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by CF_69
Wed Nov 27, 2019 8:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 35
Views: 2095

Re: Freaking out of my mind...CEA climb and specks on lungs

They always leave some ‘wiggle room’ when describing these things. I mean they are never definite.

Looks like a good scan to me. I know it’s next to impossible, but try to relax as much as you can.
by CF_69
Sun Nov 24, 2019 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1607
Views: 346514

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I read they were prebiotics and that your body may not actually like probiotics and could attack the bacteria as an invader but of course I do know that everyone reacts differently and there’s a lot of bro science with health supplements too.

Seemed to help.
by CF_69
Sun Nov 24, 2019 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1607
Views: 346514

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I haven’t taken any probiotics but I did start drinking kefir and eating sauerkraut. I think it helped.
by CF_69
Sun Nov 24, 2019 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: “Near” Complete Clinical Response and what to do next
Replies: 10
Views: 694

Re: “Near” Complete Clinical Response and what to do next

I would say trust your doctors. This is what they do. Also, a stoma isn’t automatic. I was prepped for one but the surgeon determined that it wasn’t necessary in my case.

They won’t know anything for sure until they open you up and see what’s what.
by CF_69
Thu Nov 21, 2019 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year scans clear!
Replies: 8
Views: 246

Re: 5 year scans clear!

Congratulations on your good news.
by CF_69
Sat Nov 16, 2019 2:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year scans
Replies: 19
Views: 1097

Re: 5 year scans

I’d take that as a positive sign too.

Mine just released me back to my family doctor about 6 weeks ago.

Supposed to have a colonoscopy around March and next CT in September.

5 years is a big milestone, congratulations.
by CF_69
Fri Nov 15, 2019 1:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year scans
Replies: 19
Views: 1097

Re: 5 year scans

I had two weeks exactly between my last CT scan and seeing my oncologist.

I figure if they see something, they’ll get a hold of you. No news is good news thinking.

Good luck with the results.
by CF_69
Wed Oct 30, 2019 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 29
Views: 1669

Re: I'm getting worried

I’ll echo the comments about no news being good news.

If they saw something you would have heard from them quickly.
by CF_69
Fri Oct 25, 2019 12:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgical changes. Reoccurrence?
Replies: 21
Views: 2340

Re: Post surgical changes. Reoccurrence?

I was just looking over my CT from September, roughly 6 months post surgery. I just saw my oncologist for the last time (hopefully) two weeks after the scan, and approximately 2 months after I finished 4 cycles of Xeloda. There is similar wording in my CT report: “Mild thickening of the rectum circu...
by CF_69
Fri Sep 27, 2019 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vision & chemo
Replies: 6
Views: 918

Re: Vision & chemo

I think my eyesight was coincidentally deteriorating at the same time. I did notice that things got more blurry while on Xeloda, but my oncologist said that wasn’t a side effect.

Now I have glasses.
by CF_69
Tue Sep 17, 2019 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 47
Views: 3440

Re: Surgery Pathology Report

Looks like good news to me.

Congratulations on your successful surgery.
by CF_69
Sat Sep 14, 2019 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming Surgery
Replies: 23
Views: 2437

Re: Upcoming Surgery

I had a tumor in about the same spot. Even though my tumor was technically in the distal sigmoid, I was treated as rectal, so I had chemoradiation before surgery. I lost my sigmoid and about half my rectum to the surgery. No stoma, though I was prepped for one. I’m 6 months post surgery now, and I’m...
by CF_69
Fri Sep 13, 2019 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 spots on liver, 7 months after chemo success
Replies: 10
Views: 1158

Re: 2 spots on liver, 7 months after chemo success

Kbelo wrote:Quick update. I met with my oncologist this week who confirmed that the 2 liver spots are small cysts. I am so relieved!!




Congratulations on the good news.

I had my 6 month scan a couple of days ago. Don’t see the onc for two weeks. My turn to sweat.
by CF_69
Tue Sep 10, 2019 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 2078

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

I don’t have a link to the information, but my oncologist showed me some study on his computer that had line graphs that were virtually identical for 5FU alone vs FOLFOX. He then showed me another study that found that 3 months of treatment was as effective as 6. I wish I could remember in greater d...
by CF_69
Tue Sep 10, 2019 1:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 2078

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

Xeloda dosage is calculated according to your body composition, at least initially. I was taking 5000 mg a day for adjuvant. Less while doing the chemoradiation. 3600 mg if memory serves me here. One doctor put it like this: chemo is more like a dial than an on / off switch. As for side effects, I h...

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