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by AmyG
Sun Sep 20, 2020 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3798

Re: Blood clots and low oxygen and hospice OH MY

I am so very sorry to read about your husband's passing. If there is anything a random internet stranger can do for you at this time, please holler. We have kids that are similar in age, I do hope all of yall have the support you need.
by AmyG
Sun Sep 20, 2020 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3798

Re: Blood clots and low oxygen and hospice OH MY

Thinking of you and your family today.
by AmyG
Sun Sep 13, 2020 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 21
Views: 1536

Re: To my CC family

I am so very sorry.

I wish I had more to offer, but you're in my thoughts.

Happy birthday Tim.
by AmyG
Wed Sep 09, 2020 6:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low key freak out.
Replies: 5
Views: 894

Re: Low key freak out.

Never had a PET, he's going right to biopsy. In somewhat good news, my CEA is 2.2 and AFP is 3.7, which for our lab, under 9 something is normal. CEA has always been a good indicator for me, idk if AFP is or not. So, that's a step in the right direction. I'm hoping chemo messed with my thymus and I'...
by AmyG
Tue Sep 08, 2020 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low key freak out.
Replies: 5
Views: 894

Low key freak out.

Met my new oncologist today. He's okay. He is concerned about tissue in my chest, that I could have a thymoma. It's residual thymic tissue that's been noted since my March CT. So there was nothing there in December, something in March, June and September. I'm waiting on a biopsy appointment. Last ti...
by AmyG
Sun Sep 06, 2020 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3798

Re: Blood clots and low oxygen and hospice OH MY

I don't know what it's like being in your shoes. I hope to God I never find out. While I'm so very sorry for your husband, at some point his journey will end but yours and your children's will continue. That breaks my heart. I was terrified of leaving my newborn without a mother. Of my younger kids ...
by AmyG
Fri Aug 28, 2020 10:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 362
Views: 82200

Re: My CRC with liver mets journey

Gosh, more bullshit!!!!

I'm really glad your had a good PET though :) That's not bullshit. :lol:
by AmyG
Fri Aug 28, 2020 9:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3798

Re: Blood clots and low oxygen and hospice OH MY

What bullshit.

This is such a bullshit disease.
by AmyG
Wed Aug 19, 2020 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear colonoscopy...I go every 3 years now!
Replies: 8
Views: 1506

Re: Clear colonoscopy...I go every 3 years now!

Hey Dave! We lost our high school coach to another district. I know one of our track coaches is trying to keep the team going, but communication has been lacking. We're doing school online and there's been nothing about getting her to campus in the mornings for before school practice. No idea how me...
by AmyG
Mon Aug 10, 2020 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear colonoscopy...I go every 3 years now!
Replies: 8
Views: 1506

Clear colonoscopy...I go every 3 years now!

This seems like such a milestone and one I'm so grateful to have reached!! I will be cancer free for an entire year at the end of this month. I have another CT/labs at the beginning of September. I'm fine with going every 3 months, I like my oncologist a lot. :lol:

Hope you are all doing well!
by AmyG
Fri Aug 07, 2020 8:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prep for colonoscopy
Replies: 14
Views: 2276

Re: Prep for colonoscopy

I just picked up my suprep last night, even with insurance and a coupon it was $90. Wtf? My dosage insurrection boil down to 14 hours apart. I'm going to have to take both doses on Sunday, instead of Sunday afternoon, Monday morning. I have a two hour drive to the hospital and the scope is at 1000. ...
by AmyG
Wed Aug 05, 2020 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: colonoscopy without anesthesia
Replies: 6
Views: 664

Re: colonoscopy without anesthesia

I had my very first colonoscopy while I was wide awake, zero drugs. I watched as they rounded the corner in to my sigmoid and found my primary tumor. 0/10 would not do again. :lol: I was pregnant at the time, so drugs weren't an option. About to do another one on Monday, yearly follow up. Will be my...
by AmyG
Sun Jun 28, 2020 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH is back in the hospital :(
Replies: 22
Views: 3564

Re: DH is back in the hospital :(

I have zero experience with any of those choices, but it seems like #2 would be the way to go? I am imagining that thing that they put in cows for bloat....

Hope things get better for yall soon!
by AmyG
Sun Jun 28, 2020 10:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Well, its been a minute
Replies: 15
Views: 2237

Re: Well, its been a minute

Well that just sounds like total bullshit.

Are you doing as well as can be expected? Kids okay?
by AmyG
Wed Jun 10, 2020 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another clear CT, again!
Replies: 13
Views: 2021

Re: Another clear CT, again!

Thanks yall! Just got back from seeing the oncologist and surgeon, everything is just fine! Labs look fantastic, CEA is stable at 2.2.

Colonoscopy will be at the end of July or beginning of August and I don't get another CT until September.

I'm digging this surveillance protocol. :lol:

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