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by Claudine
Thu Apr 01, 2021 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eleventh Year
Replies: 5
Views: 476

Re: Eleventh Year

As it happens, today is the 3rd anniversary of my husband's diagnosis. I remember reading the survival stats of mCRC and feeling this sinking sensation in my stomach... But his oncologist has always been very positive. One day at a time, and there you are getting past the 10 year mark! Very inspiring!
by Claudine
Thu Apr 01, 2021 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eleventh Year
Replies: 5
Views: 476

Re: Eleventh Year

Fantastic :D :D :D
by Claudine
Thu Apr 01, 2021 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled
Replies: 2
Views: 351

Re: Surgery scheduled

Yes!!! Take as much of the damn thing out as possible. We've always been happier when surgery has been an option, and all of them went really well.
I hope it all goes smoothly today XXXXX
by Claudine
Sat Mar 27, 2021 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 11 year Check In-Stage IV
Replies: 4
Views: 679

Re: 11 year Check In-Stage IV

Thank you so much for dropping by and giving us hope! May you stay NED forever :D :D
by Claudine
Fri Mar 26, 2021 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK Liver Surgeon and FOLFIRI question
Replies: 7
Views: 692

Re: MSK Liver Surgeon and FOLFIRI question

and a node near his pancreas Interesting - your husband is one of the only one I know to have had an adrenal gland met, like mine, and my husband has "a persistent subtle somewhat oval-shaped hypodensity adjacent to the tail of the pancreas measuring approximately 2 cm in maximum dimension&quo...
by Claudine
Fri Mar 26, 2021 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cyberknife or SBRT for lung mets
Replies: 3
Views: 512

Re: Cyberknife or SBRT for lung mets

Good morning Anna, I remember reading that 8 or so is the maximum number of lung mets that will get tacked by something other than systemic chemo, at least in the US. I think there's someone in Germany who will go after a larger number of mets surgically, but I am forgetting the details now... My hu...
by Claudine
Thu Mar 25, 2021 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK Liver Surgeon and FOLFIRI question
Replies: 7
Views: 692

Re: MSK Liver Surgeon and FOLFIRI question

Catstaff, we were told that DH would lose his hair pretty soon after the first infusion, and he did, but he never got completely bald - just a lot of thinning, especially his beard; funnily he ran into someone he hadn't seen in a while and who didn't know about his cancer, and that person said "...
by Claudine
Thu Mar 25, 2021 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK Liver Surgeon and FOLFIRI question
Replies: 7
Views: 692

Re: MSK Liver Surgeon and FOLFIRI question

Welcome to the forum krs029. hopefully you can get answers to your questions here :) He's been doing FOLFIRI + avastin for over 9 months now My husband did 18 cycles and like you describe, it got a bit harder towards the end. He got a break between cycle 17 and 18 because they thought he was getting...
by Claudine
Mon Mar 22, 2021 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nervous CEA rise
Replies: 12
Views: 1902

Re: Nervous CEA rise

I tend to agree with all you're saying, based on posts on this forum (and others). In my husband's case, scan always found something first, then PET confirmed it. I guess that's the oncologist's MO. If next scan still stable but CEA even higher, I will push harder. I may be playing the ostrich and b...
by Claudine
Mon Mar 22, 2021 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nervous CEA rise
Replies: 12
Views: 1902

Re: Nervous CEA rise

Meh, after brewing over this high CEA, I called the onc. I'm the one reading reports, asking questions (DH just goes along with whatever), and it's annoying not being able to be present during his appointments because of Covid! Reports are so abrupt, it's hard to get a good feel for what the doctors...
by Claudine
Mon Mar 22, 2021 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nervous CEA rise
Replies: 12
Views: 1902

Re: Nervous CEA rise

We got the CEA results - 75 this time. It keeps rising, but scan is stable, and onc doesn't seem to want another test (MRI or PET). He scheduled another scan for late June. His opinion is that eventually something will show up, but since DH's cancer isn't very fast progressing or aggressive, he'd ra...
by Claudine
Sat Mar 20, 2021 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back
Replies: 13
Views: 2277

Re: It's back

For now, I suppose this is the best news that I could get. And maybe over the next few weeks I can treat myself to super-healthy food and supplements.


Fresh sushi in Hawaii :wink:
by Claudine
Sat Mar 20, 2021 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: F Cancer
Replies: 8
Views: 1623

Re: F Cancer

Saltygirl I’m French, from a small town about 40 miles from Geneva - we have a family house in the mountains we typically visit every summer but couldn’t last year because of Covid, so looking forward to this coming summer ! I visited Prague right after the fall of the Berlin Wall, when it still ver...
by Claudine
Fri Mar 19, 2021 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: F Cancer
Replies: 8
Views: 1623

Re: F Cancer

That's the attitude! I love it! Where in Europe? Tickets for the summer are cheap right now, like $750 for a round trip from our tiny Montana airport to Geneva. I'm waiting for DH's onc visit on Monday, but I'll likely book us tickets for late June.
by Claudine
Fri Mar 19, 2021 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back
Replies: 13
Views: 2277

Re: It's back

I'm so sorry Gina... These setbacks are such a blow, mentally. DH's onc isn't one to push treatment at all - I guess they vary a lot in their approach; his opinion is that the longer DH can remain off chemo, the stronger his body will get, should it have to be resumed. So I would say, stand your gro...

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