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by Claudine
Thu Sep 24, 2020 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lukewarm to positive?
Replies: 31
Views: 5258

Re: Lukewarm to positive?

Quick update. DH had his control scan on Tuesday and met with the onc today. All clear! Huge relief, now we can continue with our lives for another 3 months, until the next bout of scanxiety. His right quadriceps is still only about 20-25% of normal, but he’s making progress, with PT twice a week. H...
by Claudine
Tue Sep 22, 2020 2:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3804

Re: Blood clots and low oxygen and hospice OH MY

Have been following your and your husband's fight over the months. I am so very sorry it has ended. I hope that you are surrounded with friends and relatives to help you through what has to be a really, really hard transition.
by Claudine
Tue Sep 15, 2020 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 21
Views: 1537

Re: To my CC family

I haven't been here much lately and popping in quickly, I see posts that sadden me greatly. I am so sorry about your loss, Jep. There are no words... Like Stu said, I hope that you are surrounded by loved ones in this so very difficult moment.
by Claudine
Mon Aug 03, 2020 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and CA 19-9
Replies: 5
Views: 649

Re: CEA and CA 19-9

Welcome to the forum, Paradise2020. I hope you will find here answers to your questions and support while you and your husband are going through these difficult times. You can edit your signature by going to the user control pannel (drop-down from your name in the upper right corner), the clicking t...
by Claudine
Mon Jul 27, 2020 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have just been diagnosed with colon cancer
Replies: 11
Views: 981

Re: I have just been diagnosed with colon cancer

Welcome to the forum no one ever wants to join, Thea. I hope you will find here answers to your questions, and support in difficult times - a lot of us have! Getting such a diagnosis is incredibly distressing, but cancer - even metastatic CRC - isn’t the death sentence it once was. Especially when m...
by Claudine
Mon Jul 27, 2020 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I stand up to use the word cure(d)....
Replies: 51
Views: 11401

Re: I stand up to use the word cure(d)....

As much as I’m a strong believer that diet plays an important role, I think there’s a limit to what we can do. I still do believe we need to eat healthy in general, but I think we need to live a little and not obsess over every single thing we eat on top of the already stressful and miserable cance...
by Claudine
Thu Jul 23, 2020 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 16 year birthday/cancerversary to me.
Replies: 12
Views: 962

Re: Happy 16 year birthday/cancerversary to me.

I love it when survivors come back to share their story. Thank you for giving us hope xxxxx
by Claudine
Sun Jul 19, 2020 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: starting Lonsurf next week (very nervous)
Replies: 13
Views: 2322

Re: starting Lonsurf next week (very nervous)

Please let us know what he’s got to say about it! My husband is off chemo for now but as much as I wish it were forever, I doubt it’s going to be the case... And since he’s KRAS mutated and has had good results with Folfiri and Avastin, I’m keeping a close eye on the onvansertib trial.
by Claudine
Sat Jul 18, 2020 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to this, don’t know how to “chat”
Replies: 3
Views: 1447

Re: New to this, don’t know how to “chat”

Welcome to the forum, Olha. I hope it provides support, comfort and answers. There’s no « recipe »... It’s a steep learning curve, so much thrown at you suddenly, new medical terms, your life doing a 180. A friend described it this way - cancer is like a balloon that will take over your entire horiz...
by Claudine
Sat Jul 18, 2020 9:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does chemo ever "cure" lung mets?
Replies: 1
Views: 546

Re: Does chemo ever "cure" lung mets?

My husband had multiple tiny lung mets on both sides and Folfiri + Avastin took care of them - so far.
Wishing your sister the best of luck!
by Claudine
Sat Jul 18, 2020 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: starting Lonsurf next week (very nervous)
Replies: 13
Views: 2322

Re: starting Lonsurf next week (very nervous)

Johnj, since you are KRAS mutated, has your oncologist mentioned Onvansertib? It’s new but fast tracked in the trials so I think oncologists can request it. It’s given in complement to Folfiri and Avastin and is specifically for KRAS MSS patients, and quite promising. Another weapon in the arsenal, ...
by Claudine
Thu Jul 16, 2020 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Numb and numberer
Replies: 10
Views: 1190

Re: Numb and numberer

Interesting. I hadn't heard of it for neuropathy before. I'll get some for my husband, thanks benben!
by Claudine
Wed Jul 15, 2020 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recently Diagnosed with Stage IV Colon Cancer
Replies: 13
Views: 1168

Re: Recently Diagnosed with Stage IV Colon Cancer

Welcome to the forum Paradise2020, although I am sure you'd rather never have had to visit, like all of us here. But you will hopefully find it a great source of information and comfort. One quick word of caution regarding oxaliplatin - it tends to cause peripheral neuropathy; we were not aware of h...
by Claudine
Fri Jul 10, 2020 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 month scan
Replies: 4
Views: 538

Re: 5 month scan

Yay :D :D :D
by Claudine
Mon Jul 06, 2020 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 month scan
Replies: 4
Views: 538

Re: Pet scan

Hoping for a clear scan, Marie25, keep us posted! The waiting part is the worst!

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