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by marshmallowjones
Tue Jan 08, 2019 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly Diagnosed - Broken
Replies: 17
Views: 4299

Re: Newly Diagnosed - Broken

Hi BWings I'm sorry to hear your story and your English is very good - possibly better than some of our own :D Are you doing Folfox? They say 'everyone responds differently' which drives me crazy but the 1st treatment was my worst. Try to prepare lots of help day 3 (pump off), 4 and 5. I had mouth s...
by marshmallowjones
Tue Jan 08, 2019 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 20
Views: 6364

Re: Quality of life on Folfox and others

I've done 7 of 12 rounds of FOLFIRINOX, which is FOLFOX plus Irenotecan. First 2 rounds were the worst, with terrible vomitting that had me back in the hospital for fluids. Since then I've been given 3 different types of anti-nausea drugs which has stopped the vomitting for these last few rounds. O...
by marshmallowjones
Tue Jan 08, 2019 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3C Recently Diagnosed - need support
Replies: 18
Views: 4358

Re: 3C Recently Diagnosed - need support

Marchmellojones, You wrote: My ONC is saying that we don't look/scan until 1 year which I'll ask about. Yes ! Do ask about that because it doesn’t sound ‘normal’. My DH has had scans evey 3 month, then every 4 and then 5. Now is the first time it has gone 6 month. My husband was diagonosed in March...
by marshmallowjones
Tue Jan 08, 2019 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3C Recently Diagnosed - need support
Replies: 18
Views: 4358

Re: 3C Recently Diagnosed - need support

Hi Marshmallowjones, Welcome aboard. I was dxed with stage 3c colon cancer into 6 of 13 nodes when I was 48. It was very aggressive and my surgeon told me not to expect more than three years. I told him don't worry I don't die of cancer. I have no idea what will get me but it won't be cancer. I had...
by marshmallowjones
Sat Jan 05, 2019 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3C Recently Diagnosed - need support
Replies: 18
Views: 4358

Re: 3C Recently Diagnosed - need support

2. I been falsely lumping myself in with other Stage 3 patients and pretending that my cure rate is more in the 70's but it's really only 53%, isn't it? How do I deal with that? What others have said about stats is true but here's something I learned that really helped me wrap my head around the st...
by marshmallowjones
Sat Jan 05, 2019 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3C Recently Diagnosed - need support
Replies: 18
Views: 4358

Re: 3C Recently Diagnosed - need support

Hi recently diagnosed I recently finished my treatments at number 11 - it really was cumulative (the drs constantly reminding us) but for me it wasn’t all terrible. I have nerve damage and neuropathy in my hands and feet but it’s slowly getting better - I’m walking on the treadmill everyday now and...
by marshmallowjones
Sat Jan 05, 2019 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3C Recently Diagnosed - need support
Replies: 18
Views: 4358

Re: 3C Recently Diagnosed - need support

All I can tell you: forget the statistics. Statistics apply for large numbers. You are ONE human being, If you read carefully the available (good) information, you will see that nobody has a clue how a person's disease will behave. When you start your treatments, nobody has a clue on how the diseas...
by marshmallowjones
Thu Jan 03, 2019 7:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3C Recently Diagnosed - need support
Replies: 18
Views: 4358

Re: 3C Recently Diagnosed - need support

I actually don't know how to respond to each of you - I've never been a forum before.

Thank each and everyone of you for your responses - lifted my spirits today.
Agree, I'm probably higher than 53% because that's a huge pool of ppl, possibly older than me and with other conditions.
by marshmallowjones
Thu Jan 03, 2019 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3C Recently Diagnosed - need support
Replies: 18
Views: 4358

3C Recently Diagnosed - need support

Hi all Happy to find you and need some support. :( I was diagnosed with 3C (4 lymph nodes of 61) in August, had surgery and completed 4 of 8 Folfox treatments. The 4th one hit me harder than the others, it was more of a week recovery than a few days. I just had a nice long break from treatments due ...

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