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by Claudine
Mon Apr 19, 2021 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long wait for an echocardiogram and stress test
Replies: 4
Views: 180

Re: Long wait for an echocardiogram and stress test

I am sorry, how frustrating :(
This certainly does not help with stress/anxiety...
by Claudine
Mon Apr 19, 2021 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back
Replies: 19
Views: 3218

Re: It's back

Fantastic!! We're leaving for Utah tomorrow. No swimming with dolphins but looking forward to it anyway. Good luck with the scans, I hope they come back clear!
by Claudine
Thu Apr 15, 2021 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mum needs prayers
Replies: 24
Views: 3085

Re: My mum needs prayers

Deepest condolences. That's too young to be gone... Wishing you and your family strength for the days ahead XXXXX
by Claudine
Thu Apr 01, 2021 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eleventh Year
Replies: 5
Views: 760

Re: Eleventh Year

As it happens, today is the 3rd anniversary of my husband's diagnosis. I remember reading the survival stats of mCRC and feeling this sinking sensation in my stomach... But his oncologist has always been very positive. One day at a time, and there you are getting past the 10 year mark! Very inspiring!
by Claudine
Thu Apr 01, 2021 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eleventh Year
Replies: 5
Views: 760

Re: Eleventh Year

Fantastic :D :D :D
by Claudine
Thu Apr 01, 2021 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled
Replies: 2
Views: 549

Re: Surgery scheduled

Yes!!! Take as much of the damn thing out as possible. We've always been happier when surgery has been an option, and all of them went really well.
I hope it all goes smoothly today XXXXX
by Claudine
Sat Mar 27, 2021 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 11 year Check In-Stage IV
Replies: 4
Views: 815

Re: 11 year Check In-Stage IV

Thank you so much for dropping by and giving us hope! May you stay NED forever :D :D
by Claudine
Fri Mar 26, 2021 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK Liver Surgeon and FOLFIRI question
Replies: 7
Views: 774

Re: MSK Liver Surgeon and FOLFIRI question

and a node near his pancreas Interesting - your husband is one of the only one I know to have had an adrenal gland met, like mine, and my husband has "a persistent subtle somewhat oval-shaped hypodensity adjacent to the tail of the pancreas measuring approximately 2 cm in maximum dimension&quo...
by Claudine
Fri Mar 26, 2021 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cyberknife or SBRT for lung mets
Replies: 4
Views: 916

Re: Cyberknife or SBRT for lung mets

Good morning Anna, I remember reading that 8 or so is the maximum number of lung mets that will get tacked by something other than systemic chemo, at least in the US. I think there's someone in Germany who will go after a larger number of mets surgically, but I am forgetting the details now... My hu...
by Claudine
Thu Mar 25, 2021 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK Liver Surgeon and FOLFIRI question
Replies: 7
Views: 774

Re: MSK Liver Surgeon and FOLFIRI question

Catstaff, we were told that DH would lose his hair pretty soon after the first infusion, and he did, but he never got completely bald - just a lot of thinning, especially his beard; funnily he ran into someone he hadn't seen in a while and who didn't know about his cancer, and that person said "...
by Claudine
Thu Mar 25, 2021 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK Liver Surgeon and FOLFIRI question
Replies: 7
Views: 774

Re: MSK Liver Surgeon and FOLFIRI question

Welcome to the forum krs029. hopefully you can get answers to your questions here :) He's been doing FOLFIRI + avastin for over 9 months now My husband did 18 cycles and like you describe, it got a bit harder towards the end. He got a break between cycle 17 and 18 because they thought he was getting...
by Claudine
Mon Mar 22, 2021 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nervous CEA rise
Replies: 12
Views: 1965

Re: Nervous CEA rise

I tend to agree with all you're saying, based on posts on this forum (and others). In my husband's case, scan always found something first, then PET confirmed it. I guess that's the oncologist's MO. If next scan still stable but CEA even higher, I will push harder. I may be playing the ostrich and b...
by Claudine
Mon Mar 22, 2021 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nervous CEA rise
Replies: 12
Views: 1965

Re: Nervous CEA rise

Meh, after brewing over this high CEA, I called the onc. I'm the one reading reports, asking questions (DH just goes along with whatever), and it's annoying not being able to be present during his appointments because of Covid! Reports are so abrupt, it's hard to get a good feel for what the doctors...
by Claudine
Mon Mar 22, 2021 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nervous CEA rise
Replies: 12
Views: 1965

Re: Nervous CEA rise

We got the CEA results - 75 this time. It keeps rising, but scan is stable, and onc doesn't seem to want another test (MRI or PET). He scheduled another scan for late June. His opinion is that eventually something will show up, but since DH's cancer isn't very fast progressing or aggressive, he'd ra...
by Claudine
Sat Mar 20, 2021 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back
Replies: 19
Views: 3218

Re: It's back

For now, I suppose this is the best news that I could get. And maybe over the next few weeks I can treat myself to super-healthy food and supplements.


Fresh sushi in Hawaii :wink:

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