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by Jolene
Wed Jul 01, 2020 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

prayingforccr - I"m not sure if this is helpful for you but based on latest published studies, CCR can take up to 16 weeks based on a 2019 study ! When W&W first made it's headline by Dr Habr-Gama, 8 weeks was the benchmark. Further studies later pushed it to 12 weeks and the most recent o...
by Jolene
Tue Jun 30, 2020 12:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jogey - your timeline and situation is so similar to mine. I got diagnosed in Nov 2018 too. Went through an identical treatment procedure as you did and also doing all the tests and scops every 4 months. Great news on the all clear so far and hope it continues to stay that way for you. :D I'm cur...
by Jolene
Fri Jun 19, 2020 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Prs we finished CRT 28th March 2020, so it's been 11 weeks after treatment, and now we are thinking of doing the mop up chemo. Yes stray cancer cells are the worry for us as well, especially since it looked like 1 Node was involved in the workup investigations after the first DX. Is mop up or Adjuv...
by Jolene
Tue Jun 02, 2020 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hello everyone - just checking into this thread to say hi as I have mostly been busy and only have enough time to lurk around! Nice to see some familiar names popping up to update their situation and some new names joining the WW-ers! My quarterly scans and test have been pushed back a number of tim...
by Jolene
Mon Jan 20, 2020 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hello WW-ers, I got an all clear today with my scans and have officially passed the 1 year mark since radiation. :D Last week I did a full colonoscopy, biopsy, MRI and ultrasound for results triangulation and it all came out negative. Doc was very pleased with what he saw. My surveillance routine mo...
by Jolene
Mon Jan 13, 2020 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Last Round of Chemo!!
Replies: 8
Views: 1314

Re: Last Round of Chemo!!

Congrats and hang in there for the last round !!! Keep us posted !
by Jolene
Mon Jan 13, 2020 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, My CT scans are 3 months apart now. Each scan is scheduled only at the readout of the prior scan. After the VATS surgery to remove the metastatic lung nodule, the two scans that I have had were "eye to thigh"- including chest, abdomen and pelvis. I have been also having sigmoidosc...
by Jolene
Fri Jan 10, 2020 11:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thank you for your update. I mentioned watch and wait yesterday during my mothers doctors appointment and was advised that it's not something they do. Even if they did I believe the watch and wait method would drive my mother crazy. She wants her mass cut out now! But she's in the early stages, has...
by Jolene
Fri Jan 10, 2020 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I am a wait and watch adopter who avoided colon/rectal surgery three years ago when there was a complete response to the neoadjuvant therapy. I was initially diagnosed as T3N0M0. Although there was no surgery, there was a 6-cycle Xelox adjuvant chemo as well. Unfortunately, a metastatic nodule was ...
by Jolene
Sun Jan 05, 2020 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Great news annie ! Thanks for sharing with us WW !!! Always hopeful to hear another all clear from a fellow ww !
by Jolene
Wed Jan 01, 2020 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

HI PRS - Thank you for your well wishes ! I hope you are well yourself ! And hello to all the other WW-ers ! This board has been quiet and I see that as a good thing ! I am officially 1 year on WW today ! (Finished my radiation exactly on the 31st Dec 2018). Going for another round of check next wee...
by Jolene
Sun Nov 10, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Just wanted to report I had another six monthly follow up last week. The results of both the MRI and the flex sig were fine. That's now 4 1/2 years NED since the end of my radiation treatment. Apparently I get one more six monthly follow up and then go annually after that. My Doctor told me at thei...
by Jolene
Tue Oct 08, 2019 9:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Lakeswim - I have been thinking of you too ! Glad to know all is going good for you ! I think we are very close in terms of marking the date when radiation ended - that's the date where docs use to measure how long one is NED. My very first treatment was rad/chemo which ended Dec 2018. I was then u...
by Jolene
Sun Oct 06, 2019 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 487
Views: 175287

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Just had another round of scans and I'm in the clear again ! (for now!). Yay ! Any residual chemo should have wean off by now and so I'm hoping this good news is not under the suppression of any chemo. One can only stay hopeful ! Had PET/MRI done, CT scans, sig flex and biopsy ! Apparently the whole...
by Jolene
Sun Oct 06, 2019 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long flights with cancer/chemo
Replies: 15
Views: 2194

Re: Long flights with cancer/chemo

I remembered asking my oncologist the same thing when I was undergoing chemo and he said it's not a problem at all for my case at all. In fact, he mentioned he had lots international cancer patients (albeit mostly a 2-6 hours vicinity) who would fly into where we are based at on a weekly basis for v...

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