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by _Jelen90
Sat Dec 07, 2019 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer Research Project
Replies: 13
Views: 1687

Re: Colon Cancer Research Project

From Canada here! We'd be happy to help :)
by _Jelen90
Fri Dec 06, 2019 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan interpretation
Replies: 3
Views: 1077

Re: CT scan interpretation

... So my question is, can the oncologist interpret the ct at all?... My oncologist would put my scan's CD-ROM in his computer and launch his CT scan viewer software and flip through the various scan slices to show me where there might be problems. He was pretty skilled at doing this. The software ...
by _Jelen90
Fri Dec 06, 2019 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery stories please! APR
Replies: 2
Views: 994

Re: Surgery stories please! APR

My husband's surgery went very well. What helped is that he was very fit and otherwise "healthy" when he went in. The hardest was recovery, it took him a good 3 months to get back to normal. I am sure he will have an amazing medical team to get through this like my hubby had. He is now 6 m...
by _Jelen90
Fri Dec 06, 2019 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan interpretation
Replies: 3
Views: 1077

CT scan interpretation

My husband just had his first CT since he was diagnosed last year. He has a follow up with his radiation oncologist this afternoon. That being said, we were told by the tech that the oncologist will be able to access the CT pictures but the report from the radiologist will most likely not be ready y...
by _Jelen90
Tue Dec 03, 2019 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year scans
Replies: 24
Views: 5013

Re: 5 year scans

Congrats girl, that's awesome news :) !

My husband is having his first post treatment CT scan on Friday! It's pretty scary but I'm super happy when I read positive stories like yours!
by _Jelen90
Sun Dec 01, 2019 8:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: “Near” Complete Clinical Response and what to do next
Replies: 10
Views: 1511

Re: “Near” Complete Clinical Response and what to do next

I wouldn't mess with it and go for surgery especially if you had lymph node involvement...In my opinion it's way to risky to do watch and wait when you are Stage 3. They thought my husband had a complete response to chemorad as the tumor was completely gone...turns out one lymph node tested positive...
by _Jelen90
Tue Nov 19, 2019 5:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: End of treatment and anxiety!
Replies: 10
Views: 1149

Re: Survivorship Care Planning

From your original post it appears that DH will soon be transitioning from active treatment into the 5-year surveillance period. In this case, the most urgent task is to insure that DH has been given a "Survivorship Care Plan" to follow over the next five years. He had a phone consult wit...
by _Jelen90
Tue Nov 19, 2019 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 20
Views: 4044

Re: Baseline CEA levels

I am not of any help here regarding the CEA levels but just wanted to send some positive thoughts your way. My husband was also diagnosed a 28.

I am hoping it gets better for your boyfriend. Hugs ❤
by _Jelen90
Sun Nov 17, 2019 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exercise
Replies: 5
Views: 1112

Re: Exercise

My husband recovered faster from surgery and tolerated chemo very well because he exercised the whole time. He never skipped more than 2 days. He kept telling me I feel like s*hit but I know if I don't go to the gym I'll feel even worse andddd sure thing he would come back from his training and be a...
by _Jelen90
Sat Nov 16, 2019 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: End of treatment and anxiety!
Replies: 10
Views: 1149

End of treatment and anxiety!

Hello everyone! My husband is finishing his last cycle of chemo on Wednesday. We are super lucky as he literally sailed through it. No major side effects. It has been almost a year since his diagnosis. Our little family went through a lot..we had our second baby only a week after his surgery. So far...
by _Jelen90
Wed Aug 14, 2019 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting Capox tomorrow
Replies: 8
Views: 1019

Starting Capox tomorrow

Hi everyone, My hubby is starting mop up Capox tomorrow and I would like some advice or just hear from someone who had the same type of chemo. Is it very different from Folfox? What side effects did you have ? He is a very active guy and recovered pretty well/fast from his APR surgery. He is finally...
by _Jelen90
Wed Jul 31, 2019 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can we please talk about colostomies/ileostomies?
Replies: 13
Views: 1544

Re: Can we please talk about colostomies/ileostomies?

My husband ended up with a permanent colostomy since his tumor was very low so that was pretty much his only option unfortunately. What helped him a LOT is the steath belt. He wears it pretty much all the time so his bag goes unnoticed even when he goes swimming. You can get it on http://www.steathb...
by _Jelen90
Wed Jun 26, 2019 9:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo question
Replies: 7
Views: 1373

Re: Mop up chemo question

Hi everyone, My husband just got his path report from the APR surgery he got 2 weeks ago for rectal cancer. So his tumor was completely gone due to chemorad and everything was clear EXCEPT one positive lymph node. So my question is : is he automatically gonna get mop op chemo ? And second question ...
by _Jelen90
Wed Jun 26, 2019 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo question
Replies: 7
Views: 1373

Mop up chemo question

Hi everyone, My husband just got his path report from the APR surgery he got 2 weeks ago for rectal cancer. So his tumor was completely gone due to chemorad and everything was clear EXCEPT one positive lymph node. So my question is : is he automatically gonna get mop op chemo ? And second question :...
by _Jelen90
Sat Jun 15, 2019 1:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery DONE!
Replies: 4
Views: 852

Re: APR surgery DONE!

... Do you have any tips or advices? I know it's gonna be a long one and I feel bad for him because he is a very active guy (borderline hyper lol) and not being able to move much and do physical stuff is gonna drive him nuts!! Since your husband just had abdominal surgery, I would suggest that he p...

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