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by Claudine
Mon Jan 20, 2020 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching to Xeloda, what to expect?
Replies: 2
Views: 99

Re: Switching to Xeloda, what to expect?

My husband did Xeloda + Oxaliplatin, I'm not sure I can tease apart the side effects - he suffered big time from oxi though, probably not so much from Xeloda. And he did not lose his hair at all on this regimen, so hopefully yours will grow back!
by Claudine
Sun Jan 19, 2020 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for inspirational or happy tunes
Replies: 164
Views: 24490

Re: Looking for inspirational or happy tunes

I discovered Jake Fussell recently. This song in particular always make me smile! Simple pleasures...

https://youtu.be/8898tHKjeOo
by Claudine
Sun Jan 19, 2020 12:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When is it my turn
Replies: 12
Views: 564

Re: When is it my turn

I think at NED not like No evidence of disease but like NO Expiration Date .... Ooo I love this! And your entire post, Mrned82. Trying, because my husband has a bone tumor, he will never be considered NED - unless it’s using the Mrned82 definition! The tumor will always be there because one cannot ...
by Claudine
Thu Jan 16, 2020 2:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 48599

Re: My CRC with liver mets journey

My husband had 6 rounds of Xelox as mop up and it did not work at all, sometimes I even wonder if it made his body weaker and allowed the cancer to spread! He's scheduled for surgery on February 11 and the oncologist isn't planning to resume chemo afterwards, unless his CEA levels go up. I know I'll...
by Claudine
Wed Jan 15, 2020 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coughing up blood
Replies: 6
Views: 376

Re: Coughing up blood

There you go: "This includes vomiting or coughing up blood ; bleeding in the stomach, brain, or spinal cord; nosebleeds; and vaginal bleeding. If you recently coughed up blood or had serious bleeding, be sure to tell your doctor" https://www.avastin.com/patient/ovar/treatment/possible-side...
by Claudine
Wed Jan 15, 2020 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coughing up blood
Replies: 6
Views: 376

Re: Coughing up blood

I don't know about coughing up blood but my husband definitely has blood in his tissue whenever he blows his nose - because of Avastin. And his legendary tolerance of really spicy food has disappeared - so yes the treatment does a number on mucous membranes. So hopefully it's like the nurse said! I ...
by Claudine
Wed Jan 15, 2020 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery tomorrow! Need positive vibes
Replies: 17
Views: 692

Re: Surgery tomorrow! Need positive vibes

Well, I cannot think of anyone on this forum (since I’ve been following it) that has had something bad happen with their surgery. You’ll be fine!! And this nasty stuff will be OUT of your body! My husband’s surgery is scheduled for February 11th, and believe me, I’m counting the days. That said, it’...
by Claudine
Tue Jan 14, 2020 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans today
Replies: 6
Views: 423

Re: Scans today

Here’s to another clear scan, Thubler!
by Claudine
Mon Jan 13, 2020 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The last thing I expected at my MSK appt today
Replies: 13
Views: 716

Re: The last thing I expected at my MSK appt today

That is such wonderful news!! May your follow up scans keep coming clear! Then you can join the ranks of those who drop by every few years and give the rest of us hope :D
by Claudine
Sun Jan 12, 2020 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer and coffee????
Replies: 11
Views: 594

Re: Cancer and coffe????

When my husband was on XelOx he stopped drinking coffee, but not because of medical reasons - the taste of it suddenly became awful to him. On Folfiri however, no alteration of taste so he’s been enjoying his usual French press of the dark stuff daily!
by Claudine
Thu Jan 09, 2020 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member - scared & looking for tips
Replies: 35
Views: 2134

Re: New member - scared & looking for tips

Malidosa, from what I've been able to gather, well or moderately differentiated cancer cells tend to spread slower than poorly differentiated cells; differentiation level is based on cell aspect under the microscope. So it's good that your cells are moderately differentiated! https://www.cancer.org/...
by Claudine
Thu Jan 09, 2020 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Zantac and Colon Cancer
Replies: 21
Views: 1258

Re: Zantac and Colon Cancer

One of my friend has thyroid problems. She was on a medication that worked great, then suddenly she started having problems again. Looking into it, she learned that the manufacturing, which was originally all made in Germany (I think), had been outsourced to China; the active ingredient is the same,...
by Claudine
Thu Jan 09, 2020 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for opinions or advice I guess.. (maybe just support)
Replies: 2
Views: 272

Re: Looking for opinions or advice I guess.. (maybe just support)

Welcome to the forum, it is a wonderful source of information and support! My husband just finished 18 rounds of Folfiri + Avastin (same protocol as yours, with the heavy infusion followed by 46 hours chemo pump). His situation is different (no liver involvement) but the goal was also tumor control ...
by Claudine
Wed Jan 08, 2020 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COMING OUT!!!!!
Replies: 6
Views: 717

Re: COMING OUT!!!!!

I love it :D :D :D
by Claudine
Wed Jan 08, 2020 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally staged at IIIc
Replies: 7
Views: 667

Re: Finally staged at IIIc

There was a time when a cancer diagnosis was a death sentence. Then it moved to you're either cured, or dead. Now it's entering a third phase - cancer as a chronic disease. Since my husband's diagnosis, I don't know how many people have told me about loved ones that have been living with cancer for ...

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