Yay

Hoping for a clear scan, Marie25, keep us posted! The waiting part is the worst!

And I’ve been wondering about you, Alexandra! How is Jesper doing? Low dose Xeloda with minimal side effects sounds very positive!

Ouch that sounds miserable - and very stressful. My husband was on Omeprazole nonstop while doing Folfiri + Avastin; without it, he would get awful gastric reflux and heartburn. He's off now, still has some gastric issues but they could be related to wearing a tight corset 24/7 and/or taking aspiri...

Welcome to the forum JC - although I am sure you wish you'd never had to visit! There were many terms I had to google from your post, and maybe I'm totally wrong, but it seems to me that there's still a possibility that you do NOT have cancer: "Polypoid as well as stenotic lesions include benig...

Ouch that sounds miserable - and very stressful. My husband was on Omeprazole nonstop while doing Folfiri + Avastin; without it, he would get awful gastric reflux and heartburn. He's off now, still has some gastric issues but they could be related to wearing a tight corset 24/7 and/or taking aspirin...

Fantastic! We do not know DH's TMB but it's one more weapon in our arsenal for potential future fights. Thanks for sharing!

I’m very sorry about the spread, and the pain. But its positive that numbers are going down, hopefully that will be followed by liver tumor shrinkage. Are they planning to treat the brain mets (cyberknife? Surgery?). Wishing you strength for the days ahead xxxxx

zephyr wrote:

stevieb wrote:My tumor had KRAS mutation G12D.

Hey Sophy!! I’m still in ADAPT also. Hopefully, for 3 more months and then I can get off if it!!

Thanks for posting and giving hope to another Stage IV with a KRAS mutation.

Same here!

That's fantastic, Stevie! Thanks for dropping by and giving others hope. May I ask, did you have any mutations (KRAS/BRAF/NRAS)?

To add to CR Guy - PET will catch activity above a certain size (7-8mm I believe) = DH had multiple tiny lung nodules up to 5mm and they did not « light up » on PET, they were found on regular CT scan (checking PET from a few months before, they were there but had no visible uptake, unlike the large...

CONGRATULATIONS on this beautiful new little human being! What a fantastic way for you to focus your energy and mind away from this wretched disease! Re. port removal - my husband had his taken out after the first round of adjuvant chemo; it was a piece of cake (outpatient procedure, took 5 minutes)...

As long as Dr is happy - we're in the same boat, DH was basically diagnosed same time as you, he's been through a lot already but onc is not too worried for now. I've had friends say, "gee you guys have been dealing with this for a long time!" and I know they mean well but I want to say, i...

Fantastic! Enjoy

Big relief! Enjoy!!