Hello WW-ers, I got an all clear today with my scans and have officially passed the 1 year mark since radiation. :D Last week I did a full colonoscopy, biopsy, MRI and ultrasound for results triangulation and it all came out negative. Doc was very pleased with what he saw. My surveillance routine mo...

Congrats and hang in there for the last round !!! Keep us posted !

Jolene, My CT scans are 3 months apart now. Each scan is scheduled only at the readout of the prior scan. After the VATS surgery to remove the metastatic lung nodule, the two scans that I have had were "eye to thigh"- including chest, abdomen and pelvis. I have been also having sigmoidosc...

Thank you for your update. I mentioned watch and wait yesterday during my mothers doctors appointment and was advised that it's not something they do. Even if they did I believe the watch and wait method would drive my mother crazy. She wants her mass cut out now! But she's in the early stages, has...

I am a wait and watch adopter who avoided colon/rectal surgery three years ago when there was a complete response to the neoadjuvant therapy. I was initially diagnosed as T3N0M0. Although there was no surgery, there was a 6-cycle Xelox adjuvant chemo as well. Unfortunately, a metastatic nodule was ...

Great news annie ! Thanks for sharing with us WW !!! Always hopeful to hear another all clear from a fellow ww !

HI PRS - Thank you for your well wishes ! I hope you are well yourself ! And hello to all the other WW-ers ! This board has been quiet and I see that as a good thing ! I am officially 1 year on WW today ! (Finished my radiation exactly on the 31st Dec 2018). Going for another round of check next wee...

Just wanted to report I had another six monthly follow up last week. The results of both the MRI and the flex sig were fine. That's now 4 1/2 years NED since the end of my radiation treatment. Apparently I get one more six monthly follow up and then go annually after that. My Doctor told me at thei...

Lakeswim - I have been thinking of you too ! Glad to know all is going good for you ! I think we are very close in terms of marking the date when radiation ended - that's the date where docs use to measure how long one is NED. My very first treatment was rad/chemo which ended Dec 2018. I was then u...

Just had another round of scans and I'm in the clear again ! (for now!). Yay ! Any residual chemo should have wean off by now and so I'm hoping this good news is not under the suppression of any chemo. One can only stay hopeful ! Had PET/MRI done, CT scans, sig flex and biopsy ! Apparently the whole...

I remembered asking my oncologist the same thing when I was undergoing chemo and he said it's not a problem at all for my case at all. In fact, he mentioned he had lots international cancer patients (albeit mostly a 2-6 hours vicinity) who would fly into where we are based at on a weekly basis for v...

Thank you Pyro, for sharing your story and your hospice decision.

You are one brave soul for getting this far and I wish you all the best in finding peace and happiness ! Have an awesome vacation !

Also the very recent SUNSHINE trial at Dana-Farber, starting at 8,000 IU/day then sustaining 4,000 IU/day: https://www.dana-farber.org/newsroom/news-releases/2019/high-dose-vitamin-d-shows-benefit-in-patients-with-advanced-colorectal-cancer/ Also to your point about Neulasta/Filgrastim/etc., when I...

Hi ME - thanks for sharing your story with us ! What a roller coaster ride indeed and to still stay so strong. Your story is so detailed and eloquently written. I'm sure many viewers including myself are learning new things from it ! I just want to share a few things with you based on my own experie...

NKMike and Rikimaroo - Just to share, I attended a colorectal patient support group not too long ago and met a few people with/without the bag. One guy said it took him 2 years to return to normality after LAR and on some of the worst days, he would go to the toilet for up to 40 times a day. He is b...