from those who have had Surgery & HIPEC..

Yes Appendix cancer has a 75%-90% survival rate for surgery and HIPEC and colon and other types of cancer it is more around 25%-35% for 5 year. Many will have multiple Surgeries with or without HIPEC with colon cancer during their treatment.. its almost a chronic illness until no more surgeries or c...
by mslaurie
Sun Aug 04, 2019 10:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Would like to hear from those who have had Surgery & HIPEC..
Replies: 11
Views: 2156

Re: Would like to hear from those who have had Surgery & HIPEC..

No and realistically they cannot tell the PCI index until they look inside. CT, PET, Xrays or Ultrasounds do not show accurate peri mets involvement.
by mslaurie
Sun Aug 04, 2019 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Would like to hear from those who have had Surgery & HIPEC..
Replies: 11
Views: 2156

Re: Would like to hear from those who have had Surgery & HIPEC..

Thank you, not necessarily the HIPEC part. I know the HIPEC chemo may or may not have much difference one way or the other in doing it or not.. but the surgery part can be the main benefit and depends on how good the surgeon is and/or how much spread one has as far as what I have read. The surgeon m...
by mslaurie
Sat Aug 03, 2019 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 4684

Re: Staging and treatment options.

Husband was stage IIB in 2009. Choose not to do chemo. NED from 2009 until April 2019 - recurrence spread to peritoneum and liver (none in colon) now Stage4c. In Hindsight Husband said if he had to do it over again he would have chosen in 2009 to do the chemo just in case that would have helped in h...
by mslaurie
Sat Aug 03, 2019 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Would like to hear from those who have had Surgery & HIPEC..
Replies: 11
Views: 2156

Would like to hear from those who have had Surgery & HIPEC..

Hello, Just wondering how well HIPEC and cytoreductive surgery actually work. So would like to hear "real" stories, success or otherwise from those who have had it done or who are or have been the caregivers. Pro's and con's. *How soon after the surgery was a recurrence? * IF no recurrence...
by mslaurie
Wed Jul 31, 2019 11:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 28
Views: 5970

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

For us.. we forgot all about cancer really, well it was on the back burner in thoughts. I never really thought to much about posting on this site as time went on after a year. I do not think I would have any words of wisdom for anyone back then since. He had a tumor, surgery and immediate NED status...
by mslaurie
Wed Jul 31, 2019 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 28
Views: 5970

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

UPDATE: Hubby has been doing chemo he is on his 3rd round. First two rounds knocked him on his butt.. first round super bad side effects had hiccups and dry heaves so bad 24/7 for about 2 weeks straight. Could'n't eat or drink hardly anything as could not stop hiccuping could not even sleep as the h...
by mslaurie
Wed Jun 26, 2019 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you think?
Replies: 34
Views: 5329

Re: What do you think?

Hi Paula, Keep you chin up! My husband as you know is pretty much in the same EXACT situation as you are. He does not have many options eitehr in fact so far just pallative chemo. Yes the peri mets are hard to get control of. I'm not sure why more surgeons do not offer to have most the colon removed...
by mslaurie
Sat May 25, 2019 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 28
Views: 5970

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

It would have been so much better if the cancer would have spread to his liver or somewhere else if it was going to come back. Then at least he would have been treatable and we would have had some hope... but no it had to come back in the worst possible place the Peritoneum which really does not giv...
by mslaurie
Sat May 25, 2019 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 28
Views: 5970

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

I thought a lot about your husband's situation... Was cancer living in his body all of these years? I thought about the fact that scientists say that we all have cancer cells in our bodies but for most people, their immune system is capable of getting rid of them... Hi yes, we all have cancer cells...
by mslaurie
Fri May 24, 2019 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 28
Views: 5970

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

Tuesday will be hubbys first chemo treatment. Scary as of now he is feels healthy and looking great, nothing hurts him anywhere only found out about the cancer coming back due to showing up on routine xray for something totally different not because he was feeling bad or anything. One would never ev...
by mslaurie
Fri May 24, 2019 5:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 28
Views: 5970

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

It's a long shot, yes (5%) but if your husband's MSI he could do immunotherapy and get cured. I'm a little hesitant to have faith in the word "cured" at the moment. He was NED for 9 1/2 years essentially considered "cured" which on some reports after 6 years of being NED is cons...
by mslaurie
Thu May 23, 2019 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 28
Views: 5970

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

Adjuvant Pressurized IntraPeritoneal Aerosol Chemotherapy (PIPAC) in Resected High Risk Colon Cancer Patients
https://clinicaltrials.gov/ct2/show/NCT03280511


He would not qualify - under the criteria for selected participants. Its mainly for newly diagnosed colon cancer patients..
by mslaurie
Thu May 23, 2019 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 28
Views: 5970

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

What do you know about your husband's MSS/MSI status? If he's a candidate to immunotherapy, that could solve all of his problems Not even sure what you mean by MSS/MSI. No options were offered to my husband except pallative care Oxaliplatin (IV) and Capecitabine (oral). Said surgery is not an optio...
by mslaurie
Tue May 21, 2019 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 28
Views: 5970

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

I think the same thing about his heart surgery and how it effected his immune system. I do believe it contributed to the cancer returning.

Go to advanced search