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by CF_69
Sun Jul 21, 2019 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Complete pathological response
Replies: 3
Views: 368

Re: Complete pathological response

The tailbone pain could be a result of the radiation.

I had very bad back pain after surgery but it turned out to be herniated discs.
by CF_69
Tue Jul 09, 2019 3:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 747

Re: Worried... no poop

People do it to lose weight.
by CF_69
Mon Jul 08, 2019 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 747

Re: Worried... no poop

Intermittent fasting is pretty common these days. I’d say anyone with bad LARS should give it a try. Probably some end up doing it unintentionally just to manage their bowels. The quick version of it is to skip breakfast and don’t eat after dinner. I didn’t have a whole lot of symptoms. I felt bloat...
by CF_69
Sun Jul 07, 2019 11:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 747

Re: Worried... no poop

Just to add I also did some intermittent fasting and even experimented with the carnivore diet for a while. I don’t think either would account for what you’re experiencing, but I’m not a doctor. In my case, I think the carnivore diet helped me to get diagnosed since it backed me up pretty badly and ...
by CF_69
Sun Jul 07, 2019 11:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 747

Re: Worried... no poop

Hi. Get a colonoscopy done ASAP. I was told I had hemorrhoids about 3 weeks before I was sent for a colonoscopy after a second visit to the doctor that I almost didn’t bother to do. In retrospect I can identify symptoms that I missed, such as never feeling totally empty, and of course blood that was...
by CF_69
Sun Jul 07, 2019 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sluggish bowel
Replies: 3
Views: 447

Re: Sluggish bowel

I eat a lot of fiber too. I’m just over 3 months post surgery now, no ileostomy. I tend to constipate, however on occasion I’ve had to beeline to the nearest washroom. Everyone seems to have their own unique do’s and don’ts when it comes to LARS. I consider myself pretty lucky as I’ve had relatively...
by CF_69
Sun Jul 07, 2019 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go. Xeloda dosage question
Replies: 13
Views: 1019

Re: Here we go. Xeloda dosage question

I was on 1800 mg twice a day during radiation, on radiation days only. 3 x 500 mg and 2 x 150 mg per dose. I was told not to handle the pills but to pop them into a cup and to take them that way. Also was told to keep my body fluids to myself while on chemo. Now I’m doing the adjuvant phase, which i...
by CF_69
Fri Jun 21, 2019 11:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tightness in hips-radiation?
Replies: 5
Views: 524

Re: Tightness in hips-radiation?

MRI came back. Disc pushing on nerve, nothing suspicious.

Relieved in a sense but probably looking at another surgery before I can go back to work.
by CF_69
Fri Jun 14, 2019 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared I might have advanced cancer
Replies: 20
Views: 1362

Re: Scared I might have advanced cancer

The way I got through the staging process mentally was to think what is there is already there. They need to find it to get rid of it. I know all about the anxiety. I’m sure everyone here does. You need to find out what’s wrong in order to fix it. Maybe you’ll get good news and some peace of mind. G...
by CF_69
Fri Jun 14, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared I might have advanced cancer
Replies: 20
Views: 1362

Re: Scared I might have advanced cancer

Did you have a colonoscopy? If not, get one.
by CF_69
Wed Jun 12, 2019 7:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation - Drinking Water (>120 ounces)
Replies: 7
Views: 565

Re: Constipation - Drinking Water (>120 ounces)

It actually tastes pretty good. It seems most people are on the other end of the spectrum, but for us that tend to get constipated this shake may help. I know everyone is different, but give it a shot. I tend to eat as though nothing ever happened to me so I can get plugged up pretty easily if I’m n...
by CF_69
Wed Jun 12, 2019 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation - Drinking Water (>120 ounces)
Replies: 7
Views: 565

Re: Constipation - Drinking Water (>120 ounces)

I’ve been experimenting with smoothies for my first meal of the day. My latest concoction is: 1 banana Handful of blueberries 5-6 strawberries 5-7 prunes 1 cup spinach 1 cup coconut water 1/2 cup Greek vanilla yogurt Usually I’ll have a coffee alone before I ingest anything else. I’m constantly tryi...
by CF_69
Tue Jun 11, 2019 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU as second line?
Replies: 12
Views: 881

Re: 5FU as second line?

I’m not sure if this is what you’re asking, but I’m currently taking Xeloda alone for adjuvant chemo.
by CF_69
Sat Jun 08, 2019 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tightness in hips-radiation?
Replies: 5
Views: 524

Re: Tightness in hips-radiation?

I’ve had terrible hip / low back pain. I’m about 2 1/2 months post LAR, no ileo. I had about 6 weeks of radiation around Christmas time. I do have a history of back problems. A L5-S1 disc herniation and my most recent MRI noted degenerative disc disease at L4-L5. I’ve tried everything. Most pills do...
by CF_69
Sat Jun 01, 2019 3:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 269
Views: 65488

Re: Surviving radiation for rectal cancer

No such luck. Stretching seems to have made it worse.

I can feel something pushing on the nerve. Have an MRI coming up as soon as I get the call. I’ve been basically immobile for over a month now.

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