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by brokenwings
Sat May 11, 2019 5:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any idea the cost for CRS/HIPEC at MSK if insurance not cover out of network?
Replies: 16
Views: 1481

Re: Any idea the cost for CRS/HIPEC at MSK if insurance not cover out of network?

Hi Paola, I'm so sorry to hear about the unexpected during your surgery. I pray for you to get good response with chemo treatment so you can go back to the OR. From my original tumor, I'm MSS with TMB 16 which my oncologist said I'm not qualified for a clinical trial that takes patients with TMB of...
by brokenwings
Fri May 10, 2019 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any idea the cost for CRS/HIPEC at MSK if insurance not cover out of network?
Replies: 16
Views: 1481

Re: Any idea the cost for CRS/HIPEC at MSK if insurance not cover out of network?

Hi, Just an update on my CRS/HIPEC. The procedure was 10 hours long. I was in hospital for a week. It's about 3 and half weeks out since the surgery and I'm still in a lots of pain. My PCI at the outset of the procedure was 16 and at the completion of procedure was 1. There are .5 to 1mm fine discr...
by brokenwings
Mon Apr 15, 2019 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 131
Views: 27590

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Fingers crossed, wishing you the best.
Keep us updated.

Big hug
by brokenwings
Sun Apr 14, 2019 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What options after chemo no longer effective?
Replies: 26
Views: 1393

Re: What options after chemo no longer effective?

I know nothing about clinical trials but I found this one in Phase 3, concerning IV Vitamin C: https://clinicaltrials.gov/ct2/show/NCT02969681. What do you think? My prior comment was specifically about lab testing chemo susceptibility of tumor samples. I guess the phase 3 trial is a legitimate stu...
by brokenwings
Sun Apr 14, 2019 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Last shot immunotherapy
Replies: 3
Views: 417

Re: Last shot immunotherapy

I can't answer your questions but thanks for the article.
Personally, I don't see any ethical conundrum in giving immunotherapy as a last shot if the patient doesn't have any side effects. I mean, it's not as if you were ruining the last months of his life with chemo...
That's my two cents...
by brokenwings
Sat Apr 13, 2019 3:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What options after chemo no longer effective?
Replies: 26
Views: 1393

Re: What options after chemo no longer effective?

I know nothing about clinical trials but I found this one in Phase 3, concerning IV Vitamin C:

https://clinicaltrials.gov/ct2/show/NCT02969681.

What do you think?
by brokenwings
Sat Apr 13, 2019 3:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 hope to share
Replies: 20
Views: 1447

Re: Stage 4 hope to share

You’re focused on food quite a bit, and you’re correct, it can hurt or help a person on chemo. However, I never wanted to eat on FOLFOX, and many people share this problem, if my food were limited, I probably wouldn’t have eaten at all. If he wants an ice cream, let him! There is a lot of good and ...
by brokenwings
Fri Apr 12, 2019 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 hope to share
Replies: 20
Views: 1447

Re: Stage 4 hope to share

You’re focused on food quite a bit, and you’re correct, it can hurt or help a person on chemo. However, I never wanted to eat on FOLFOX, and many people share this problem, if my food were limited, I probably wouldn’t have eaten at all. If he wants an ice cream, let him! There is a lot of good and ...
by brokenwings
Fri Apr 12, 2019 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 hope to share
Replies: 20
Views: 1447

Re: Stage 4 hope to share

You’re focused on food quite a bit, and you’re correct, it can hurt or help a person on chemo. However, I never wanted to eat on FOLFOX, and many people share this problem, if my food were limited, I probably wouldn’t have eaten at all. If he wants an ice cream, let him! There is a lot of good and ...
by brokenwings
Fri Apr 12, 2019 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 hope to share
Replies: 20
Views: 1447

Re: Stage 4 hope to share

This is so interesting, specially the IV Vitamin C. There are so many studies that explain its benfits to those with a KRAS or a BRAF mutation. There's even a Trial in phase 3 in which some patients get IV vitamin c + their usual protocol.

Best of luck to your brother-in-law!

Hugs,

Paola
by brokenwings
Thu Apr 11, 2019 2:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We Still Need to Laugh Resumed : 2019
Replies: 78
Views: 8683

Re: We Still Need to Laugh Resumed : 2019

https://scontent.fsyd4-1.fna.fbcdn.net/v/t1.0-0/cp0/e15/q65/s320x320/57001913_2531415803546924_6962854624969621504_n.jpg?_nc_cat=106&efg=eyJpIjoiYiJ9&_nc_eui2=AeE7IHHsLsxgaeHZqn4rdK52Afh9-C2Uyfsi0pQ157INw1c599fk-_OmesoQvr42A_64sJWYMCCeEde4L1oYzQboaq0ZEACJljVU2LgJ1mYu_A&_nc_ht=scontent.f...
by brokenwings
Thu Apr 11, 2019 2:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mixed mri results
Replies: 36
Views: 1817

Re: mixed mri results

I feel exactly the same. I think it's "normal" to have that kind of feeling. We've been waiting for surgery for so long! We just need to try to stay calm (easy to say...). Keep us updated! i hate this new "normal." also, mom might have surgery a bit later planned so she would ha...
by brokenwings
Wed Apr 10, 2019 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 116
Views: 15436

Re: My CRC with liver mets journey

The reality is that I’m a mom, so I feel like I’m going to do whatever my oncologist tells me is my best shot! If that means more Vectibix, so be it. I know it’s mostly vanity at play - the splitting skin I could address with SuperGlue - so I have to be a big girl and deal with it. I’ve told myself...
by brokenwings
Wed Apr 10, 2019 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sadness (sorry for the blues)
Replies: 17
Views: 2741

Re: Sadness (sorry for the blues)

I don t mean to scary you. I also had an ovarian cyst ghat had been growing while on chemo. The docs decided they want it out. My ovaries left the building. The pathology report came back and it was a net from colon cancer. Hi, there. My ovarian mass was partially biopsied and it wasn't cancer but ...
by brokenwings
Wed Apr 10, 2019 12:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sadness (sorry for the blues)
Replies: 17
Views: 2741

Re: Sadness (sorry for the blues)

I don t mean to scary you. I also had an ovarian cyst ghat had been growing while on chemo. The docs decided they want it out. My ovaries left the building. The pathology report came back and it was a net from colon cancer. Hi, there. My ovarian mass was partially biopsied and it wasn't cancer but ...

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