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by Claudine
Mon Sep 16, 2019 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 34
Views: 1880

Re: Liver and lung mets

Those are great news Alexandraz!!
by Claudine
Mon Sep 16, 2019 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 19
Views: 561

Re: Screw Cancer, Hospice is Here

May we all have such a positive approach and wisdom, Pyro XXXXX
by Claudine
Wed Sep 11, 2019 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 37
Views: 1437

Re: Those of you in Japan - PSK Mushrooms

I found this article very interesting. Of course, it's in mice at this point, not humans yet. But if I understand correctly, curcumin + Bevacizumab (Avastin) has the potential to be as efficient as Folfox + Bevacizumab. This could be very important for people who cannot do 5-FU like amarie123! https...
by Claudine
Tue Sep 10, 2019 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 34
Views: 1880

Re: Liver and lung mets

Alexandraz, my husband also has a multitude of tiny lung mets. He's done 12 sessions of Folfiri + Avastin so far (6 months) and at the 6-session scan they were all shrinking (the biggest one went from 5mm to 2mm) or remained tiny (<2mm). He's got another scan on Monday, hopefully the chemo is still ...
by Claudine
Tue Sep 10, 2019 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA jump from 2.8 to 33 in 6 weeks -- what to make?
Replies: 20
Views: 1307

Re: CEA jump from 2.8 to 33 in 6 weeks -- what to make?

Those are really good words, HopefulandStrong, I love your attitude! DH's CEA levels appear to be steadily rising, albeit slowly - but I don't like that trend, of course. Still, they're still low and like RADNYC pointed out, when there are still tumors there's bound to be CEA activity. DH's next sca...
by Claudine
Tue Sep 10, 2019 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 37
Views: 1437

Re: Those of you in Japan - PSK Mushrooms

Well, I made us golden milk last night and it's delicious, so at least there's that! Especially when the temps are starting to go down here in MT, it's a good, heart-warming drink. I used half a tea spoon of ground turmeric so we each got about 1/4, I'm sure that's probably too low to have strong ef...
by Claudine
Mon Sep 09, 2019 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 37
Views: 1437

Re: Those of you in Japan - PSK Mushrooms

I'm reading conflicting information online (not surprising...). Some sites say it's better absorbed when taken with piperine (black pepper) whereas others say that does not help at all and that it's fat that improves absorption. Those of you who take it, what are you doing? Are you using pre-mixed s...
by Claudine
Mon Sep 09, 2019 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oxaliplatin side effects - 9 years after treatment
Replies: 38
Views: 7953

Re: oxaliplatin side effects - 9 years after treatment

My husband is nearing 1 year since finishing Xelox and if his hands have definitely improved, his feet have not (that seems to be the case for others, from what I read here). I massage them every night and that helps. The worst is when he's sitting for long hours at the computer. A real bummer becau...
by Claudine
Fri Sep 06, 2019 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effect question.
Replies: 7
Views: 511

Re: Side effect question.

Hi Marie, My husband has always been a furnace (as in, he'd open all the windows because he was too hot and I would FREEZE!). But when he got on Xelox, he suddenly developed a full body cold sensitivity... So my take on it is that yes, oxaliplatin will make you much more susceptible to feeling the c...
by Claudine
Fri Sep 06, 2019 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 10
Views: 547

Re: Rogaine! seems to be working for me

Well, things are pretty unclear I agree! The article I cited has this line, "But Rogaine comes with a really big drawback. You have to use it twice a day, every day, for the rest of your life. Stop using the drug and your hair will fall out." On a post from the Mayo clinic, it says "I...
by Claudine
Fri Sep 06, 2019 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 10
Views: 547

Re: Rogaine! seems to be working for me

I know!!! I was going to suggest it to my husband but now I think we're just going to wait and see. I've gotten quite used to seeing him with thin (but so soft!) hair and beard anyway...
by Claudine
Fri Sep 06, 2019 11:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 10
Views: 547

Re: Rogaine! seems to be working for me

I found this article, which seems to indicate that once you start Rogaine, you have to take it for the rest of your life. Something to be aware of!

http://herwaroncancer.com/taxotere/side ... oss-cured/
by Claudine
Thu Sep 05, 2019 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver has been chopped!!
Replies: 44
Views: 2498

Re: Liver has been chopped!!

Woot woot!! Time for a new tat' (to celebrate!) :D
by Claudine
Thu Sep 05, 2019 1:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA jump from 2.8 to 33 in 6 weeks -- what to make?
Replies: 20
Views: 1307

Re: CEA jump from 2.8 to 33 in 6 weeks -- what to make?

Sorry to read that Hopefulandstrong - that's the kind of thing I'm always dreading whenever my husband gets a new blood test before his biweekly chemo... Have you talked to your oncologist? When are you scheduled for a new scan?
by Claudine
Thu Sep 05, 2019 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 34
Views: 1880

Re: Liver and lung mets

Hi Alexandra, There was a post a while back about receiving Keytruda even when one is MSS, I can't figure out how to share the link but you should find it if you do a search on "Mutation burden is the key". Apparently, Keytruda can be used on non-MSI patients, but it all depends on their m...

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