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by Claudine
Wed Feb 24, 2021 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Chemo Break??
Replies: 4
Views: 977

Re: Stage 4 Chemo Break??

Well, my husband's scans have been stable (June, September, December) and despite his CEA rising, his onc isn't eager to resume chemo - he'd rather DH enjoys life chemo-free and I couldn't agree more, although of course the rising CEA does worry me... The way I see it, every day without chemo is a d...
by Claudine
Wed Feb 03, 2021 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured it is then !
Replies: 23
Views: 2734

Re: Cured it is then !

So happy for both of you (and family and friends) :D :D :D
by Claudine
Tue Jan 26, 2021 4:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's come back - :(
Replies: 36
Views: 7707

Re: It's come back - :(

Does your husband’s neuropathy make it hard for him to walk?


No fortunately, it's not that bad - just constant, low-grade pain. He did 6 cycles and it started getting bad at the 4th, but he didn't want to complain :roll:
by Claudine
Tue Jan 26, 2021 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's come back - :(
Replies: 36
Views: 7707

Re: It's come back - :(

Glad the surgery went well! Good luck with oxaliplatin. Watch out for sign of neuropathy, that's a nasty thing. We did not know enough about it and now my husband has it permanently in his feet... But if you're only getting 3 cycles you should be ok!
by Claudine
Mon Jan 11, 2021 5:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 “no cure without surgery”
Replies: 23
Views: 4090

Re: Stage 4 “no cure without surgery”

Heck yeah! Way to start 2021 in style!!
by Claudine
Mon Jan 11, 2021 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Maybe? With Mets to bone, peri, lymph?
Replies: 10
Views: 2091

Re: Stage IV Maybe? With Mets to bone, peri, lymph?

The reports say things like "consistent with bone mets," "consistent with peri mets" but nobody is making a firm diagnosis. They've done nothing exploratory. That is very surprising too. One of the first thing they did was biopsy my husband's bone met; that became even more impo...
by Claudine
Mon Jan 11, 2021 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Maybe? With Mets to bone, peri, lymph?
Replies: 10
Views: 2091

Re: Stage IV Maybe? With Mets to bone, peri, lymph?

I'm severely disappointed in his oncologist. When we told him we wanted a second opinion, he basically laughed us off and asked what we hoped to gain from that. Ouch! He offered no other alternative. Hospice I guess. Huh! What kind of answer is that!! I remember when my husband was first diagnosed,...
by Claudine
Sat Jan 09, 2021 10:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Maybe? With Mets to bone, peri, lymph?
Replies: 10
Views: 2091

Re: Stage IV Maybe? With Mets to bone, peri, lymph?

Hello fork, and welcome to the forum - I hope it can help you like it has so many of us here. I’m very sorry about your partner’s situation (and yours). It is so distressing to feel that something is profoundly wrong, yet being dismissed or brushed off... I am sure being proven right was very hard, ...
by Claudine
Thu Jan 07, 2021 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So Scared
Replies: 3
Views: 1016

Re: So Scared

There's no reason to apologize, Sonofafighter! This forum is also here for people to pour their fears and anxieties. Your fear and frustration is totally understandable. I hope you get a good plan of attack from the doc! Lung mets are scary but eminently treatable :)
by Claudine
Thu Jan 07, 2021 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back again with rising CEA now at 80
Replies: 15
Views: 4052

Re: Back again with rising CEA now at 80

My husband’s cancer was first diagnosed because of a bone met, in his 4th lumbar vertebrae. Although it is very scary because you can’t really resect a bone (or very rarely), there are powerful treatment options to destroy them or at least keep them at bay, such as SBRT. It’s been almost 3 years sin...
by Claudine
Wed Jan 06, 2021 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Chemo Break??
Replies: 4
Views: 977

Re: Stage 4 Chemo Break??

Good morning, My husband (also stage 4) has been on break for a year now, after 18 cycles of Folfiri plus Avastin. His CEA values are rising but his scan his stable; his onc said, « we treat for quality of life, and we don’t treat numbers » and in the chart wrote that he recommends the break continu...
by Claudine
Tue Jan 05, 2021 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today
Replies: 10
Views: 2065

Re: Today

I actually took a blanket out in the field and just layed in the sun


Obviously you don't live in Montana :lol:
I did buy vitamin D for my husband, we tend to be chronically low here...
by Claudine
Tue Jan 05, 2021 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today
Replies: 10
Views: 2065

Re: Today

[/quote] hide in my man cave when I am a grump[/quote]

LOL Riki, my husband does the same :D

We got this I just need 30 more years, LOL...


One day at a time eventually they do add up!
by Claudine
Mon Jan 04, 2021 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today
Replies: 10
Views: 2065

Re: Today

Those are very understandable feelings, especially during the Holidays when everyone is expected to be cheerful! My husband was on the phone with his father recently, and when asked about new year resolutions, he replied, "hum, staying alive?". It can be very hard to be upbeat all the time...
by Claudine
Wed Dec 30, 2020 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 3129

Re: Oxaliplatin Dosage - Call Off

Two years after 6 rounds of Xelox, my husband has permanent neuropathy in his feet (his hands recovered, fortunately). You are wise to pay close attention to it!

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