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by Jolene
Tue Jan 19, 2021 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 215264

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I'm officially 2 years in the clear. Yay! All came out clear for MRI/ CT / Flex scope / Biopsy / Blood test ! It has been tough and I'm exhausted but it's another year closer to the 5 year mark! White blood cell count is low though which is strange, probably a side effect of all the chemo and radiat...
by Jolene
Tue Dec 22, 2020 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 215264

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hey Mozart, thanks for checking in! Congrats on your 4th year! Wishing you all the best towards the 5th year.

Indeed, PRS's thread has given us WWers so much to learn from and to hope for!
by Jolene
Mon Dec 21, 2020 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 215264

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, I too am keeping my fingers crossed for you, and will be very happy when you hit that two year milestone in January! Hopefully that will help take some of the stress out of your mind, knowing the chance of a recurrence continues to decrease. This pandemic for sure isn't helping any of us...
by Jolene
Sat Dec 12, 2020 1:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 215264

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hello all, just checking in to say hello for a bit. My next test will be in Jan 2021 and if pass, I will have hit the 2 years mark. Fingers crossed. It's been 2 years since I have been lurking around. Always grateful to all on the board here ! Life has been fairly well at least on the surface of thi...
by Jolene
Sat Nov 28, 2020 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The stigma of cancer
Replies: 9
Views: 987

Re: The stigma of cancer

Life is strange when something like cancer invades and most people are clueless how to act and can hurt your feeling. So, no thanks with telling. Been there done that already with my sisters. My feelings are if you can't help me you don't need to know! I like this! Good words to live by moving forw...
by Jolene
Fri Nov 27, 2020 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The stigma of cancer
Replies: 9
Views: 987

Re: The stigma of cancer

Oh, so glad to see this being addressed on here. Big hugs as I know where you are coming from. I definitely felt it. I have a group of long time friends (20 years!) who after finding out that I was diagnosed with cancer, seem to be so lost for words that almost after 2 years they are still unable to...
by Jolene
Fri Oct 23, 2020 10:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Total Pelvic Exenteration
Replies: 11
Views: 1871

Re: Total Pelvic Exenteration

Hi Shania - Thank you for sharing your story. It's such an awe-inspiring one and I'm speechless after reading. You sound like one amazing strong woman. I honesty don't know if I could muster the same courage as you did if it happened to me. It's amazing that you never gave up and took the initiaitve...
by Jolene
Fri Oct 23, 2020 9:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: looking to donate/give away supplies
Replies: 7
Views: 818

Re: looking to donate/give away supplies

Hi Jep - Sorry to hear about your husband. I hope you and the family find comfort knowing that he is in a better place. I'm not in the US but I wonder if you can google to see if there might be some nearby non-profit cancer associations and see if it might be useful for their patients. They depend o...
by Jolene
Wed Oct 21, 2020 8:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Help With Weight Loss/Endless Painful Constipation
Replies: 24
Views: 2476

Re: Please Help With Weight Loss/Endless Painful Constipation

I truly believe there is more to this story than what we are getting. Ever hear that old saying "there are 2 sides to every story"! For someone who wants help, when I asked several specific questions, I got vague repeat answers as a response. You can't really help someone who want to be t...
by Jolene
Tue Oct 20, 2020 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Help With Weight Loss/Endless Painful Constipation
Replies: 24
Views: 2476

Re: Please Help With Weight Loss/Endless Painful Constipation

Oh dear, this sounds terrible. I am shocked that MSK hasn't stepped up at all given how well known they are for their bowel cancer studies? How about writing something official to their medical board directors direclty and bringing it to their attention if your healthcare team couldn't be bothered ?...
by Jolene
Mon Oct 19, 2020 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Urinary issues after chemoradiation ?
Replies: 8
Views: 2045

Re: Urinary issues after chemoradiation ?

Hi everyone - thanks for sharing and thought I'll do an update and continue sharing with those who might have the same issue. Finally got round to checking in with a urologist - thank god it was a female doc as it's one of the most unglamarous tests I've ever done in my life while having to be awake...
by Jolene
Mon Oct 19, 2020 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 215264

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi road runner - if you do a search on excision I believe you will find a lot of information on this thread. There was one poster who was very pro excision though I cannot remember her nickname. I think it worked very well for her. Before I was declared a WW case, I inquired about excision after rea...
by Jolene
Fri Oct 09, 2020 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Urinary issues after chemoradiation ?
Replies: 8
Views: 2045

Re: Urinary issues after chemoradiation ?

So that is what I felt. Last fall, I started passing a small amount of blood. Assumed it was bladder cancer. The urologist put a camera inside of me to look inside the bladder, All was clear. As the camera is going in, there is a split second of pain, nothing real biggy, just uncomfortable for a sp...

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