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by Claudine
Thu Nov 19, 2020 11:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 22
Views: 2764

Re: Xeloda Avastin Maintenance Plan

My husband also hated the Xeloda pills, felt like you Riki - wanted to throw up just thinking of them. His last CEA (late September) was 24!!! Despite clear-ish scan (he still has that damn lytic tumor in his L4). Really worried what the next one (in a month) will show. I suspect if no progression b...
by Claudine
Thu Oct 29, 2020 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2nd read of PET
Replies: 9
Views: 917

Re: 2nd read of PET

I agree with Michelle; a CEA around 8 might be your new "normal", I would worry a lot more if it was trending upwards... Still worth keeping an eye on and investigating, of course. It's great that there's no evidence of active tumor!
by Claudine
Tue Oct 27, 2020 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New stage 4 colon cancer diagnosis
Replies: 19
Views: 2622

Re: New stage 4 colon cancer diagnosis

MSS is usually open to Immunotherapy, TMB only plays a role on those with MSI Isn't it actually the opposite? MSS = micro satellite stable = not a good candidate for immunotherapy, unless you've got a high tumor burden. So your husband would not benefit from it. But I concur with Riki that being BR...
by Claudine
Sat Oct 24, 2020 8:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: collagen
Replies: 10
Views: 924

Re: collagen

Of course, that makes sense (especially the hair part). I hope it works for you!
by Claudine
Sat Oct 24, 2020 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: collagen
Replies: 10
Views: 924

Re: collagen

What are the potential benefits for cancer patients?
by Claudine
Fri Oct 23, 2020 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Support - Told today I'm on Palliative Care
Replies: 67
Views: 29634

Re: Need Support - Told today I'm on Palliative Care

Thanks Lee; it's pretty slow - he had lost pretty much all his right quad by the time he had surgery (waited too long unfortunately). He may never regain full control of his leg, but he's been doing a lot of PT, riding his bike, and today was able to drive again for the first time :D
by Claudine
Fri Oct 23, 2020 2:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: looking to donate/give away supplies
Replies: 7
Views: 698

Re: looking to donate/give away supplies

This is so thoughtful of you. You and your daughters very much in my thoughts... How old are they? When my grandmother lost her husband (my grandfather) of jaw cancer at age 64, she told me that she would have these recurring dreams of finding herself by a great chasm with no bridge and no idea of h...
by Claudine
Thu Oct 22, 2020 8:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 92835

Re: My CRC with liver mets journey

That’s totally how I’d read it. Fantastic!! :D :D :D
by Claudine
Sat Oct 17, 2020 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So the news was not good....
Replies: 7
Views: 1460

Re: So the news was not good....

Dang, I am really sorry to read this. But denial has never healed anyone, and when it comes to cancer, knowledge is power. It seems from your post that despite the bad news, your husband isn’t throwing the towel but may be considering other options? Maybe options that are more aggressive than just c...
by Claudine
Fri Oct 16, 2020 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wheels haven't stopped turning...
Replies: 10
Views: 1907

Re: My wheels haven't stopped turning...

I hope you get good news XXXXXXXXXX
by Claudine
Thu Oct 15, 2020 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brother with hx of colorectal cancer now has Mets to bladder
Replies: 11
Views: 2522

Re: Brother with hx of colorectal cancer now has Mets to bladder

Ha, my mistake, I saw the title (mets to bladder) and assumed it was from CRC.
When my husband had SBRT for his spinal met, they did warn us about a small possibility to develop leukemia...
by Claudine
Thu Oct 15, 2020 11:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 months left of life
Replies: 31
Views: 5420

Re: 3 months left of life

It looks like liver transplant is actively studied: https://www.hindawi.com/journals/cjgh/2018/9531925/
by Claudine
Thu Oct 15, 2020 10:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brother with hx of colorectal cancer now has Mets to bladder
Replies: 11
Views: 2522

Re: Brother with hx of colorectal cancer now has Mets to bladder

That seems to be an uncommon site for mets, compared with more common areas such as liver or lungs. We faced the same paucity of information when DH had a met to his adrenal gland. Maybe once you get more information, you could post something here, so others down the line may benefit from your exper...
by Claudine
Thu Oct 15, 2020 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eight years and counting ...
Replies: 12
Views: 1180

Re: Eight years and counting ...

2020 - My 19-year old orange tabby cat died of old age. He had been my constant companion throughout all my months of treatment and recovery. Aww sorry about losing your pet - 19 years, what a long life! We recently had to say goodbye to our sweet Gali, she was 16; and now are the happy parents of ...
by Claudine
Thu Oct 15, 2020 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 months left of life
Replies: 31
Views: 5420

Re: 3 months left of life

Dear Nicole, I apologize if anything I write is inappropriate, or callous, or very unhelpful - our western society is so disconnected with the end of life, we (or at least I) do not know how to deal with it, talk about it... But, a few thoughts... This may be totally stupid, but have there ever been...

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