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by Butt
Tue Nov 17, 2020 12:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab
Replies: 7
Views: 3339

Re: Regorafenib + Nivolumab

For now it worked. The scan showed a decrease. You may think it is good but it knocked me off and basically put straight to bed. I also developed 2 infections that specifically listed as a side effect and put me on 2 different antibiotics. Again, I became disfunctional due to a severe fatigue. 80 mg...
by Butt
Mon Oct 12, 2020 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On Stivagra and no energy.
Replies: 2
Views: 1407

On Stivagra and no energy.

I am currently on 80 mg per day of Stivagra and Optivo. I don t have energy to leave the house.
by Butt
Mon Oct 12, 2020 11:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab
Replies: 7
Views: 3339

Re: Regorafenib + Nivolumab

If you doc can prescribe optivo it is good.
by Butt
Sun Oct 11, 2020 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab
Replies: 7
Views: 3339

Re: Regorafenib + Nivolumab

I am currently taking it.
by Butt
Fri Sep 11, 2020 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on Stivagra plus Opdivo?
Replies: 1
Views: 732

Anyone on Stivagra plus Opdivo?

If so any good results? What are your side effects and what are your dosages?
by Butt
Wed Apr 15, 2020 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A question on a scan.
Replies: 6
Views: 1131

Re: A question on a scan.

I am already on chemo and they are running of options.
by Butt
Tue Apr 14, 2020 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A question on a scan.
Replies: 6
Views: 1131

A question on a scan.

I have mets in lungs and a few chest lymph nodes. I am on Folfox and Avastin. It is a recycled version. The doc said the scan was good my suddenly a lymph node in my abdominal cavity appeared 1.2 on 2.6 mm. He wants to postpone a but PET. It was Cat and avoid biopsy. He strongly thinks it is cancer....
by Butt
Fri Mar 20, 2020 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NCI stopped recruiting for cancer trails?
Replies: 2
Views: 855

NCI stopped recruiting for cancer trails?

Is it True that the NCI stopped recruiting for cancer trails because of the virus?
by Butt
Mon Mar 16, 2020 6:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL
Replies: 11
Views: 2027

Re: TIL

Ok. I received this info from an MD Anderson doc who supervises their TIL trail. I asked specifically if there are any other places in the US that do this trail without HLA or that specific mutation and the answer was No. Now, I looked on this trail and my understanding that 2 groups are closed. Not...
by Butt
Sat Feb 22, 2020 1:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL
Replies: 11
Views: 2027

Re: TIL

It was my plan B. MD Anderson showed me a report where they screened about 2400 colon cancer patients and only about 28 or so were qualified. First, need to have HLA in a blood, second a very specific rear mutation.
by Butt
Fri Feb 21, 2020 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need emotional help
Replies: 13
Views: 1885

Re: I need emotional help

I am stage 4 , PSTD with no family support in this country. .....
by Butt
Fri Feb 21, 2020 11:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life insurance
Replies: 3
Views: 655

Life insurance

If you surrender your life insurance vans use you are terminal do you pay Texas on that amount?
by Butt
Fri Feb 21, 2020 11:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL
Replies: 11
Views: 2027

TIL

Only 1 percent of colon cancer patients is eligible for TIL. Info received from an MD Anderson TIL expert.
by Butt
Fri Feb 21, 2020 11:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Medical intuitive
Replies: 2
Views: 798

Medical intuitive

Did anyone worked with a medical Intuitive? Did it help? If so what is a contact info?

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