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by natelaugh
Wed Dec 25, 2019 11:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: jejunostomy tube
Replies: 0
Views: 1755

jejunostomy tube

Hi,

Anyone getting chemotherapy thru their jejunostomy tube?

Thanks,
Nate
by natelaugh
Fri Dec 06, 2019 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pill thru j tube
Replies: 4
Views: 1050

Re: Pill thru j tube

martd wrote:Any possibility of dissolving the pill in a small amount of water and taking it in liquid form?

Hi,

Kaiser pharmacy say it has not been done before and don't know a safe way of doing it. I thought if pill can be crush in small particles then mix in water and feed it thru j tube.

Nate.
by natelaugh
Thu Dec 05, 2019 11:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pill thru j tube
Replies: 4
Views: 1050

Pill thru j tube

I need help. My dad has a cancer blockage at the duodenum. He got his GJ tube to bypass the blockage and it is working. He needs to get encorafenib and binimetinib but it is in pill form and he can't take by mouth. The Kaiser pharmacy don't have a safe way to give my dad encorrafenib and binimetinib...
by natelaugh
Wed Dec 04, 2019 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood transfusion and chemo
Replies: 0
Views: 2150

Blood transfusion and chemo

Hi,

My dad has been in hospital for bowel obstruction. He probably need blood transfusion. Anyone got blood transfusion and chemo at the same time? Will it causes any problems?

Thanks,
Nate
by natelaugh
Fri Nov 29, 2019 1:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 22622

Re: Please help, input needed

Push for a gnomic test. Find out ASAP if you have braf v600e because traditional chemo will not help much. While you wait you can get a cea and cea199 from private lab, cost around $100 for both. This will be the baseline.

Nate
by natelaugh
Wed Nov 27, 2019 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency HIPEC, possible?
Replies: 7
Views: 1488

Re: Emergency HIPEC, possible?

Looks likely to be diffuse cancer causing blockage but no definitive answer yet. Still mostly blocked with NG tube in now for 5 days, complete bowel rest, TPN and just about managed pain. Scans indeterminate but not resolving conservatively which points to cancer. Patient had some peritoneal involv...
by natelaugh
Mon Nov 25, 2019 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hope for BRAFers
Replies: 5
Views: 807

Re: Hope for BRAFers

hopefulandstrong wrote:Yes v600 -- don't know about the feeding tube

Is triplet regimen easier than your other regimen? How do you rank the regimen from easy to hardest?
by natelaugh
Mon Nov 25, 2019 8:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hope for BRAFers
Replies: 5
Views: 807

Re: Hope for BRAFers

I did not find the original triplet therapy difficult -- certainly not compared to oxalyplatin. The Erbitux does produce a rash, but that is cosmetic. And I did find myself nauseated a bit more often, frequently without warning. Hi, . Is your mutation v600e? Do you know if the triplet therapy can b...
by natelaugh
Sun Nov 24, 2019 4:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hope for BRAFers
Replies: 5
Views: 807

Re: Hope for BRAFers

Hi, it is hard to do like oxaliplatin? My dad is trying to do beacon regimen?

Nate
by natelaugh
Thu Nov 21, 2019 11:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pd-L1 high
Replies: 1
Views: 551

Pd-L1 high

Hi my dad got back his genome test.

What's this mean.
PD-L1 - High
RNA expression score 28

Thanks,
Nate
by natelaugh
Mon Nov 18, 2019 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hiccup
Replies: 3
Views: 838

Hiccup

Hi,

Anyone develop hiccup with premed and chemo? I dad has recently development hiccup. Not sure if dexamethasone cause it. How do you get rid of hiccup?

Thanks,
Nate
by natelaugh
Sat Nov 16, 2019 3:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with bowels
Replies: 69
Views: 10721

Re: Help with bowels

Hi,

My dad uses senokot. He takes 3 pills at night daily and if he still can't go, he takes 4 pills.

https://www.cvs.com/shop/senokot-laxative-sennosides-tablets-50ct-prodid-1011845

Nate.
by natelaugh
Tue Nov 12, 2019 1:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 1591

Re: HELP! suspended treatment (nephrology)

Have you try to ask to use only 5FU without oxaliplatin? My dad has kidney issues so nurse advise him to drink more water before blood test.

Nate.
by natelaugh
Fri Nov 08, 2019 10:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda alone after allergic to Oxliplatin
Replies: 6
Views: 788

Re: Xeloda alone after allergic to Oxliplatin

My dad is currently taking Folfox which is similar to your regimen, but with addition of avastin. Avastin cuts off blood supply to the tumor. To clear up some possible confusion, FOLFOX is Oxy plus 5FU plus Leucovorin (which helps increase the effectiveness of 5FU, it is not a chemo drug on its own...
by natelaugh
Thu Nov 07, 2019 8:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 74
Views: 17608

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

If there is 25% success rate from this combo that is huge. It might not sound great on the face of it by Opdivo mono-therapy had less than 5% efficacy in MSS patients. This gives patients a big boost Well the disease control rate is closer to 50%. The question is how does this compare to Regorafeni...

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