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by Claudine
Fri Dec 13, 2019 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Suspicious CT scan - need feedback
Replies: 4
Views: 166

Re: Suspicious CT scan - need feedback

I guess I'd be more concerned about multiple myeloma if you'd received a lot of radiation treatment for your cancer, but that doesn't seem to be the case based on your signature, correct? After a bout with cancer, it is so hard not to think that anything out of the ordinary is cancer! I really hope ...
by Claudine
Thu Dec 12, 2019 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 16
Views: 1562

Re: Baseline CEA levels

I remember the oncologist telling us not to panic if CEA levels starting by going UP after chemo, instead of going down; he said it's not uncommon. Didn't happen for my husband, though. And, he also had a multitude of small lung nodules, yet his CEA was more what you'd expect (58). I guess Jesper is...
by Claudine
Thu Dec 12, 2019 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri and Nausea
Replies: 12
Views: 884

Re: Folfiri and Nausea

Interesting how people have such different reactions to the same treatment. My husband was completely clobbered by Xeloda/Oxaliplatin but so far Folfiri has been a breeze (by comparison), even after 18 cycles.
by Claudine
Wed Dec 11, 2019 12:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 26
Views: 1938

Re: My recent significant CEA jump.

That's fantastic, a nice present just in time for the holidays!
by Claudine
Tue Dec 10, 2019 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checking In- Diagnosed in September 2014
Replies: 4
Views: 661

Re: Checking In- Diagnosed in September 2014

Life is pretty good today. I do live with some pretty bad peripheral neuropathy in both of my feet. I use gabapentin, but it is not a cure for me. I am seeing a chiropractor now and he is using a tens unit and cold laser therapy on both of my feet. It seems to be helping. We will see how that goes....
by Claudine
Mon Dec 09, 2019 5:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is radiation/chemo treatment actually like?
Replies: 15
Views: 963

Re: What is radiation/chemo treatment actually like?

My husband had radiation, 5 days a week for 4 weeks (I think). He was tired and felt nauseated right after, but felt better after a couple of hours. It was pretty fast, 15 minutes each time maybe? Of him being in the radiation room (which included undressing, etc). The actual radiation was only a fe...
by Claudine
Mon Dec 09, 2019 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 16
Views: 1562

Re: Baseline CEA levels

It seems to me that what matters, if CEA levels are good indicators for you, is the trend, not single values. But even so. I was so worried this morning when we went to the onc to hear about last Friday's control scan. My husband's levels, after bottoming out at 3.2 in July, have since slowly but re...
by Claudine
Mon Dec 09, 2019 4:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Accident with 5FU bottle
Replies: 5
Views: 818

Re: Accident with 5FU bottle

A few cycles ago, my husband had a bad coughing fit which, unbeknownst to him, disconnected his chemo pump. When he went to flush it (he removes it himself) he realized that he was injecting the fluid under his skin... Ended up going to the place where they install the pump, and they cleaned up the ...
by Claudine
Mon Dec 09, 2019 4:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear CT results!
Replies: 14
Views: 1085

Re: Clear CT results!

Woo ooo!! Have you scheduled that new tat' yet?
by Claudine
Thu Dec 05, 2019 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 43
Views: 3218

Re: Please help, input needed

So far my husband has been able to work normally through all the treatments he's had (well, except from recovering from surgery, of course). Radiation made his tired and nauseated for a few hours, and he's in pretty bad shape the afternoon after chemo, but he's got a flexible job so he's been able t...
by Claudine
Tue Dec 03, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Perirectal abcesses.
Replies: 2
Views: 358

Re: Perirectal abcesses.

I cannot answer your question, RichieTheK, but I wanted to tell you that I feel for you - what a fighter you are, going from one treatment to the next with your prognosis. As you can see in my signature my husband has some similar issues (mets in bone, lungs) and I do not know if he'll be able to be...
by Claudine
Mon Nov 25, 2019 2:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and scans
Replies: 8
Views: 395

Re: CEA and scans

When DH was doing adjuvant chemo, they never looked at his CEA. Now that he's doing second line for mets, he gets his CEA measured before each infusion (so, twice a week); and a scan every 6 cycles - next one is December 6th, I'm stressing out already, especially since his CEA values have been stead...
by Claudine
Mon Nov 25, 2019 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 35
Views: 2368

Re: Freaking out of my mind...CEA climb and specks on lungs

Fingers crossed. I hope you manage to get some sleep tonight. Waiting for results can generate so much anxiety!
by Claudine
Thu Nov 21, 2019 2:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Airline experiences?
Replies: 10
Views: 538

Re: Airline experiences?

A little while back I looked into cancellation insurances; there are some that will allow for any pre-existing condition (they're more expensive, of course). But not all pre-existing medical condition exclusion waivers cover cancer so one needs to do their homework carefully! We ended up not buying ...
by Claudine
Thu Nov 21, 2019 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why Cancer Patients Push Loved Ones Away
Replies: 2
Views: 363

Re: Why Cancer Patients Push Loved Ones Away

It's something that my mother in law has a really hard time dealing with (my husband is one who prefers to be left alone). She doesn't live nearby but is texting him daily, with lots of support messages and loving emojis which drive him crazy (I mean, he's 53...). I've totally accepted his wanting t...

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