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by Claudine
Tue Oct 15, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 768
Views: 280524

Re: For Stage III's: NED for how long now?

Thank you so much for your testimony, Cured. Hopefully you can be true to your name and beat this thing one more time! As you can see from my signature, my husband is also dealing with lung mets; it's great to hear from another person for whom Folfiri did the trick for those! I assume you're on Avas...
by Claudine
Mon Oct 14, 2019 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX vs. FOLFIRI
Replies: 9
Views: 392

Re: FOLFOX vs. FOLFIRI

Rock Robster LOL :lol: :lol: :lol:
by Claudine
Fri Oct 11, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX vs. FOLFIRI
Replies: 9
Views: 392

Re: FOLFOX vs. FOLFIRI

In terms of side effects from Folfiri + Avastin - yes, hair loss, although my husband didn't go bald; his hair just thinned a lot (and since he's a 53 year old guy, nobody who didn't know him before notices). Fatigue after the infusion - worse now than the first few cycles. Bloody nose and drippy no...
by Claudine
Fri Oct 11, 2019 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX vs. FOLFIRI
Replies: 9
Views: 392

Re: FOLFOX vs. FOLFIRI

My husband did 6 rounds of Xelox (Xeloda + Oxaliplatin) as adjuvant chemo. It didn't work at all (he developed new mets in adrenal gland and lungs) and gave him horrible peripheral neuropathy in his hands and feet - feet still hurting a lot one year after the last infusion. He started Folfiri + Avas...
by Claudine
Fri Oct 11, 2019 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone had an adrenal gland met removed/zapped?
Replies: 2
Views: 155

Re: Anyone had an adrenal gland met removed/zapped?

Aww thanks Stu! Yes we're pretty pleased with that. It does make chemotherapy more tolerable when you know that it's actually working!
by Claudine
Fri Oct 11, 2019 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone had an adrenal gland met removed/zapped?
Replies: 2
Views: 155

Anyone had an adrenal gland met removed/zapped?

DH still has 5 Folfiri/Avastin cycles then another scan on which, hopefully, his adrenal gland met will have shrunk some more (it's about 4.1cm right now). His oncologist likes it "in place" so he can evaluate the efficacy of the treatment on cancer cells that cannot be detected. But he's ...
by Claudine
Wed Oct 09, 2019 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice Needed: Is lung surgery the best approach?
Replies: 9
Views: 349

Re: Advice Needed: Is lung surgery the best approach?

The surgeon plans to palpitate each lung to remove any additional tumors that may not be visible on the CT scan. How small does he think he can "feel"? On my husband's CT scan, they were able to detect lung lesions as small as 1mm. Could the surgeon "feel" even smaller ones? Or ...
by Claudine
Tue Oct 08, 2019 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 19
Views: 1909

Re: Keytruda Side Effects: bad joint pain

I'm so sorry you're in such pain, Boxhill. Yes, it's wonderful that Keytruda is working on your cancer, but quality of life is also really important. I hope you get that cortisone shot, or something that helps!
by Claudine
Tue Oct 08, 2019 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Promising new research
Replies: 4
Views: 406

Re: Promising new research

I don't think they've reached that point yet... Still doing in vitro on cell cultures it seems.
by Claudine
Tue Oct 08, 2019 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Promising new research
Replies: 4
Views: 406

Promising new research

A friend posted on FB regarding a new molecule called Glutor, that blocks a cancer cell’s ability to uptake and metabolize glucose and apparently works against 44 different cancers in vitro. I did a quick google search and this article popped up:
https://www.ncbi.nlm.nih.gov/pubmed/31303578
by Claudine
Mon Oct 07, 2019 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long flights with cancer/chemo
Replies: 15
Views: 1188

Re: Long flights with cancer/chemo

My husband has been flying all over (within US but also between US to France) while on chemo and it's never been a problem :)
by Claudine
Mon Oct 07, 2019 9:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer diagnosed July 2019
Replies: 10
Views: 501

Re: Colon cancer diagnosed July 2019

Welcome helenef, hopefully this forum will be able to bring you as much comfort and useful information as it has others! I can't really answer your questions, but I read that Folforixi gives better results than Folfiri. Hopefully it'll shrink your tumor nicely and you can get surgery soon! Good luck...
by Claudine
Fri Oct 04, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any others with pathologic mutation of ATM gene?
Replies: 3
Views: 522

Re: Any others with pathologic mutation of ATM gene?

The brother of a friend of mine is dealing with his 3rd cancer in about 12 years. Those are NOT recurrences of a single cancer - they're "completely different" cancers, and his docs tell him that they're unrelated. In this case, it would make so much more sense to have a genetic mutation t...
by Claudine
Wed Oct 02, 2019 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long oxilaplatin can be taken?
Replies: 6
Views: 708

Re: How long oxilaplatin can be taken?

Hi Suniva, My husband did 6 cycles of Xelox (oxaliplatin + Xeloda). Side effects (peripheral neuropathy) became really bad at the 5th treatment, and as adjuvant chemo it did not work anyway... Even if it had worked, I'm not sure how long he would have been able to take it because of the awful side e...
by Claudine
Wed Oct 02, 2019 9:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what is chemo for life?
Replies: 3
Views: 941

Re: what is chemo for life?

Good morning Natelaugh, I will just share with you this story about a colleague who, some years ago, was diagnosed with small bowel cancer. She got ressected, and that was that. Then a year later she developed a large met in her pelvic area; its location close to vital organs made surgery and radiat...

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