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by nifty624
Thu May 02, 2019 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hey Nifty - was just thinking about you and wondered if you started Chemo ! Congrats on the good pathology news ! What's your WW surveillance arrangement with your team like ? My mum had a port installed herself a few years back due to colon cancer and she appreciated it. Like you, they often could...
by nifty624
Thu May 02, 2019 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I completely understand your hesitation about elective surgery right now! For me, I would weigh my quality of life against the risk (and I'd read only top notch medical journals and studies for the information, just to be on the safe side).
I didn't realise you had a port too! I missed that somehow.
by nifty624
Thu May 02, 2019 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi lakeswim, I just had my port installed on Monday. There was some inflammation/swelling as in many minor surgeries. I hadn't really heard anything about port installation possibly triggering metastasis. To be honest, I'm not sure how the port and its associated brief period of swelling could be an...
by nifty624
Sun Apr 21, 2019 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Everyone, I'm glad to hear things went Ok for your first XELOX treatment. How is your arm now? I chad follow up with the oncologist and am now scheduled to start FOLFOX on May 1. I am having the port installed on April 29. I see the surgeon for follow up on Tuesday and in the interim, he communic...
by nifty624
Wed Apr 10, 2019 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi All, I had the TAMIS procedure last Friday and all went well, I have had very little pain and very little bleeding. My main challenge is getting the ileitis back under control after two days without meds. I've had to go back to the tincture of opium for a couple of days to stop the turbulence and...
by nifty624
Tue Apr 02, 2019 1:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, I'm not sure if the port is required for everyone, or if my oncologist thinks it is necessary in my case. Due to the ileitis, I had a lot of difficulty with dehydration and there was a lot of difficulty finding good veins for infusions. It is all connected, of course - the chemo making my...
by nifty624
Mon Apr 01, 2019 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene! I am thrilled to hear your good news about the complete response and great biopsy results. I agree with weissoccermom - I believe there is huge value in doing mop up chemo. I don't think of it as a strategy to prevent local recurrence (though it may help, since chemo works systemically) b...
by nifty624
Fri Mar 29, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

weisssoccermom wrote:BTW....4.5 cm is NOT considered super low.

Patients with 2-3 cm ARE considered low.



Good to know! Thanks, weissoccermom.
by nifty624
Fri Mar 29, 2019 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, Just to clarify something -- my tumor was located 4.5 cm from the anal verge. Quite low, I think. My surgeon does have concerns - he has warned me about the possibility of having to go back for an ileostomy if I cannot heal or develop infection. He did see scarring and also some healthy look...
by nifty624
Thu Mar 28, 2019 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I had a local excision in 2007 after a complete clinical response to chemoradiation. I'm not sure what 'side effects' your doctor is talking about. Yes, I had a slight amount of pain (mine was due to the fact that the instruments were pushed against my tailbone for the duration of the surgery and I...
by nifty624
Tue Mar 26, 2019 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, Another thing they can do with the flex sig scope is take samples for biopsy. My surgeon did that and the absence of any remaining cancer cells in those samples helped make him even more comfortable with my decision to do a LE and adjuvant chemo. Although tbh he was already saying it seemed ...
by nifty624
Tue Mar 26, 2019 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 131498

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, It sounds like we are at similar stages in treatment - although I think you are a little ahead of me. I am at about 9 weeks post nCRT. My surgeon had planned to do the LAR procedure on me as a matter of standard treatment protocol for a T3N1M0 (although my T3 was borderline - at first the...

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