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by Jolene
Mon Sep 16, 2019 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 19
Views: 755

Re: Screw Cancer, Hospice is Here

Thank you Pyro, for sharing your story and your hospice decision.

You are one brave soul for getting this far and I wish you all the best in finding peace and happiness ! Have an awesome vacation !
by Jolene
Sat Aug 03, 2019 3:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 17
Views: 2062

Re: Please allow me to introduce myself

Also the very recent SUNSHINE trial at Dana-Farber, starting at 8,000 IU/day then sustaining 4,000 IU/day: https://www.dana-farber.org/newsroom/news-releases/2019/high-dose-vitamin-d-shows-benefit-in-patients-with-advanced-colorectal-cancer/ Also to your point about Neulasta/Filgrastim/etc., when I...
by Jolene
Fri Aug 02, 2019 10:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 17
Views: 2062

Re: Please allow me to introduce myself

Hi ME - thanks for sharing your story with us ! What a roller coaster ride indeed and to still stay so strong. Your story is so detailed and eloquently written. I'm sure many viewers including myself are learning new things from it ! I just want to share a few things with you based on my own experie...
by Jolene
Fri Aug 02, 2019 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1531
Views: 327224

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

NKMike and Rikimaroo - Just to share, I attended a colorectal patient support group not too long ago and met a few people with/without the bag. One guy said it took him 2 years to return to normality after LAR and on some of the worst days, he would go to the toilet for up to 40 times a day. He is b...
by Jolene
Fri Aug 02, 2019 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stupid health insurance...
Replies: 6
Views: 709

Re: Stupid health insurance...

My husband told me yesterday some distressing news. His nurse at the cancer center called to say that three insurance was going to stop paying for chemo because he had some progression!? They've changed his chemo to include irinotecan now versus waiting to check his numbers. How can they do this. T...
by Jolene
Fri Aug 02, 2019 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 118
Views: 9793

Re: Quick intro -- diagnosed Friday

Sounds like you are doing all you can do. Stay positive and stay strong, but also stay vigilant. I had a colonoscopy in 2008, was given a clean bill of colon health and told to come back for my next one in 10 years. I was diagnosed with Stage 3 colon cancer in 2013....flat cancerous polyp in my cec...
by Jolene
Tue Jul 30, 2019 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reminder: Don't forget your Vitamin D!
Replies: 7
Views: 682

Re: Reminder: Don't forget your Vitamin D!

One of the first few tests that the onc ordered before starting out on my CRT was the Vit D level. According to his experience colorectal cancer patients for some reasons often have deficiency of Vit D. I was measuring at 10 ng/ml when first tested and this was in the rather severe deficiency range....
by Jolene
Tue Jul 30, 2019 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 124940

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thank you PRS and Mozart13 ! I'm really hoping to be back to some normality. I found it difficult to concentrate on everyday work though but I am putting that down to the stress that went on over the last 6 months. My female hormones are probably all over the place too adding to the mental stress. J...
by Jolene
Sun Jul 28, 2019 5:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 124940

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi WW-ers ! I'm finally done with my final and 6th cycle of IV Oxaliplatin under the WW. Thank god ! It was 3-4 months of psychological hell for me and my spouse. I had little physical side effects apart from constipation but the cocktail of medication was surely messing with my brain I think ! I st...
by Jolene
Tue Jul 16, 2019 10:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 29
Views: 2584

Re: Chemo has caught up to me yall

Chemo sucks, no question. If there is any consolation, at least it is better than not being able to get chemo! Glass half full ! That's what I tell myself some days too ! There are people out there who have no access to basic healthcare, let alone chemo. So I try to tell myself that chemo is a luxu...
by Jolene
Tue Jul 16, 2019 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 29
Views: 2584

Re: Chemo has caught up to me yall

Chemo has been more mentally and psychologically challenging for me than physically. I'm in my 5th cycle out of 6 at the moment..... and it's doing things to my head by the 3rd/4th. Fortunately I have been experiencing very little physical side effects or at least my onc has been managing it quite w...
by Jolene
Tue Jul 16, 2019 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 118
Views: 9793

Re: Quick intro -- diagnosed Friday

Hi Zack, I haven't been on the forum too long but was diagnosed with rectal cancer about 8 months ago. You can see the details of my diagnosis in my signature. I just want to start off by saying this forum has been my saviour and many posters have been providing advice and pointers to ask all the ri...
by Jolene
Fri Jul 05, 2019 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 124940

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Did my 5th Xelox cycle today out of 6 ! So just one more to go and I can officially be on the "real" wait and watch ! Onc reminded me many times along the way that a mop-up chemo main job is to wipe out micro spreads, however it can also suppress the tumour site temporarily providing a fal...
by Jolene
Fri Jul 05, 2019 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I think I broke my gallbladder...
Replies: 19
Views: 1117

Re: I think I broke my gallbladder...

LOLZ @ MaggieNell !!! Amy G - A broken gallbladder sounds like it can hurt ! Have you experienced any pain ? Diarrhea is a pretty common side effect of chemo. My oncologist said to blame most side effect on the chemo if one is still undergoing treatment. It's pretty much difficult even for him to pi...
by Jolene
Tue Jul 02, 2019 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 2972

Re: Bucket List

Great pic and thread PYRO !!! Its refreshing to discuss about enjoying life and fulfilling bucket list on this column !! Thank you for sharing.

I'm nowhere near your prognosis, but have also been thinking about my bucket list now and again.

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