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by Claudine
Fri Apr 03, 2020 8:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 749

Re: Chemo break due to covid-19 outbreak

This past couple of weeks, DH has been having horrendous pain in his right leg. He can barely walk, sleep. Could be because his damaged vertebrae has collapsed - or because the tumor is active again (although it’s not his back that’s hurting but his leg, so I’m leaning towards nerve impingement). He...
by Claudine
Wed Apr 01, 2020 10:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 68
Views: 5240

Re: Cea on the rise

That's great news!! I hope the downward trend continues :)
by Claudine
Fri Mar 27, 2020 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 320
Views: 55540

Re: My CRC with liver mets journey

I was hoping for "another clear scan" post... I understand how upsetting this must be (what a roller coaster of emotions..) But on the plus side - the mets (if that's what they are) are still small and in the liver, things have not spread elsewhere, and hopefully this is just a small "...
by Claudine
Wed Mar 18, 2020 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 1204

Re: Clear scans!

Woo-ooo! Something positive to start the day :D
by Claudine
Mon Mar 16, 2020 7:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 42
Views: 2750

Re: Scary times . . .

We cancelled our trip to California. Things are just too uncertain, and even though DH’s onc said that his immune system has rebounded, we did not want to be spreading the virus around should we catch it. Daughter has found an apartment to sublet, she’ll stay there for now. The only one happy about ...
by Claudine
Mon Mar 16, 2020 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any one experience with pelvis, perirectal and lung met
Replies: 4
Views: 541

Re: Any one experience with pelvis, perirectal and lung met

I'm sorry this is happening Suniva... My husband did Folfiri + Avastin and that seemed to take care of his lung nodules. Like you he's refractory to Oxaliplatin. Folfiri is a good choice for second-line chemo!
by Claudine
Sat Mar 14, 2020 8:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Great book - Denali
Replies: 3
Views: 316

Re: Great book - Denali

Yep I know that but Ben Moon is known for his climbing photography.
by Claudine
Sat Mar 14, 2020 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How risky is it to take a chemo break?
Replies: 10
Views: 502

Re: How risky is it to take a chemo break?

Claudine, can you tell me how long of a break he would take or how long the oncologist said was ok? What I would like to do is skip over one infusion so there would be 4 weeks instead of two when/if I get my next infusion. He had 4 weeks between two cycles when we traveled last July, and twice his ...
by Claudine
Sat Mar 14, 2020 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How risky is it to take a chemo break?
Replies: 10
Views: 502

Re: How risky is it to take a chemo break?

Hi Vincent,
My husband’s oncologist always said that a break was fine, especially such a short one; my husband took several last year and they never affected the efficacy of the treatment.
by Claudine
Sat Mar 14, 2020 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nomogram Predictive Tools--Are they accurate?
Replies: 13
Views: 612

Re: Nomogram Predictive Tools--Are they accurate?

Ha ok, thanks Rob! It’s true that the input is very minimal. Regardless, what I found interesting is that the output stated « Of those who don't survive, 39 are likely to die due to their colorectal cancer and 23 due to other causes.«  That surprised me, I'd have expected a much lower value than 23%...
by Claudine
Fri Mar 13, 2020 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nomogram Predictive Tools--Are they accurate?
Replies: 13
Views: 612

Re: Nomogram Predictive Tools--Are they accurate?

I’m struggling with this calculator - it doesn’t ask about N- or M-score at all. Do we assume this is only for stage I-II disease then?


The drop down menu for tumor stage goes form 1 through 4 - isn’t that equivalent to cancer stage I-IV?
by Claudine
Fri Mar 13, 2020 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Great book - Denali
Replies: 3
Views: 316

Re: Great book - Denali

Ha, as a climber I'll definitely check it out, thanks for the suggestion :)
by Claudine
Fri Mar 13, 2020 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: cutting chemo before 6 infusions
Replies: 14
Views: 755

Re: cutting chemo before 6 infusions

Hello Vincent33, I remember reading a scientific article that made the point that there was little benefit to doing 6 vs 4 cycles (or 3? I can't remember now). Had we known that Xelox would give my husband permanent neuropathy in his feet, we'd have asked for him to stop after cycle 4 instead of doi...

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