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by Claudine
Fri Jul 10, 2020 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 month scan
Replies: 4
Views: 239

Re: 5 month scan

Yay :D :D :D
by Claudine
Mon Jul 06, 2020 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 month scan
Replies: 4
Views: 239

Re: Pet scan

Hoping for a clear scan, Marie25, keep us posted! The waiting part is the worst!
by Claudine
Fri Jul 03, 2020 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (treatments & CEA)
Replies: 19
Views: 1611

Re: Update (treatments & CEA)

And I’ve been wondering about you, Alexandra! How is Jesper doing? Low dose Xeloda with minimal side effects sounds very positive!
by Claudine
Tue Jun 30, 2020 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (treatments & CEA)
Replies: 19
Views: 1611

Re: Update (treatments & CEA)

Ouch that sounds miserable - and very stressful. My husband was on Omeprazole nonstop while doing Folfiri + Avastin; without it, he would get awful gastric reflux and heartburn. He's off now, still has some gastric issues but they could be related to wearing a tight corset 24/7 and/or taking aspiri...
by Claudine
Tue Jun 30, 2020 1:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not DX yet - Which questions should I ask my doctor?
Replies: 7
Views: 454

Re: Not DX yet - Which questions should I ask my doctor?

Welcome to the forum JC - although I am sure you wish you'd never had to visit! There were many terms I had to google from your post, and maybe I'm totally wrong, but it seems to me that there's still a possibility that you do NOT have cancer: "Polypoid as well as stenotic lesions include benig...
by Claudine
Tue Jun 30, 2020 10:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (treatments & CEA)
Replies: 19
Views: 1611

Re: Update (treatments & CEA)

Ouch that sounds miserable - and very stressful. My husband was on Omeprazole nonstop while doing Folfiri + Avastin; without it, he would get awful gastric reflux and heartburn. He's off now, still has some gastric issues but they could be related to wearing a tight corset 24/7 and/or taking aspirin...
by Claudine
Mon Jun 29, 2020 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!
Replies: 10
Views: 732

Re: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!

Fantastic! We do not know DH's TMB but it's one more weapon in our arsenal for potential future fights. Thanks for sharing!
by Claudine
Sun Jun 28, 2020 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Well, its been a minute
Replies: 15
Views: 1831

Re: Well, its been a minute

I’m very sorry about the spread, and the pain. But its positive that numbers are going down, hopefully that will be followed by liver tumor shrinkage. Are they planning to treat the brain mets (cyberknife? Surgery?). Wishing you strength for the days ahead xxxxx
by Claudine
Thu Jun 25, 2020 8:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7.5 years stage 4B; now NED for 21 months!
Replies: 8
Views: 1197

Re: 7.5 years stage 4B; now NED for 21 months!

zephyr wrote:
stevieb wrote:My tumor had KRAS mutation G12D.

Hey Sophy!! I’m still in ADAPT also. Hopefully, for 3 more months and then I can get off if it!!


Thanks for posting and giving hope to another Stage IV with a KRAS mutation.


Same here! :D
by Claudine
Wed Jun 24, 2020 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7.5 years stage 4B; now NED for 21 months!
Replies: 8
Views: 1197

Re: 7.5 years stage 4B; now NED for 21 months!

That's fantastic, Stevie! Thanks for dropping by and giving others hope. May I ask, did you have any mutations (KRAS/BRAF/NRAS)?
by Claudine
Tue Jun 23, 2020 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (9 months post surgery) (6 months post chemo)
Replies: 23
Views: 2016

Re: Update (9 months post surgery) (6 months post chemo)

To add to CR Guy - PET will catch activity above a certain size (7-8mm I believe) = DH had multiple tiny lung nodules up to 5mm and they did not « light up » on PET, they were found on regular CT scan (checking PET from a few months before, they were there but had no visible uptake, unlike the large...
by Claudine
Tue Jun 23, 2020 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (9 months post surgery) (6 months post chemo)
Replies: 23
Views: 2016

Re: Update (9 months post surgery) (6 months post chemo)

CONGRATULATIONS on this beautiful new little human being! What a fantastic way for you to focus your energy and mind away from this wretched disease! Re. port removal - my husband had his taken out after the first round of adjuvant chemo; it was a piece of cake (outpatient procedure, took 5 minutes)...
by Claudine
Mon Jun 22, 2020 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hi everyone
Replies: 11
Views: 1470

Re: Hi everyone

As long as Dr is happy - we're in the same boat, DH was basically diagnosed same time as you, he's been through a lot already but onc is not too worried for now. I've had friends say, "gee you guys have been dealing with this for a long time!" and I know they mean well but I want to say, i...
by Claudine
Thu Jun 18, 2020 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Day
Replies: 7
Views: 1312

Re: Scan Day

Fantastic! Enjoy :D :D :D
by Claudine
Thu Jun 18, 2020 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still here still clear
Replies: 15
Views: 1839

Re: Still here still clear

Big relief! Enjoy!! :D :D :D

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