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by CF_69
Fri Sep 27, 2019 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vision & chemo
Replies: 6
Views: 826

Re: Vision & chemo

I think my eyesight was coincidentally deteriorating at the same time. I did notice that things got more blurry while on Xeloda, but my oncologist said that wasn’t a side effect.

Now I have glasses.
by CF_69
Tue Sep 17, 2019 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 47
Views: 3008

Re: Surgery Pathology Report

Looks like good news to me.

Congratulations on your successful surgery.
by CF_69
Sat Sep 14, 2019 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming Surgery
Replies: 23
Views: 2101

Re: Upcoming Surgery

I had a tumor in about the same spot. Even though my tumor was technically in the distal sigmoid, I was treated as rectal, so I had chemoradiation before surgery. I lost my sigmoid and about half my rectum to the surgery. No stoma, though I was prepped for one. I’m 6 months post surgery now, and I’m...
by CF_69
Fri Sep 13, 2019 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 spots on liver, 7 months after chemo success
Replies: 10
Views: 1047

Re: 2 spots on liver, 7 months after chemo success

Kbelo wrote:Quick update. I met with my oncologist this week who confirmed that the 2 liver spots are small cysts. I am so relieved!!




Congratulations on the good news.

I had my 6 month scan a couple of days ago. Don’t see the onc for two weeks. My turn to sweat.
by CF_69
Tue Sep 10, 2019 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 1803

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

I don’t have a link to the information, but my oncologist showed me some study on his computer that had line graphs that were virtually identical for 5FU alone vs FOLFOX. He then showed me another study that found that 3 months of treatment was as effective as 6. I wish I could remember in greater d...
by CF_69
Tue Sep 10, 2019 1:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 1803

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

Xeloda dosage is calculated according to your body composition, at least initially. I was taking 5000 mg a day for adjuvant. Less while doing the chemoradiation. 3600 mg if memory serves me here. One doctor put it like this: chemo is more like a dial than an on / off switch. As for side effects, I h...
by CF_69
Fri Sep 06, 2019 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 1803

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

You can live a pretty normal life on Xeloda. It’s hard to make a blanket statement because everyone has different reactions to these drugs, and without pulling any punches, these drugs are nasty. That said, if you’re on Xeloda, you take it twice a day after food. I didn’t have any visible side effec...
by CF_69
Thu Sep 05, 2019 8:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 1803

Re: Adjuvant chemo or not

I was 2A. My oncologist originally said no chemo, but it was up to me. He thought that FOLFOX was overkill for my situation, so he recommended 3 months of Capecitabine (Xeloda) so that’s what I did. Seems like a pretty reasonable compromise. The data showed similar results. The pills weren’t fun, bu...
by CF_69
Tue Sep 03, 2019 6:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 33
Views: 2201

Re: Diagnosed while working abroad

I had 2 suspicious nodes that turned out not to be cancerous. You won’t know for sure until they take them out. So, I walked around thinking I was 3B for all those months, but it turned out I was 2A. I have my 6 month scan coming up in a few weeks. It’s a long road for sure. I also felt physically f...
by CF_69
Fri Aug 30, 2019 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 33
Views: 2201

Re: Diagnosed while working abroad

I’m in Canada and my oncologist told me that at my stage (2A) that the post surgery options are quite different.

Specifically that in the USA I would get adjuvant chemo, and in Europe, I would not.
by CF_69
Wed Aug 28, 2019 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1062

Re: Deciding between treatments?

I would go for the option to not have a permanent colostomy if the success rate is the same.

Also I think the radiation dose is the same total amount with both options. Someone will correct me if I’m wrong about that.
by CF_69
Mon Aug 26, 2019 10:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 spots on liver, 7 months after chemo success
Replies: 10
Views: 1047

Re: 2 spots on liver, 7 months after chemo success

I have a 2mm “hypodensity” on my liver that the CT said was too small to classify, so I had an MRI and it’s just a cyst. Actually there are 3 of them that the MRI picked up. I also have a cyst on my right kidney. None are concerning to my doctors. Apparently it’s very common. I hope you have good ne...
by CF_69
Sat Aug 24, 2019 10:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 33
Views: 2201

Re: Diagnosed while working abroad

I was also abroad when diagnosed. I was working on a ship and we were in Spain at the time. I had my colonoscopy and biopsy done there. I was sent back home to Canada, but I had no health insurance because I was out of my province for too long, and they figured it out. Luckily my company’s insurance...
by CF_69
Wed Aug 21, 2019 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 163
Views: 13805

Re: Newly diagnosed rectal cancer

I can relate to the desire to get the cancer out of you ASAP. When mine was found, I wondered why they didn’t keep me in the hospital and take it out that day. I was abroad in Europe, so my employer had to get me back home, which took several days, and then the whole process of getting a doctor, a s...
by CF_69
Tue Aug 20, 2019 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 163
Views: 13805

Re: Newly diagnosed rectal cancer

I’m by no means qualified to comment on medical issues, but your CT scan report looks pretty encouraging to me. My hospital has two MRI machines. One you go in feet first, and the other is head first. Neither were that bad. I’m pretty tall though, so my head wasn’t all the way inside on either machi...

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