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by nzjez
Sun Feb 16, 2020 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

I just got an email from OncLive with this link, that may be of interest to you nzjez: https://www.onclive.com/conference-coverage/gi-2020/triplet-and-doublet-regimens-outperform-standard-of-care-on-survival-qol-in-braf-crc This is a good one to follow. However it is using BEACON in the second or e...
by nzjez
Sun Feb 16, 2020 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

So all went well enough for my Cytoreductive surgery with HIPEC on the 9th Nov. My surgery was an open surgery (there was mention initially of laparoscopic being possible), and took under 6 hours (including the HIPEC). Just a note to say I had HIPEC and Cytoreducutive on 11/7/19. Almost twins! Almo...
by nzjez
Sun Feb 16, 2020 11:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

I just got an email from OncLive with this link, that may be of interest to you nzjez: https://www.onclive.com/conference-coverage/gi-2020/triplet-and-doublet-regimens-outperform-standard-of-care-on-survival-qol-in-braf-crc Hey Claudine Thanks for thinking of me and posting the link. This triplet/d...
by nzjez
Wed Feb 12, 2020 2:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

I’m in the same boat as you currently. Found out in August I have spread in the periometuem. I’m currently three rounds into FOLFOXFIRI and had a diagnostic laparoscopy conducted two weeks ago and given a PCI of 6. The plan is to perform 6-9 chemo sessions prior to CRS/HIPEC and then another 3-6 af...
by nzjez
Sat Nov 30, 2019 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

Trying wrote:Im so happy to hear you had the surgery and it went well.

Nicole

Thanks Nicole
I hope things are improving for you, and the chemo keeps shrinking that bad stuff!
Jeremy :)
by nzjez
Sat Nov 30, 2019 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

nzjez, I’m glad to see your CRS/HIPEC went well. I still lack one more round of FOLFOXFIRI and then a month off prior to my CRS/HIPEC. I will have completed 8 treatments prior and will do 4 after as Mop up. My CEA has gone down from 31 to 16 after six treatments and my MRI at four treatments showed...
by nzjez
Sat Nov 23, 2019 4:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

Hi all So all went well enough for my Cytoreductive surgery with HIPEC on the 9th Nov. My surgery was an open surgery (there was mention initially of laparoscopic being possible), and took under 6 hours (including the HIPEC). They found the original metastasis had grown and was starting to move in t...
by nzjez
Fri Nov 01, 2019 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

One other comment on the PRODIGE 7 trial results - this trial used oxaliplatin as the HIPEC drug. I’ve seen inconsistent results between this and mitomycin-C (MMC), some research suggests Oxaliplatin has the edge, but some more recent studies indicate significantly better results from MMC. Might al...
by nzjez
Mon Oct 28, 2019 4:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive peri met stories please
Replies: 9
Views: 1560

Re: Positive peri met stories please

Hey Trying. I too am hoping to hear positive stories. Diagnosed 2 months ago with a peri met, laparoscopy found one tumour (about 3cm) three weeks ago. Still waiting to hear for surgical date for CRS/HIPEC. What do you know about your mets? Are you able to go for Cytoreductive surgery? Hope you are ...
by nzjez
Sat Sep 21, 2019 8:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

One other comment on the PRODIGE 7 trial results - this trial used oxaliplatin as the HIPEC drug. I’ve seen inconsistent results between this and mitomycin-C (MMC), some research suggests Oxaliplatin has the edge, but some more recent studies indicate significantly better results from MMC. Might al...
by nzjez
Sat Sep 21, 2019 8:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

DarknessEmbraced wrote:I'm sorry it wasn't better news and that you're dealing with this!*hugs*

Thanks DE :)
by nzjez
Fri Sep 20, 2019 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

I’m in the same boat as you currently. Found out in August I have spread in the periometuem. I’m currently three rounds into FOLFOXFIRI and had a diagnostic laparoscopy conducted two weeks ago and given a PCI of 6. The plan is to perform 6-9 chemo sessions prior to CRS/HIPEC and then another 3-6 af...
by nzjez
Fri Sep 20, 2019 9:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

Sometimes hope is all we have Jeremy. Hope changes throughout the cancer journey, sometimes if it's just for a better tomorrow. You are young, so the challenges may be greater in that the cancer can seem more aggressive, but there is always hope. For colon cancer patients, spread to the peritoneal ...
by nzjez
Fri Sep 20, 2019 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

nzjez, what is your MSS/MSI, KRAS, BRAF, etc status? Hi Box hill My details i know of are: pMMr LSI+ TD+ CEA non-secretor Not KRAS BRAF was not done And have been told as if yesterday that the PET/CT found cancer in one area peritoneal in my Low Anterior. This was found 3 weeks ago. Nothing has yet...
by nzjez
Mon Sep 02, 2019 1:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 35
Views: 10252

Re: Spread into Peritoneal

Hi Rob Thanks for taking the time to reply. I like the sound of curative intent. I was just so deflated after the Dr's brief phone call, I felt like I had lost then and there. My world just came crashing down after such a big battle, and what felt like a short time recovering. But I will now hold on...

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