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by sinewaves
Thu Mar 18, 2021 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigh - Here we go again
Replies: 8
Views: 3102

Re: Sigh - Here we go again

Oof I'm impressed you managed 4 rounds of xelox without a port! My husband had the first one (of 6) done that way and it was total agony I think you were one of the people I ignored when I originally asked a few years back, and man did I regret it at the time. Thanks for the extra information and h...
by sinewaves
Thu Mar 18, 2021 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigh - Here we go again
Replies: 8
Views: 3102

Re: Sigh - Here we go again

The port is far superior to IV. You will probably get advice about icing (feet, hands, mouth) during treatment. My husband didn't do that and probably should have. Interesting - one of the side effects I had was cold sensitivity - even reaching my hand into the fridge sucked! I wonder how bad icing...
by sinewaves
Thu Mar 18, 2021 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigh - Here we go again
Replies: 8
Views: 3102

Sigh - Here we go again

Just posting to vent mostly. Story is in sig, but I thought I was out of the woods after getting my permanent colostomy in 2019 and doing 4 (out of 6) rounds of XELOX. Doctor had said studies showed 4 treatments might be just as effective as 6. CT in December of 2020 showed growth in a lung nodule t...
by sinewaves
Wed Jun 26, 2019 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 3663

Re: Mop up chemo - Port vs non-port for Oxi?

Thanks everyone for the feedback and sharing your stories.

I'm going to try it tomorrow without the port and see how it is - and get a port put in for the other rounds if needed.
by sinewaves
Wed Jun 26, 2019 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery for low rectal tumor
Replies: 16
Views: 3357

Re: APR surgery for low rectal tumor

I had an APR in late April. I was also told by two surgeons that they wouldn't be able to get enough margins to save the muscles down there, so a total APR was my best shot. I'm still getting used to life with the colostomy, but honestly it isn't as bad as I imagined. The worst part for me is sleepi...
by sinewaves
Wed Jun 12, 2019 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 3663

Re: Mop up chemo - Port vs non-port for Oxi?

Thank you for the feedback everyone!

This board is such a great resource and I appreciate you sharing your experiences.
by sinewaves
Tue Jun 11, 2019 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 3663

Mop up chemo - Port vs non-port for Oxi?

I am going in to talk to my oncologist about my mop up chemo, which will be the XELOX regime. One of the questions he asked last time was about a port - I had just finished my APR and wasn't looking for any more surgeries, so I said I didn't need one. However, in searching this board, I found a lot ...
by sinewaves
Wed Feb 20, 2019 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 87314

Re: Surviving radiation for rectal cancer

So another noob question -

When do the razor/lava poops go away? It's been 6 days since my last radiation and it's still quite painful to pass, even though the diarrhea is gone. I guess its always be careful what you wish for - trade one inconvenience for another more painful one.
by sinewaves
Sat Feb 16, 2019 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 87314

Re: Surviving radiation for rectal cancer

Sorry to ask a new question, but how long after radiation ended with the diaherra (for those who got it) go away? I have 3 more days (the boosts) and I am ready for this particular side effect to end. I never experienced the diarhea too much, but do notice that you are doing 28 sessions. Just wonde...
by sinewaves
Mon Feb 11, 2019 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 87314

Re: Surviving radiation for rectal cancer

Sorry to ask a new question, but how long after radiation ended with the diaherra (for those who got it) go away? I have 3 more days (the boosts) and I am ready for this particular side effect to end.
by sinewaves
Fri Feb 08, 2019 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?
Replies: 20
Views: 4169

Re: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?

Congrats Deep!

My tumor is pretty low, and I can definitely feel a burning when I poop. The skin cream helps a little - 4 days to go for me, then onto the next part of treatment.
by sinewaves
Wed Jan 30, 2019 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?
Replies: 20
Views: 4169

Re: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?

At 18/28 done treatments now, and it's getting to be pretty noticeable/bad. Starting to understand the "razor poops" previous threads have talked about. I've been good about putting aloe around the area multiple times a day, but unclear how much it is helping. Of course the light is at the...
by sinewaves
Sun Jan 27, 2019 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you first discover or got diagnosed with colorectal cancer ?
Replies: 16
Views: 3755

Re: How did you first discover or got diagnosed with colorectal cancer ?

I noticed blood in my stool, and asked my PCP about it. He gave me a FIT test, which showed positive for blood. Because of my age (37), he said it was probably internal hemorrhoids and not to worry, especially since there's no known history of colorectal cancer in my family. Waited another few weeks...
by sinewaves
Fri Jan 11, 2019 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?
Replies: 20
Views: 4169

Re: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?

I'm right there with you - finished week 1 today. Knocking on wood it stays pretty side effect free.

Keep us updated!
by sinewaves
Sun Jan 06, 2019 5:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3A Rectal Cancer Diagnosis
Replies: 4
Views: 2540

Re: Stage 3A Rectal Cancer Diagnosis

Thanks for all the support and feedback! I'm starting my Xeloda and radiation tomorrow. I'm prepared with a few things, based on the feedback from your guys and other threads: Imodium in case Wet wipes to reduce friction Radiation burn cream for the skin that will be in the beam's path Moisturizer f...

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