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by Jolene
Mon Jan 20, 2020 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 462
Views: 162796

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hello WW-ers, I got an all clear today with my scans and have officially passed the 1 year mark since radiation. :D Last week I did a full colonoscopy, biopsy, MRI and ultrasound for results triangulation and it all came out negative. Doc was very pleased with what he saw. My surveillance routine mo...
by Jolene
Mon Jan 13, 2020 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Last Round of Chemo!!
Replies: 8
Views: 1225

Re: Last Round of Chemo!!

Congrats and hang in there for the last round !!! Keep us posted !
by Jolene
Mon Jan 13, 2020 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 462
Views: 162796

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, My CT scans are 3 months apart now. Each scan is scheduled only at the readout of the prior scan. After the VATS surgery to remove the metastatic lung nodule, the two scans that I have had were "eye to thigh"- including chest, abdomen and pelvis. I have been also having sigmoidosc...
by Jolene
Fri Jan 10, 2020 11:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 462
Views: 162796

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thank you for your update. I mentioned watch and wait yesterday during my mothers doctors appointment and was advised that it's not something they do. Even if they did I believe the watch and wait method would drive my mother crazy. She wants her mass cut out now! But she's in the early stages, has...
by Jolene
Fri Jan 10, 2020 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 462
Views: 162796

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I am a wait and watch adopter who avoided colon/rectal surgery three years ago when there was a complete response to the neoadjuvant therapy. I was initially diagnosed as T3N0M0. Although there was no surgery, there was a 6-cycle Xelox adjuvant chemo as well. Unfortunately, a metastatic nodule was ...
by Jolene
Sun Jan 05, 2020 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 462
Views: 162796

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Great news annie ! Thanks for sharing with us WW !!! Always hopeful to hear another all clear from a fellow ww !
by Jolene
Wed Jan 01, 2020 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 462
Views: 162796

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

HI PRS - Thank you for your well wishes ! I hope you are well yourself ! And hello to all the other WW-ers ! This board has been quiet and I see that as a good thing ! I am officially 1 year on WW today ! (Finished my radiation exactly on the 31st Dec 2018). Going for another round of check next wee...
by Jolene
Sun Nov 10, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 462
Views: 162796

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Just wanted to report I had another six monthly follow up last week. The results of both the MRI and the flex sig were fine. That's now 4 1/2 years NED since the end of my radiation treatment. Apparently I get one more six monthly follow up and then go annually after that. My Doctor told me at thei...
by Jolene
Tue Oct 08, 2019 9:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 462
Views: 162796

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Lakeswim - I have been thinking of you too ! Glad to know all is going good for you ! I think we are very close in terms of marking the date when radiation ended - that's the date where docs use to measure how long one is NED. My very first treatment was rad/chemo which ended Dec 2018. I was then u...
by Jolene
Sun Oct 06, 2019 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 462
Views: 162796

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Just had another round of scans and I'm in the clear again ! (for now!). Yay ! Any residual chemo should have wean off by now and so I'm hoping this good news is not under the suppression of any chemo. One can only stay hopeful ! Had PET/MRI done, CT scans, sig flex and biopsy ! Apparently the whole...
by Jolene
Sun Oct 06, 2019 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long flights with cancer/chemo
Replies: 15
Views: 2138

Re: Long flights with cancer/chemo

I remembered asking my oncologist the same thing when I was undergoing chemo and he said it's not a problem at all for my case at all. In fact, he mentioned he had lots international cancer patients (albeit mostly a 2-6 hours vicinity) who would fly into where we are based at on a weekly basis for v...
by Jolene
Mon Sep 16, 2019 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 27
Views: 5521

Re: Screw Cancer, Hospice is Here

Thank you Pyro, for sharing your story and your hospice decision.

You are one brave soul for getting this far and I wish you all the best in finding peace and happiness ! Have an awesome vacation !
by Jolene
Sat Aug 03, 2019 3:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5679

Re: Please allow me to introduce myself

Also the very recent SUNSHINE trial at Dana-Farber, starting at 8,000 IU/day then sustaining 4,000 IU/day: https://www.dana-farber.org/newsroom/news-releases/2019/high-dose-vitamin-d-shows-benefit-in-patients-with-advanced-colorectal-cancer/ Also to your point about Neulasta/Filgrastim/etc., when I...
by Jolene
Fri Aug 02, 2019 10:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5679

Re: Please allow me to introduce myself

Hi ME - thanks for sharing your story with us ! What a roller coaster ride indeed and to still stay so strong. Your story is so detailed and eloquently written. I'm sure many viewers including myself are learning new things from it ! I just want to share a few things with you based on my own experie...
by Jolene
Fri Aug 02, 2019 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1683
Views: 405022

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

NKMike and Rikimaroo - Just to share, I attended a colorectal patient support group not too long ago and met a few people with/without the bag. One guy said it took him 2 years to return to normality after LAR and on some of the worst days, he would go to the toilet for up to 40 times a day. He is b...

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