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by hopefulandstrong
Mon Nov 11, 2019 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pain below right ribcage
Replies: 4
Views: 61

Re: Pain below right ribcage

I have that. It comes and goes, on both sides. My disease in confined to my liver, so when it's on the right side, I sometimes worry. But my onc prescribed an antacid, which helps. I notice it flares when I eat a lot.
by hopefulandstrong
Mon Nov 11, 2019 9:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DNA editing tool Crispr - can this be the one?
Replies: 2
Views: 56

Re: DNA editing tool Crisp - can this be the one?

This seems similar to the NIH trial, yes? Similar approach to re-engineering cells to kill cancer cells?
by hopefulandstrong
Thu Oct 31, 2019 3:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What, besides, tumor burden causes elevated CEA?
Replies: 7
Views: 360

Re: What, besides, tumor burden causes elevated CEA?

Super helpful. And yes, I am scheduled for pump placement in January. Assuming there is no spread outside the liver. There are a couple of lymph nodes (which I think is also accounting for CEA rise to 68) but Dr. Kingham says those come out along with the gall bladder. My procedure was postponed due...
by hopefulandstrong
Thu Oct 31, 2019 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What, besides, tumor burden causes elevated CEA?
Replies: 7
Views: 360

What, besides, tumor burden causes elevated CEA?

I've searched the forum because I recall a couple of comments discussing things besides smoking that cause an elevated result -- things like dehydration, not enough/too much of one or another vitamin, general inflammation.... Can folks remind me of the list?
by hopefulandstrong
Wed Oct 30, 2019 5:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41165

Re: My CRC with liver mets journey

Not the same situation - yours is much better -- but a similar feeling of disappointment, when my triplet therapy stopped working in August, and I was advised to go back on Folfoxfiri. It felt like a major defeat -- not to mention the regimen is way harder, and I loose several days a month to recove...
by hopefulandstrong
Sun Oct 27, 2019 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive fecal occult test
Replies: 15
Views: 449

Re: Positive fecal occult test

Get the scope. Positive Fecal Occult test is how we found mine -- which happens to be fast growing.
by hopefulandstrong
Sun Oct 27, 2019 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41165

Re: My CRC with liver mets journey

Sending love and thoughts of swift recovery
by hopefulandstrong
Thu Oct 24, 2019 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anemia -- how have you dealt with it?
Replies: 5
Views: 311

Anemia -- how have you dealt with it?

several weeks ago I was diagnosed with a blood clot in my leg and small pulmonary embolism. I spent a week at MSK feeling that absolute garbage. I've been on blood thinners for a month, and things are stabilizing. However, 'm also anemic, bad enough to have a transfusion in early October but not bad...
by hopefulandstrong
Thu Oct 24, 2019 6:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41165

Re: My CRC with liver mets journey

Gina - Your journey is such an inspiration to so many of us. Not just your courage and persistence and willingness to share vulnerability, but the love that clearly surrounds you, on this board and beyond. I truly believe that love is key to this (becoming better at love is also one of the "gif...
by hopefulandstrong
Thu Oct 17, 2019 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41165

Re: My CRC with liver mets journey

Hooray!

hopefully, this is a year you put behind you, and have a great story to tell. Thanks for keeping us updated.
by hopefulandstrong
Thu Oct 17, 2019 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA - What would you do?
Replies: 26
Views: 1215

Re: Rising CEA - What would you do?

This seems like excellent advice. My own CEA did a wonderful drop from from 200 to 21 to 2.8 in about 4 months. Then is suddenly jumped up to 30. Scans showed growth of Liver mets, which meant it was time to switch treatment. I have two tricky mutations - BRAF 7600 and PIC3. The therapy targeted for...
by hopefulandstrong
Fri Oct 11, 2019 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41165

Re: My CRC with liver mets journey

Not to be ridiculous, but I think it's possible the robes are seasonable. Mine was navy with white piping -- fetching. I looked like Katherine Hepburn in the Philadelphia Story.
by hopefulandstrong
Fri Oct 11, 2019 9:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41165

Re: My CRC with liver mets journey

Sending the best possible thoughts for the surgery. Having spent a week at Chez MSK recently, I also send my best wishes for enjoying those lovely robes.
by hopefulandstrong
Thu Sep 19, 2019 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump Placement
Replies: 5
Views: 428

Re: Pump Placement

Gina -

Did you go right in for the surgery? in my case, we're doing laparotomy first to check for extra hepatic disease. I can't imagine they place the pump laproscopically, right?
by hopefulandstrong
Thu Sep 19, 2019 7:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump Placement
Replies: 5
Views: 428

Re: Pump Placement

Liver resection is a possibility. fortunately, my primary tumor was removed without an ostomy is January.

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